Dementia Champions in Homecare

NCT ID: NCT05684783

Last Updated: 2023-10-06

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

80 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-09-26

Study Completion Date

2023-12-31

Brief Summary

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This is a descriptive, explorative study in which we will explore how the role of Dementia Champions in homecare services could develop, and become more widely implemented in this sector's workforce.

Detailed Description

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This study had three parts:

1. The investigators will start by learning from the work of other Dementia Champions working across care services to get a 'real world' in-depth understanding of what working as a Dementia Champion involves, what works well, and what can be improved. The investigators will carry out qualitative interviews with care professionals with experience of being or working with Dementia Champions. They will also speak to people affected by dementia (people living with dementia and their family carers) who have received care from services with Dementia Champions.
2. The investigators will carry out a stakeholder consultation workshop with 10 people including care professionals, people affected by dementia, and other relevant stakeholders, to build on what we have learned so far. They will commission a Science Illustrator to visually scribe the workshop discussions and produce an illustration of the Dementia Champion in homecare role.
3. The investigators will use the model created in part 2 of the study to facilitate interviews in part 3. They will speak to staff working in homecare services (managers and homecare workers) that do not have Dementia Champions in them, and people living with dementia and family members who use homecare services that do not have Dementia Champions in them. This will help the research team understand how to better establish the role of Dementia Champions and how this could work within homecare, including what would be needed to support staff in this role.

Conditions

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Dementia

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Group 1 interviews

Care professionals with experience of being or working with Dementia Champions, and people affected by dementia who have received care from services with Dementia Champions.

No interventions assigned to this group

Group 2 interviews

Homecare professionals working in services where there are no Dementia Champions, and people affected by dementia who have received care from services with no Dementia Champions.

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

Part 1 (group 1 interviews):

* Staff who are or have been DCs in services that provide care and support to people affected by dementia
* Staff who work or have worked alongside DCs in services that provide care and support to people affected by dementia
* Staff with expertise in dementia e.g. those from third sector or voluntary dementia organisations
* A person living with dementia who receives or has received support or care from services with DCs embedded within the team i.e., homecare
* A current or former family carer of a person living with dementia who receives or has received support or care from services with DCs embedded within the team i.e., homecare

Part 2 (stakeholder consultation workshop):

* Homecare staff (including any DCs identified from previous study phases)
* Dementia specialists (e.g., social workers with expertise in dementia, Admiral Nurses)
* People living with dementia in receipt of homecare support
* Current or former family carers of a person living with dementia in receipt of homecare support
* Any other relevant care staff

Part 3 (group 2 interviews):

* A homecare worker, manager, or other member of homecare staff
* A person living with dementia in receipt of homecare support
* A current or former family carer of a person living with dementia in receipt of homecare

Exclusion Criteria

* People who do not have capacity to consent to take part in this research study. The research team has experience of conducting informal assessments of capacity, using the three-stage test outlined in the Mental Capacity Act 2005 of England and Wales.
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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King's College London

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Monica Leverton

Role: PRINCIPAL_INVESTIGATOR

King's College London

Locations

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Home Instead Devon

South Molton, , United Kingdom

Site Status RECRUITING

Countries

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United Kingdom

Central Contacts

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Tiffeny James, PhD

Role: CONTACT

0044 (+44) 207 848 1782

Monica Leverton, PhD

Role: CONTACT

0044 (+44) 207 848 1782

Facility Contacts

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Adam Crispin

Role: primary

Other Identifiers

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IRAS 320561

Identifier Type: -

Identifier Source: org_study_id

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