Evaluation of Academic and Professional Trajectories of Narcoleptic Patients

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

149 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-10-03

Study Completion Date

2018-07-10

Brief Summary

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Narcolepsy is a chronic, disabling condition characterized by excessive daytime sleepiness and, in some patients, falls in muscle tone related to emotions (cataplexies). It often begins in childhood or in young adults. Symptoms of narcolepsy are responsible for an important handicap in everyday life, and are often misunderstood by the family and professional environment. In addition, many comorbidities are associated with narcolepsy, such as depression, anxiety, or obesity.

Few studies have examined the impact of narcolepsy on patients' educational background, socio-professional integration, and quality of life. In particular, the factors of professional handicap related to the characteristics of the disease and the determinants of the insertion of the patients remain poorly known.

As a better understanding of these determinants could help to inform patients and guide them in their choices, NARCOWORK study aims at evaluating the academic and professional trajectories of a wide population of narcoleptic patients.

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Detailed Description

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Conditions

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Narcolepsy

Study Design

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Observational Model Type

CASE_CONTROL

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Narcoleptic Patients

Type 1 and Type 2 narcoleptic adult patients usually followed at the Lyon Sleep Medicine and Respiratory Disease center

Questionnaires

Intervention Type OTHER

Participants will have to complete questionnaires to compare the distribution of occupational situations in narcoleptic patients and matched non-narcoleptic subjects (controls)

Control

Adult age-matched family members of the patients

Questionnaires

Intervention Type OTHER

Participants will have to complete questionnaires to compare the distribution of occupational situations in narcoleptic patients and matched non-narcoleptic subjects (controls)

Interventions

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Questionnaires

Participants will have to complete questionnaires to compare the distribution of occupational situations in narcoleptic patients and matched non-narcoleptic subjects (controls)

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Group "Narcoleptic Patients":

* Type 1 or Type 2 narcolepsy
* \> 18 years
* Usually followed at the Lyon Sleep Medicine Center

Group "Control":

* At least one member of each family of cases (siblings, cousins ...)
* \> 18 years and of the same age as the case if possible (+/- 5 years)
* No narcolepsy