The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From
NCT ID: NCT06280261
Last Updated: 2024-02-28
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
156 participants
OBSERVATIONAL
2020-05-27
2020-09-01
Brief Summary
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Detailed Description
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Conditions
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Study Design
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FAMILY_BASED
PROSPECTIVE
Interventions
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parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire
Scales and questionnaires
Eligibility Criteria
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Inclusion Criteria
Exclusion Criteria
* Other chronic illness
* Pregnancy
6 Months
35 Years
ALL
No
Sponsors
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Hacettepe University
OTHER
Responsible Party
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Dilara Demirel
MD
Principal Investigators
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Serap Sivri, Prof
Role: STUDY_DIRECTOR
Hacettepe University
Locations
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Hacettepe University
Ankara, Sihhiye, Turkey (Türkiye)
Countries
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Provided Documents
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Document Type: Study Protocol and Statistical Analysis Plan
Other Identifiers
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GO20/296
Identifier Type: -
Identifier Source: org_study_id
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