Impact of Covid-19 Pandemic on Children With Neuromuscular Disease and Their Parents in Turkey: Parent Perspective
NCT ID: NCT05771727
Last Updated: 2023-03-16
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
134 participants
OBSERVATIONAL
2021-07-01
2021-10-01
Brief Summary
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Detailed Description
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Conditions
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Study Design
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FAMILY_BASED
PROSPECTIVE
Study Groups
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Parents of children with pediatric neuromuscular diseases
Parents of a total of 169 children with pediatric neuromuscular diseases, including 63 Duchnenne Muscular Dystrophy, 53 Spinal Muscular Atrophy and 18 other pediatric neuromuscular diseases (Congenital Muscular Dystrophy, Hereditary Motor and Sensory Neuropathy, Becker Muscular Dystrophy, Limb-Girdle Muscular Dystrophy, etc.) were included in the study
survey
The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families. This survey also included the Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9).
Interventions
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survey
The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families. This survey also included the Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9).
Eligibility Criteria
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Inclusion Criteria
* having the ability to read and write Turkish language,
* having access to phone or e-mail,
* being volunteer.
Exclusion Criteria
ALL
No
Sponsors
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Hacettepe University
OTHER
Responsible Party
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Merve Bora
Physiotherapist
Locations
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Hacettepe University
Ankara, , Turkey (Türkiye)
Countries
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Other Identifiers
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GO 21/722
Identifier Type: -
Identifier Source: org_study_id
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