The Effect of Transition to Adulthood Education Program on Family Quality of Life and Perceived Stress Level

NCT ID: NCT05587647

Last Updated: 2024-01-11

Basic Information

• Recruitment Status: COMPLETED
• Clinical Phase: NA
• Total Enrollment: 33 participants
• Study Classification: INTERVENTIONAL
• Study Start Date: 2023-01-01
• Study Completion Date: 2023-09-01

Brief Summary

Negative emotions experienced during life processes and the burden of caregiving affect the quality of life of parents. It has been found that parents who care for their children with intellectual disability (ID) for a long time have difficulties in coping with stress and their quality of life is adversely affected. However, families play a key role in maintaining the care of their children with ID, so it is very important that parents are supported in the matters they need.

Detailed Description

Mothers are generally the people who take on a large part of the burden of care for their children with intellectual disability (ID) in the family and are most affected by the negativities brought by the conditions. Providing support to mothers for the care and future planning of their children who have just passed into adult life and for their future planning is important both in terms of maintaining family well-being and creating positive effects in the lives of individuals with mental disabilities.

With this study, it is aimed to increase the quality of life of mothers and to reduce perceived stress levels with the training (YEGEP) modules to be given for the changing care needs of individuals with ID who have reached adulthood or are in transition. In addition, it is expected that the health risks of young adults with ID will be determined at an early stage, and their health will be improved and protected.

Conditions

Intellectual Disability

Study Design

• Allocation Method: RANDOMIZED
• Intervention Model: PARALLEL
• Primary Study Purpose: SUPPORTIVE_CARE
• Blinding Strategy: SINGLE

Study Groups

Experimental: YEGEP group/Intervention

Mothers will be informed about the program and invited to work. In the phone call, information will be given about the purpose, duration, requirements and volunteering of the study. The planned training schedule will be applied to these mothers.

Group Type: EXPERIMENTAL

Transition to Adulthood Education Program

Intervention Type: OTHER

YEGEP was developed by the authors based on the information in the literature, based on the needs of mothers of children who have reached adulthood or are going through. Three training modules are planned in line with current requirements. Education will also be supported by audio-visual and written materials. It is planned that the trainings, which will last for 3 weeks in total, for 1 hour a week for each group, in the form of 3 sessions of 1 hour with these contents, will be held at a disabled center. Titles of training modules:

1. Developmental Period Characteristics of Young Adults with Intellectual Disabilities (Transition to Adulthood, Future Planning / Social Life (employment, peers, etc.)

2. Protecting and Sustaining the Health of Young Adult with Intellectual Disabilities

3. Coping with Stress

Control group

Annual care trainings are given to parents at the disabled center where the study will be conducted. There is no similar practice to these mothers on the same dates. place in the control group

Group Type: NO_INTERVENTION

No interventions assigned to this group

Interventions

Transition to Adulthood Education Program

YEGEP was developed by the authors based on the information in the literature, based on the needs of mothers of children who have reached adulthood or are going through. Three training modules are planned in line with current requirements. Education will also be supported by audio-visual and written materials. It is planned that the trainings, which will last for 3 weeks in total, for 1 hour a week for each group, in the form of 3 sessions of 1 hour with these contents, will be held at a disabled center. Titles of training modules:

1. Developmental Period Characteristics of Young Adults with Intellectual Disabilities (Transition to Adulthood, Future Planning / Social Life (employment, peers, etc.)

2. Protecting and Sustaining the Health of Young Adult with Intellectual Disabilities

3. Coping with Stress

Intervention Type: OTHER

Other Intervention Names

There is no other intervention

Eligibility Criteria

Inclusion Criteria

• Whose child is registered with the disability center,
• Have a young adult child between the ages of 20 and 35 with moderate and severe mental disabilities,
• Speaking Turkish and literate Turkish,
• Not visually and speech impaired,
• Mothers who volunteered to participate in the study will be included.

Exclusion Criteria

• Mothers who did not volunteer to participate in the study and were illiterate in Turkish were not included in the study.

• Eligible Sex: FEMALE
• Accepts Healthy Volunteers: Yes

Sponsors

Koç University

OTHER

Sponsor Role: lead

Responsible Party

Eysan Hanzade Umac

Teaching and Research Assistant

Responsibility Role: PRINCIPAL_INVESTIGATOR

Locations

Koc University

Istanbul, , Turkey (Türkiye)

Countries

Turkey (Türkiye)

Other Identifiers

Eyşan Umac

Identifier Type: -

Identifier Source: org_study_id