Lung Volume Perception and Impact of a Cognitive Task on Ventilation in Hypermobile Ehlers-Danlos Syndrome.
NCT ID: NCT05000151
Last Updated: 2022-07-22
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
38 participants
OBSERVATIONAL
2021-09-02
2022-05-19
Brief Summary
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Detailed Description
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Conditions
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Study Design
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CASE_CONTROL
CROSS_SECTIONAL
Study Groups
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Patients
Hypermobile Ehlers-Danlos patients (n=21)
No interventions assigned to this group
Healthy subjects
Healthy subjects recruited from the clinic's staff (n=21) Age, Gender and BMI matched with hEDS patients
No interventions assigned to this group
Eligibility Criteria
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Inclusion Criteria
* Understanding French
* hEDS diagnosis
* Age (±5 years), Gender and BMI (±2.5kg/m²) matching
Exclusion Criteria
* Respiratory comorbidity independent of hEDS
* Previous participation in a rehabilitation programme at the clinic
* Known respiratory or proprioceptive pathology
* Hypermobility (evaluated with the Beighton score)
18 Years
ALL
Yes
Sponsors
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Hakimi Adrien
OTHER
Responsible Party
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Hakimi Adrien
MCs, PT
Principal Investigators
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Cyrille Bergoin, MD
Role: PRINCIPAL_INVESTIGATOR
Clinique de la Mitterie
Patrick Mucci, Prof.
Role: STUDY_DIRECTOR
UREPSSS
Locations
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Clinique de la Mitterie
Lomme, , France
Countries
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References
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Hakimi A, Bergoin C, De Jesus A, Hermand E, Fabre C, Mucci P. Impairment of lung volume perception and breathing control in hypermobile Ehlers-Danlos syndrome. Sci Rep. 2024 Apr 6;14(1):8119. doi: 10.1038/s41598-024-58890-2.
Other Identifiers
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ProprioRespi
Identifier Type: -
Identifier Source: org_study_id
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