Interventional Study of Infigratinib in Children < 3 Years Old With Achondroplasia (ACH)

NCT ID: NCT07169279

Last Updated: 2025-12-15

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE2

Total Enrollment

77 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-11-19

Study Completion Date

2032-03-31

Brief Summary

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This is a Phase 2, multicenter, randomized, placebo-controlled study to evaluate the safety and efficacy of infigratinib in participants \< 3 years old with ACH. The purposes of the SAD and Phase 2 portions are to identify and confirm the dose of infigratinib to be used in the Phase 2b portion, based on safety and PK. The purpose of the Phase 2b, placebo-controlled portion is to evaluate the safety and efficacy of infigratinib in children \< 3 years old with ACH at the selected dose.

Detailed Description

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PROPEL Infant \& Toddler (I\&T) is a Phase 2, multicenter, randomized, placebo-controlled study that comprises 4 portions: the single ascending dose (SAD) portion (open-label), the Phase 2 portion (open-label), the Phase 2b portion (placebo-controlled), and an Extension Portion (open-label). The study will evaluate children with ACH \< 3 years old being administered oral infigratinib.

Conditions

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Achondroplasia

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

This study comprises 4 portions: a Single Ascending Dose (SAD) portion and open-label Phase 2 portion to evaluate safety and PK and select a dose level for Phase 2b; a placebo-controlled Phase 2b portion, to assess safety and efficacy at the selected dose level; and an open-label extension portion to evaluate safety and efficacy in children \< 3 years old who have completed the Phase 2 or Phase 2b portion of the study.
Primary Study Purpose

TREATMENT

Blinding Strategy

DOUBLE

Participants Investigators

Study Groups

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Open- label Extension infigratinib (0 months to 3 years [+6 months old])

Open-label extension portion continuing to assess safety and efficacy in children until they reach 3 years old (+6 months)

Group Type EXPERIMENTAL

Infigratinib is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The dose of infigratinib will be the dose confirmed in the Phase 2 portion and used in the Phase 2b portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months for the first year and every 6 months thereafter.

Phase 2B Cohort 1 Placebo (2 to less than 3 years old)

Randomized Safety and Efficacy study

Group Type PLACEBO_COMPARATOR

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

SAD Cohort 1 infigratinib (2 to less than 3 years old)

Single Ascending Dose Escalation and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as a single dose of minitablets for oral administration

Intervention Type DRUG

* The initial cohort dose of infigratinib will begin at the protocol-specified starting dose, with subsequent cohort escalation based on protocol specific criteria.
* The target dose is the dose that will provide similar exposure to the dose of 0.25 mg/kg/day in participants 3 years old and older.
* The dose and number of minitablets will be calculated based on individual participant age and weight.

SAD Cohort 2 infigratinib (1 to less than 2 years old)

Single Ascending Dose Escalation and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as a single dose of minitablets for oral administration

Intervention Type DRUG

* The initial cohort dose of infigratinib will begin at the protocol-specified starting dose, with subsequent cohort escalation based on protocol specific criteria.
* The target dose is the dose that will provide similar exposure to the dose of 0.25 mg/kg/day in participants 3 years old and older.
* The dose and number of minitablets will be calculated based on individual participant age and weight.

SAD Cohort 3 infigratinib (6 months to less than 1 year old)

Single Ascending Dose Escalation and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as a single dose of minitablets for oral administration

Intervention Type DRUG

* The initial cohort dose of infigratinib will begin at the protocol-specified starting dose, with subsequent cohort escalation based on protocol specific criteria.
* The target dose is the dose that will provide similar exposure to the dose of 0.25 mg/kg/day in participants 3 years old and older.
* The dose and number of minitablets will be calculated based on individual participant age and weight.

SAD Cohort 4 infigratinib (0 to less than 6 months old)

Single Ascending Dose Escalation and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as a single dose of minitablets for oral administration

Intervention Type DRUG

* The initial cohort dose of infigratinib will begin at the protocol-specified starting dose, with subsequent cohort escalation based on protocol specific criteria.
* The target dose is the dose that will provide similar exposure to the dose of 0.25 mg/kg/day in participants 3 years old and older.
* The dose and number of minitablets will be calculated based on individual participant age and weight.

Phase 2 Cohort 1 infigratinib (2 to less than 3 years old)

Open-label Safety and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib will be the dose identified in the Single Ascending Dose portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2 Cohort 2 infigratinib (1 to less than 2 years old)

Open-label Safety and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib will be the dose identified in the Single Ascending Dose portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2 Cohort 3 infigratinib (6 months to less than 1 year old)

Open-label Safety and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib will be the dose identified in the Single Ascending Dose portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2 Cohort 4 infigratinib (0 to less than 6 months)

Open-label Safety and PK Portion

Group Type EXPERIMENTAL

Infigratinib is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib will be the dose identified in the Single Ascending Dose portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2B Cohort 1 infigratinib (2 to less than 3 years old)

Randomized Safety and Efficacy Portion

Group Type EXPERIMENTAL

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2B Cohort 2 infigratinib (6 months to less than 2 years old)

Randomized Safety and Efficacy Portion

Group Type EXPERIMENTAL

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2B Cohort 3 infigratinib (0 to less than 6 months old)

Randomized Safety and Efficacy Portion

Group Type EXPERIMENTAL

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2B Cohort 2 placebo (6 months to less than 2 years old)

Randomized Safety and Efficacy study

Group Type PLACEBO_COMPARATOR

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Phase 2B Cohort 3 Placebo (0 to less than 6 months old)

Randomized Safety and Efficacy study

Group Type PLACEBO_COMPARATOR

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

Intervention Type DRUG

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Interventions

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Infigratinib is provided as sprinkle capsules for daily oral administration

* The cohort dose of infigratinib will be the dose identified in the Single Ascending Dose portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Intervention Type DRUG

Infigratinib or placebo comparator is provided as sprinkle capsules for daily oral administration

* The cohort dose of infigratinib or placebo will be the dose confirmed in the Phase 2 portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months.

Intervention Type DRUG

Infigratinib is provided as a single dose of minitablets for oral administration

* The initial cohort dose of infigratinib will begin at the protocol-specified starting dose, with subsequent cohort escalation based on protocol specific criteria.
* The target dose is the dose that will provide similar exposure to the dose of 0.25 mg/kg/day in participants 3 years old and older.
* The dose and number of minitablets will be calculated based on individual participant age and weight.

Intervention Type DRUG

Infigratinib is provided as sprinkle capsules for daily oral administration

* The dose of infigratinib will be the dose confirmed in the Phase 2 portion and used in the Phase 2b portion for the age group.
* The dose and number of sprinkle capsules/day will be calculated based on individual participant age and weight. Doses will be adjusted based on age and weight changes approximately every 3 months for the first year and every 6 months thereafter.

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Diagnosis of ACH confirmed by genetic testing. If prospective participants had prior genetic testing, the diagnosis must be confirmed by a report from a certified laboratory, documenting the specific mutation.
* Age 0 to 32 months (2 years and 8 months) at screening.
* Signed informed consent, which must be obtained from each participant's parent(s) or legal guardian.
* Parent(s)/Guardian(s) willing and able to attend all study visits and comply with all study requirements.
* Parent(s)/Guardian(s) willing and able to comply with the routine care of the study participants according to local guidance for the management of infants and young children with ACH.
* Able to swallow age-appropriate oral medication.
* In participants \<1 year old, be compliant with recommended vitamin D supplementation of 5 10 μg/day or higher (or as recommended by country specific guidelines).

Exclusion Criteria

* Participants who have hypochondroplasia or diagnosis of genetic condition other than ACH, or any clinical condition that can affect growth.
* Gestational age at birth \<37 weeks and/or birth weight \<2500 grams.
* Gastroesophageal reflux disease requiring prolonged treatment (\>1 week) with prohibited medications.
* Evidence of cervicomedullary compression, as defined by an Achondroplasia Foramen Magnum Score (AFMS) 4, symptomatic or asymptomatic, diagnosed during MRI done at screening or a previous MRI done at any time if the participant had not undergone decompression surgery.
* History of fracture of a long bone or spine within 6 months prior to screening.
* Any other significant concurrent disease or condition that, in the view of the investigator and/or sponsor, would confound assessment of efficacy or safety of infigratinib and/or would require treatment with a prohibited medication (per protocol), and/or would place the participant at high risk for poor treatment compliance or for failure to complete the study.
* Having received or planning to receive treatment with any other investigational or approved product for the treatment of ACH or short stature, including (but not limited to) r-hGH, IGF-1, CNP analog, FGF ligand trap, or treatment targeting FGFR inhibition at any time.
* Regular long-term (\>3 weeks; more than twice/year) treatment with supraphysiologic doses of glucocorticoid therapy (ie, \>15 mg/m2/day of hydrocortisone or equivalent) or treatment with glucocorticoids at anti-inflammatory doses (for over 3 weeks within 6 months of the screening visit. NOTE: Low-dose topical, inhaled, or intranasal corticosteroids are acceptable.
* Significant abnormality in screening laboratory results,
* Allergy or hypersensitivity to any components of the study drug.
Minimum Eligible Age

0 Years

Maximum Eligible Age

32 Months

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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QED Therapeutics, a BridgeBio company

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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UCSF Benioff Children's Hospital

Oakland, California, United States

Site Status RECRUITING

Johns Hopkins University

Baltimore, Maryland, United States

Site Status NOT_YET_RECRUITING

University of Wisconsin Madison - Waisman Center Bone Dysplasia Clinic

Madison, Wisconsin, United States

Site Status NOT_YET_RECRUITING

Murdoch Children's Research Institute

Parkville, Victoria, Australia

Site Status RECRUITING

Children's Hospital of Eastern Ontario Research Institute

Ottawa, Ontario, Canada

Site Status RECRUITING

Université de Montréal - Centre Hospitalier Universitaire Sainte-Justine

Montreal, Quebec, Canada

Site Status NOT_YET_RECRUITING

Paediatric Clinical Research Unit at Oslo University Hospital

Oslo, , Norway

Site Status NOT_YET_RECRUITING

KK Women's and Children's Hospital

Singapore, , Singapore

Site Status RECRUITING

Unidad de Cirugia Artroscopica (UCA)

Vitoria-Gasteiz, , Spain

Site Status NOT_YET_RECRUITING

NHS Greater Glasgow and Clyde

Glasgow, , United Kingdom

Site Status NOT_YET_RECRUITING

Guy's and Saint Thomas' NHS Foundation Trust

London, , United Kingdom

Site Status NOT_YET_RECRUITING

Manchester University NHS Foundation Trust

Manchester, , United Kingdom

Site Status NOT_YET_RECRUITING

Sheffield Children's NHS Foundation Trust

Sheffield, , United Kingdom

Site Status NOT_YET_RECRUITING

Countries

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United States Australia Canada Norway Singapore Spain United Kingdom

Central Contacts

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QED Therapeutics Inc.

Role: CONTACT

18772805655

Other Identifiers

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QBGJ398-204

Identifier Type: -

Identifier Source: org_study_id

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