Views on Information Resources for Kidney Transplantation Patients

NCT ID: NCT07017556

Last Updated: 2025-06-15

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

NOT_YET_RECRUITING

Clinical Phase

NA

Total Enrollment

60 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-06-30

Study Completion Date

2026-02-28

Brief Summary

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The goal of this pilot study is to find out whether educational videos can help patients better understand, and remember, important information regarding the benefits and risks of having a kidney transplant.

The study aims to answer several questions, including:

1. Is the video-based educational intervention acceptable and feasible for kidney transplant patients?
2. Does the intervention improve patient knowledge and satisfaction immediately after viewing?
3. Does the intervention improve patient knowledge retention a week later?
4. What are patients views on the video format as an educational tool?

At the moment, patients learn about kidney transplantation through written documents, and discussions and conversations with their clinicians / doctors. However, the concern here is that not everyone has the same level of understanding when it comes to language literacy, medical jargon and information. This can result in gaps in knowledge, misunderstandings, and / or misinterpretations, including the need for lifelong medication and possible post-transplant complications.

Patients understanding of the benefits and risks of transplantation is extremely important, as there are aspects which patients may not be aware of, including the need for (and importance of) lifelong medication, and also potential disease complications which may follow transplantation. For example, following a kidney transplant, it is not uncommon for patients to develop diabetes.

Participants in the study will:

Watch two short videos (roughly five minutes each) that explain the benefits and risks of kidney transplantation.

Answer some questions before video viewing, immediately after video viewing, and one week after video viewing.

Complete a short interview to give deeper feedback on the videos.

This study will explore whether using video helps patients to feel more informed and also satisfied with the clinical information they receive, and whether they can better retain this information. The investigators aim to support more informed patients, making transplant education clearer, more accessible, and generally easier to understand.

Detailed Description

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This will be a mixed-methods, repeated-measures, non-randomised pilot study. The design uses both quantitative and qualitative components to explore the feasibility and effectiveness of short (approximately five minutes each) educational videos for improving kidney transplant patient knowledge, knowledge retention, and information satisfaction.

A power analysis was conducted using G-Power to determine the participant sample size necessary for detecting a meaningful within-group effect of the intervention for both patient knowledge and information satisfaction. To detect a medium effect size (f = 0.21) with a power of 0.80 and an alpha level of .05, a total sample size of 60 participants (30 pre-transplant, and 30 post-transplant) is required.

Two subgroups (30 people each) - pre-transplant and post-transplant patients - will receive the same intervention with data collected through questionnaires (assessing knowledge, knowledge retention and satisfaction with the educational information) at three time points: Immediately pre-intervention (T1), immediately post-intervention (T2), and at a one-week follow-up (T3).

A semi-structured interview will take place immediately following the intervention (T2) exploring participants qualitative impressions of the videos and participant's assessment of the video's acceptability and the usefulness of the format.

The study will help to determine whether video-based education is a feasible and acceptable method for delivering kidney transplantation information, and whether it can improve participant understanding and satisfaction over traditional educational formats. The findings can then inform the design of a future larger-scale trial.

Conditions

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End-Stage Renal Disease

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

This study uses a single educational intervention across all participants. Participants are recruited from two subgroups:

1. Pre-transplant patients - Recruited from the kidney transplant waitlist.
2. Post-transplant patients - Recruited from post-transplant clinics.

All participants receive the same educational resources (two short videos explaining the risks and benefits of kidney transplantation). The only difference between the subgroups is their transplant status, otherwise the intervention is the same for everyone.
Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Video-Based Education (Pre / Post Transplant Patients)

The study uses a single educational intervention for all participants. Participants are recruited from two subgroups: Pre-transplant patients, and post-transplant patients.

All participants will watch the same educational videos (2 videos, each under five minutes) explaining important kidney transplant risks and benefits. These videos are designed to support the standard written and verbal information that patients receive.

Information will be collected from participants at three time points:

T1 (Day 1) - Immediately pre-video viewing. T2 (Day 1) - Immediately post-video viewing (the investigators will also conduct a short interview at this point).

T3 (Day 7) - One week follow-up.

Participants' knowledge and satisfaction will be assessed at each time point. Participants will also be interviewed to allow us to better understand their opinions. Analysis will examine differences by transplant status, but participants receive the same intervention.

Group Type EXPERIMENTAL

Views on Information Resources for Kidney Transplantation Patients

Intervention Type BEHAVIORAL

A pilot study to improve kidney transplant patient education. The study explores whether videos help patients to better understand and remember important information regarding the benefits and risks of receiving a kidney transplant.

Currently, patients receive transplant information through written materials, and clinician discussions. However, not everyone has the same level of language literacy and medical understanding, which can lead to critical knowledge gaps, misunderstandings, and misinterpretations.

Patients may also not know about lifelong medication needs, and complications which may follow transplantation, such as diabetes, making patient education and understanding essential.

This study explores whether video materials helps patients feel more informed and satisfied with the clinical information they receive, and whether they can better retain this information. The investigators aim to support more informed patients, making transplant education clearer, and accessible.

Interventions

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Views on Information Resources for Kidney Transplantation Patients

A pilot study to improve kidney transplant patient education. The study explores whether videos help patients to better understand and remember important information regarding the benefits and risks of receiving a kidney transplant.

Currently, patients receive transplant information through written materials, and clinician discussions. However, not everyone has the same level of language literacy and medical understanding, which can lead to critical knowledge gaps, misunderstandings, and misinterpretations.

Patients may also not know about lifelong medication needs, and complications which may follow transplantation, such as diabetes, making patient education and understanding essential.

This study explores whether video materials helps patients feel more informed and satisfied with the clinical information they receive, and whether they can better retain this information. The investigators aim to support more informed patients, making transplant education clearer, and accessible.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Pre-transplant patients are on the kidney transplant wait list
* Post-transplant patients have received a transplant within the last 12 months.
* Participants are 18 years or over.
* Participants can read and understand English.
* Participants are located within the Auckland Metro region.

Exclusion Criteria

* Any impairments preventing informed consent.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University of Auckland, New Zealand

OTHER

Sponsor Role lead

Responsible Party

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Darren Manden

Principal Investigator

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Kate MacKrill, Dr

Role: PRINCIPAL_INVESTIGATOR

University of Auckland, New Zealand

Locations

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Auckland City Hospital

Auckland, Auckland, New Zealand

Site Status

Countries

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New Zealand

Central Contacts

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Kate MacKrill, Dr

Role: CONTACT

+6421-123-8985

Darren Manden

Role: CONTACT

Facility Contacts

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Helen Pilmore, Dr

Role: primary

+649-367-0000

Other Identifiers

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KTPR2025

Identifier Type: -

Identifier Source: org_study_id

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