Expanding Live Donor Kidney Transplantation Through Advocacy Training and Social Media
NCT ID: NCT03099434
Last Updated: 2025-12-08
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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ACTIVE_NOT_RECRUITING
NA
775 participants
INTERVENTIONAL
2017-04-01
2026-12-07
Brief Summary
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Detailed Description
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Conditions
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Study Design
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RANDOMIZED
FACTORIAL
OTHER
DOUBLE
Study Groups
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Live Donor Champion + Facebook App
The LDC program consists of 6 monthly sessions of approx. 1 hour each. Each LDC session is led by a transplant physician or clinical coordinator. LDC sessions incorporate formal didactics, active-participant learning, personal stories, moderated group discussions, role-playing, and other skill-building exercises. LDC sessions are as follows: 1) education about ESRD, KT, and LDKT 2) communication skills building 3) Exploring social networks 4) sharing successful donor and recipient stories 5) encouraging candidate self-efficacy. At session 3, the the Facebook app will be incorporated and given to candidates. The Facebook app provides step-by-step instructions for creating a Facebook post that details each waitlist candidate's struggle with ESRD and their need for a live donor. The post is then uploaded to Facebook so it can be shared with the candidate's Facebook social network.
Live Donor Champion + Facebook App
A "Live Donor Champion" (LDC) is a friend, family member, or community member who serves as an advocate for the candidate in their pursuit of live donation. The investigators have developed a six-month program that provides education and advocacy training to waitlist candidates and their LDCs.
Facebook App
The Facebook app provides step-by-step instructions for creating a Facebook post that details each waitlist candidate's struggle with ESRD and their need for a live donor. The post is then uploaded to Facebook so it can be shared with the candidate's Facebook social network. The Facebook App prompts users with specific questions to create a narrative. Links to supplemental resources are auto-populated into the post to provide anyone that views the post with vetted information about the risks, benefits, and process of live donation. Candidates using the Facebook app attend one focus group session held at the transplant center where they are provided with verbal instructions and visual demonstrations of installation and use of the Facebook app.
Facebook App
This web-based mobile application allows candidates to write a simple and effective story to share with their previously built network on Facebook to help share their story and identify a potential live donor.
Standard of Care
Standard of Care does not include any of the interventions detailed above, but rather normal routine care as this is the control group.
No interventions assigned to this group
Interventions
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Facebook App
This web-based mobile application allows candidates to write a simple and effective story to share with their previously built network on Facebook to help share their story and identify a potential live donor.
Live Donor Champion + Facebook App
A "Live Donor Champion" (LDC) is a friend, family member, or community member who serves as an advocate for the candidate in their pursuit of live donation. The investigators have developed a six-month program that provides education and advocacy training to waitlist candidates and their LDCs.
Eligibility Criteria
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Inclusion Criteria
* If there is an individual willing to donate, but the candidate is unwilling to consider this option or this particular individual, the candidate is eligible for the trial and may still benefit from identification of new donors or increased comfort accepting donation from others.
* Participants at Johns Hopkins University or University of Alabama must speak English. Participants at Northwestern University must speak English or Spanish.
Exclusion Criteria
* Those with a previous kidney transplant will be excluded
18 Years
ALL
No
Sponsors
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University of Alabama at Birmingham
OTHER
Northwestern University
OTHER
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
NIH
Johns Hopkins University
OTHER
Responsible Party
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Principal Investigators
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Andrew Cameron, MD PhD
Role: PRINCIPAL_INVESTIGATOR
Johns Hopkins University
Locations
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Northwestern University
Evanston, Illinois, United States
Johns Hopkins University
Baltimore, Maryland, United States
Countries
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Other Identifiers
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IRB00125128
Identifier Type: -
Identifier Source: org_study_id
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