Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors
NCT ID: NCT03803423
Last Updated: 2025-11-10
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
NA
1000 participants
INTERVENTIONAL
2017-11-27
2026-11-27
Brief Summary
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Detailed Description
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Conditions
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Keywords
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Study Design
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NA
SINGLE_GROUP
OTHER
NONE
Study Groups
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The Donor App
Select physicians and research staff from about 15 transplant hospitals will be given access to distribute the application to patients who the above people feel could benefit from the application. After obtaining informed consent, an approved member of the study team will enter the participant's name, contact info, and organ needed into the Donor App's secure management portal to send an email or text message with a unique and protected invitation link to the participant. Using this link the participant will be allowed to use the Donor App indefinitely.
The Donor App
The Donor app is a web-based application that helps transplant candidates tell the candidate's story via social media in the hopes of identifying an appropriate living donor. Sample stories created using the Donor App can be found at www.thedonorapp.com.
Interventions
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The Donor App
The Donor app is a web-based application that helps transplant candidates tell the candidate's story via social media in the hopes of identifying an appropriate living donor. Sample stories created using the Donor App can be found at www.thedonorapp.com.
Eligibility Criteria
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Inclusion Criteria
* On the kidney-only or liver-only transplant waiting list at a collaborating center
Exclusion Criteria
* Not on the kidney or liver transplant waiting list
* On multiple organ transplant waiting lists
18 Years
ALL
Yes
Sponsors
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MaineHealth
OTHER
Washington University School of Medicine
OTHER
Scripps Health
OTHER
Yale University
OTHER
Rush University Medical Center
OTHER
Johns Hopkins University
OTHER
Responsible Party
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Principal Investigators
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Andrew Cameron, MD PhD
Role: PRINCIPAL_INVESTIGATOR
Johns Hopkins University
Locations
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Scripps Green Hospital
San Diego, California, United States
Yale University
New Haven, Connecticut, United States
Rush University Medical Center
Chicago, Illinois, United States
Maine Medical Center
Portland, Maine, United States
The Johns Hopkins Hospital
Baltimore, Maryland, United States
Washington University in St. Louis
St Louis, Missouri, United States
Countries
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Central Contacts
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Facility Contacts
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Sherri Loeb, BSN
Role: primary
Andrew Cameron, MD PhD
Role: primary
References
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Kumar K, King EA, Muzaale AD, Konel JM, Bramstedt KA, Massie AB, Segev DL, Cameron AM. A Smartphone App for Increasing Live Organ Donation. Am J Transplant. 2016 Dec;16(12):3548-3553. doi: 10.1111/ajt.13961. Epub 2016 Aug 10.
Bramstedt KA, Cameron AM. Beyond the Billboard: The Facebook-Based Application, Donor, and Its Guided Approach to Facilitating Living Organ Donation. Am J Transplant. 2017 Feb;17(2):336-340. doi: 10.1111/ajt.14004. Epub 2016 Sep 7.
Related Links
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The Donor App Homepage
Other Identifiers
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IRB00146922
Identifier Type: -
Identifier Source: org_study_id