AZAHAR Study To Describe Anifrolumab in a Real-World Setting

NCT ID: NCT06626945

Last Updated: 2025-06-24

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

152 participants

Study Classification

OBSERVATIONAL

Study Start Date

2025-02-03

Study Completion Date

2025-06-05

Brief Summary

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AZAHAR is an observational retrospective and longitudinal study with adults patients with SLE who initiated treatment with anifrolumab from June 1, 2023 to May 31, 2024.

The overall objective is to describe the characteristics and clinical outcomes of patients with SLE that initiated anifrolumab during its first year of commercialization in Spain.

Detailed Description

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Systemic lupus erythematosus (SLE) is a chronic autoimmune disease characterized by altered immune response with excessive cytokines and antibodies production. Immune response activation and maintained inflammatory status promote a multisystemic dysfunction affecting numerous organs.

Anifrolumab, a monoclonal antibody that binds to type 1 IFN, which it is involved in pathways altered in SLE , blocks its effects. In clinical trials showed beneficial effects controlling the disease activity in patients with moderate and severe SLE, compared to standard of care. This biologic treatment was marketed in Spain on June 1, 2023. This study aims to describe real world evidence of anifrolumab in Spain since its commercialization.

The primary objective is to describe disease activity (including low disease activity state, (LLDAS)) and clinical remission at the initiation with anifrolumab and every 6 months, up to 18 months, after anifrolumab initiation.

The secondary objectives are:

1. To estimate the flare incidence rate, overall, and considering severe flares only, during the previous 12 months before anifrolumab initiation and every 6 months up to 18 months after anifrolumab initiation.
2. To describe SLE treatment, especially the use of corticosteroids (CS), during the previous 12 months before anifrolumab initiation, and every 6 months, up to 18 months after anifrolumab initiation.
3. To describe anifrolumab persistence and adherence rate over time during treatment with anifrolumab.
4. To describe healthcare resources utilization (HRU) for SLE during the previous 12 months before anifrolumab initiation and every 6 months, up to 18 months after anifrolumab initiation.

The exploratory objective is:

To describe organ damage at the anifrolumab initiation, and every 6 months, up to 18 months after anifrolumab initiation.

This is an observational retrospective and longitudinal chart review study including adults patients with moderate-severe SLE who initiated treatment with anifrolumab. Baseline data 12 months prior to anifrolumab treatment will be collected, and since anifrolumab initiation, participants will be followed-up until the closest available data to the end of the study (December 31st, 2024).

This study is based exclusively on secondary data collection from outpatient electronic medical records (EMRs). Therefore, it will rely on already existing data from patients by the time of data collection.

The expected sample size is around 120 patients from 20 hospitals in Spain.

Conditions

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Systemic Lupus Erythematosus (SLE)

Study Design

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Observational Model Type

COHORT

Study Time Perspective

RETROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* Fulfilled the 2019 EULAR/ACR criteria for SLE at the date of anifrolumab initiation.
* Aged 18 years or older at the date of anifrolumab initiation.
* Have initiated anifrolumab between June 1st, 2023, and May 31st, 2024
* Have at least 12 months of medical history prior to anifrolumab initiation.

Exclusion Criteria

* Current or previous exposure to anifrolumab as part of a clinical trial or Early Access Program (EAP).
Minimum Eligible Age

18 Years

Maximum Eligible Age

130 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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AstraZeneca

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Josefina Cortés-Hernández, MD, PhD

Role: PRINCIPAL_INVESTIGATOR

Unit of Lupus, VHIR-Hospital Universitary Vall d'Hebrón

Locations

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Research Site

Barcelona, , Spain

Site Status

Research Site

Granada, , Spain

Site Status

Research Site

Jaén, , Spain

Site Status

Research Site

L'Hospitalet de Llobregat, , Spain

Site Status

Research Site

León, , Spain

Site Status

Research Site

Madrid, , Spain

Site Status

Research Site

Málaga, , Spain

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Research Site

Mérida, , Spain

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Research Site

Móstoles, , Spain

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Research Site

Murcia, , Spain

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Research Site

Seville, , Spain

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Research Site

Toledo, , Spain

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Research Site

Valladolid, , Spain

Site Status

Countries

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Spain

References

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Galindo-Izquierdo M, Bahamontes-Rosa N, Sarto-Ferres B, Galvez-Fernandez M, Cortes-Hernandez J. Characteristics and clinical outcomes of patients with systemic lupus erythematosus initiating anifrolumab in a real-world setting in Spain (AZAHAR study): an observational study protocol. Lupus Sci Med. 2025 Feb 12;12(1):e001486. doi: 10.1136/lupus-2024-001486.

Reference Type DERIVED
PMID: 39939126 (View on PubMed)

Other Identifiers

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D3461R00080

Identifier Type: -

Identifier Source: org_study_id

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