OPTImal Treatment of Sinus VENOSUS Defect

NCT ID: NCT05865119

Last Updated: 2023-08-14

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

60 participants

Study Classification

INTERVENTIONAL

Study Start Date

2023-05-12

Study Completion Date

2029-05-12

Brief Summary

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Sinus venosus defect (SVD) accounts for 10% of atrial septal defects and is characterized by an anomalous pulmonary venous return in the superior vena cava associated with a high situated atrial septal defect. Since 2013, transcatheter correction of this congenital heart disease has emerged as a new treatment option. The procedure involves placement of a covered stent in the superior vena cava that tunnels the anomalous pulmonary venous return to the left atrium. Preliminary results are limited but promising.

The devices to be used depend on anatomic considerations. XXL stents than 70mm are often required. Today, the availability of CE marked stents is limited. There have been recent reports of successful corrections with the specifically developed Optimus XXL 100mm covered stent (ANDRATEC) with compassionate approval from the Agence Nationale de Sûreté du Médicament in France. Setting up a feasibility study to investigate the use of medical devices in this indication was required.

The objective of this project is to study the feasibility, efficacy and safety of the Optimus stent in this newly developed transcatheter procedure, in comparison with the gold-standard surgical method. A French national multicenter comparative cohort study including all eligible patients referred for transcatheter correction of SVD was designed. The feasibility of the transcatheter procedures will be investigated beforehand by virtual digital simulation and simulation on a 3D printed model. The procedures will then be performed in centers of the M3C network for complex congenital heart diseases (CARDIOGEN). The primary endpoint will be a composite of efficacy, defined as complete occlusion of the shunt, and safety, defined as the absence of major events at 6 months. The secondary endpoints will be anatomical, functional and psychosocial (quality of life).

It is expected that transcatheter treatment gives comparable results to surgery on the primary endpoint. This could justify the further development of this procedure as an alternative to surgery and facilitate the validation of dedicated equipment.

Detailed Description

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OPTIVENOSUS will be offered to patients who have an correction of SVD. A pre-therapeutic assessment will be prescribed with a CT scan and MRI, followed by a complementary assessment with a 6-minute walk test, a functional cardiorespiratory examination, a Holter and an ECG.

In addition, the images from the CT scan carried out during the pre-therapeutic assessment will be transferred to a secure platform approved for hosting health data. These images will be the subject of a 3D reconstruction.

Then a multidisciplinary consultation meeting held by paediatric cardiologists, specialists in adult congenital heart disease, surgeons and interventional cardiologists will be held to assess whether or not the patient is ineligible for surgery and whether or not the patient is eligible for transcatheter correction of SVD on the basis of the imaging examinations and the clinical assessment.

During this meeting, the imaging core lab and the experts will give their opinion on the feasibility of the endovascular procedure.

The criteria considered for ineligibility for surgery will include

* Comorbidities
* Complications (rhythm disorders, heart failure, pulmonary hypertension).
* Age of the patient
* Anatomical considerations

The criteria considered for eligibility for percutaneous treatment are:

* Ineligibility for surgery
* An adult patient with a compatible anatomy (distance between the upper edge of the anomalous pulmonary venous return and the lower edge of the innominate venous trunk \> 2cm allowing sufficient stent attachment in the SVD; a diameter of the atrial septal defect \>10mm allowing redirection of flow from the anomalous pulmonary venous return to the left atrium without restriction and a position of the anomalous pulmonary veins allowing redirection of flow to the left atrium without obstruction by the stent in digital simulation). These 3 elements will be analysed on the injected scanner and then confirmed by the scanner simulation, the 3D printed model and the simulation of the procedure on an experimental test bench.

If the patient is eligible for the endovascular approach, a bench simulation of the endovascular procedure will be performed.

A simulation of the endovascular procedure is performed on a test bench in the hybrid room of the Marie Lannelongue Hospital. The test bench consists of a 3D model of the heart that corresponds exactly to the patient's anatomy, produced using CT images.

The simulation allows on the one hand to confirm the feasibility of transcatheter correction of SVD and on the other hand to define the characteristics in terms of diameter and length of the necessary devices (stent and balloons) for the procedure in order to have a personalized approach.

The simulation session will take place in the presence of the referring interventional cardiologists.

All patients, regardless of the mode of correction of SVD, will have the same follow-up at D7, 1 month, 6 months and then every year for 5 years with an echographic control and a clinical evaluation

Conditions

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Sinus Venosus Defect Congenital Heart Disease Sinus Venosus Atrial Septum Defect

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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endovascular

Transcatheter correction of a SVD with an OPTIMUS covered stent

Group Type EXPERIMENTAL

OPTIMUS covered stent

Intervention Type DEVICE

The procedure involves placement of a long and large balloon-expandable covered stent in the superior vena cava that tunnels the abnormal pulmonary venous return to the left atrium.

surgery

Surgical correction of a SVD

Group Type ACTIVE_COMPARATOR

Surgical correction of a SVD

Intervention Type PROCEDURE

Under cardiopulmonary bypass and open heart surgery, surgical correction of SVD either using single patch, double patch or Warden techniques

Interventions

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OPTIMUS covered stent

The procedure involves placement of a long and large balloon-expandable covered stent in the superior vena cava that tunnels the abnormal pulmonary venous return to the left atrium.

Intervention Type DEVICE

Surgical correction of a SVD

Under cardiopulmonary bypass and open heart surgery, surgical correction of SVD either using single patch, double patch or Warden techniques

Intervention Type PROCEDURE

Eligibility Criteria

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Inclusion Criteria

* from 12 years of age
* SVD with right ventricular end-diastolic volume dilatation (RV EDV) on imaging (echocardiography and/or MRI), defined by the guidelines as RV EDV greater than 112mL/m2 for women and 121 mL/m2 for men.
* With an indication for atrial septal defect correction, indicated at a medical-surgical meeting according to the ESC 2020 guideline criteria
* Adult patients who received informed information about the study and signed a consent to participate in the study
* Minor patients, no opposition from both holders of parental authority to data processing.
* Patient agreeing to be followed for the duration of the study
* Affiliated or beneficiary of a social security plan NB: Minor patients will only be considered eligible for the surgical procedure and will be studied descriptively.

Exclusion Criteria

* Patient under guardianship or curatorship
* Patient deprived of liberty
* Patient under judicial protection
* Pregnant or breastfeeding woman
* Patient already included in an interventional research protocol
Minimum Eligible Age

12 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Centre Chirurgical Marie Lannelongue

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Sebastien HASCOËT

Role: PRINCIPAL_INVESTIGATOR

Hôpital Marie Lannelongue

Alban-Elouen BARUTEAU

Role: PRINCIPAL_INVESTIGATOR

Nantes University Hospital

Locations

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CHU Bordeaux

Bordeaux, , France

Site Status NOT_YET_RECRUITING

Hospices Civils de Lyon

Bron, , France

Site Status NOT_YET_RECRUITING

CHU Clermont-Ferrand

Clermont-Ferrand, , France

Site Status NOT_YET_RECRUITING

CHU Grenoble

Grenoble, , France

Site Status RECRUITING

Sébastien HASCOËT

Le Plessis-Robinson, , France

Site Status RECRUITING

CHU Lille

Lille, , France

Site Status RECRUITING

Hôpitaux universitaire de Marseille

Marseille, , France

Site Status NOT_YET_RECRUITING

CHU Nantes

Nantes, , France

Site Status NOT_YET_RECRUITING

CHU Necker APHP Paris

Paris, , France

Site Status NOT_YET_RECRUITING

HEGP Paris

Paris, , France

Site Status NOT_YET_RECRUITING

CHU Toulouse

Toulouse, , France

Site Status NOT_YET_RECRUITING

Clinique Pasteur, Toulouse

Toulouse, , France

Site Status NOT_YET_RECRUITING

CHU Tours

Tours, , France

Site Status NOT_YET_RECRUITING

Countries

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France

Central Contacts

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SEBASTIEN HASCOËT

Role: CONTACT

+33140942429

FLORENCE LECERF

Role: CONTACT

+33140942517

Facility Contacts

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Jean-Benoit THAMBO

Role: primary

Mohamed BAKLOUL

Role: primary

Claire DAUPHIN

Role: primary

Hélène BOUVAIST

Role: primary

Sébastien HASCOËT

Role: primary

François GODART

Role: primary

Caroline OVAERT

Role: primary

Alban-Elouen BARUTEAU

Role: primary

Sophie MALEKZADEH

Role: primary

Sophie MALEKZADEH

Role: primary

Clément KARSENTY

Role: primary

Nicolas COMBES

Role: primary

Bruno LEFORT

Role: primary

References

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Batteux C, Azarine A, Karsenty C, Petit J, Ciobotaru V, Brenot P, Hascoet S. Sinus Venosus ASDs: Imaging and Percutaneous Closure. Curr Cardiol Rep. 2021 Aug 19;23(10):138. doi: 10.1007/s11886-021-01571-7.

Reference Type BACKGROUND
PMID: 34410510 (View on PubMed)

Batteux C, Ciobotaru V, Bouvaist H, Kempny A, Fraisse A, Hascoet S. Multicenter experience of transcatheter correction of superior sinus venosus defect using the covered Optimus XXL stent. Rev Esp Cardiol (Engl Ed). 2023 Mar;76(3):199-201. doi: 10.1016/j.rec.2022.08.004. Epub 2022 Aug 30. No abstract available. English, Spanish.

Reference Type BACKGROUND
PMID: 36055641 (View on PubMed)

Rosenthal E, Qureshi SA, Jones M, Butera G, Sivakumar K, Boudjemline Y, Hijazi ZM, Almaskary S, Ponder RD, Salem MM, Walsh K, Kenny D, Hascoet S, Berman DP, Thomson J, Vettukattil JJ, Zahn EM. Correction of sinus venosus atrial septal defects with the 10 zig covered Cheatham-platinum stent - An international registry. Catheter Cardiovasc Interv. 2021 Jul 1;98(1):128-136. doi: 10.1002/ccd.29750. Epub 2021 May 7.

Reference Type BACKGROUND
PMID: 33909945 (View on PubMed)

Batteux C, Meliani A, Brenot P, Hascoet S. Multimodality fusion imaging to guide percutaneous sinus venosus atrial septal defect closure. Eur Heart J. 2020 Dec 7;41(46):4444-4445. doi: 10.1093/eurheartj/ehaa292. No abstract available.

Reference Type BACKGROUND
PMID: 32428931 (View on PubMed)

Haddad RN, Bonnet D, Gewillig M, Malekzadeh-Milani S. Modified safety techniques for transcatheter repair of superior sinus venosus defects with partial anomalous pulmonary venous drainage using a 100-mm Optimus-CVS(R) covered XXL stent. Catheter Cardiovasc Interv. 2022 Apr;99(5):1558-1562. doi: 10.1002/ccd.30136. Epub 2022 Feb 22.

Reference Type BACKGROUND
PMID: 35192742 (View on PubMed)

Baruteau AE, Jones MI, Butera G, Qureshi SA, Rosenthal E. Transcatheter correction of sinus venosus atrial septal defect with partial anomalous pulmonary venous drainage: The procedure of choice in selected patients? Arch Cardiovasc Dis. 2020 Feb;113(2):92-95. doi: 10.1016/j.acvd.2019.09.014. Epub 2020 Feb 11. No abstract available.

Reference Type BACKGROUND
PMID: 32057661 (View on PubMed)

Batteux C, Ciobotaru V, Haddad RN, Houeijeh A, Karsenty C, Bouzguenda I, Roussin R, Combes N, Bakloul M, Aldebert P, Dion F, Lefort B, Bosser G, Bonnet D, Fraisse A, Bouvaist H, Hoerer J, Moceri P, Godart F, Lenoir M, Dauphin C, Radojevic J, Thambo JB, Lecerf F, Hache O, Chevalier D, Beaussier H, Aubrege L, Azarine A, Decante B, Chatellier G, Ladouceur M, Baruteau AE, Henaine R, Albenque G, Hascoet S. Safety and efficacy of transcatheter correction of sinus venosus defect using 70-100mm-long partially covered Optimus-CVS(R) XXL stents compared with surgery: The OPTIVENOSUS study design. Arch Cardiovasc Dis. 2025 Sep;118(8-9):497-507. doi: 10.1016/j.acvd.2025.05.003. Epub 2025 May 29.

Reference Type DERIVED
PMID: 40571458 (View on PubMed)

Related Links

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https://pubmed.ncbi.nlm.nih.gov/32057661/

Baruteau AE, Jones MI, Butera G, Qureshi SA, Rosenthal E. Transcatheter correction of sinus venosus atrial septal defect with partial anomalous pulmonary venous drainage: The procedure of choice in selected patients? Arch Cardiovasc Dis. 2020

https://pubmed.ncbi.nlm.nih.gov/34410510/

Batteux C, Azarine A, Karsenty C, Petit J, Ciobotaru V, Brenot P, Hascoet S. Sinus Venosus ASDs: Imaging and Percutaneous Closure. Curr Cardiol Rep. 2021 Aug 19;23(10):138. doi: 10.1007/s11886-021-01571-7

https://pubmed.ncbi.nlm.nih.gov/36055641/

Batteux C, Ciobotaru V, Bouvaist H, Kempny A, Fraisse A, Hascoet S. Multicenter experience of transcatheter correction of superior sinus venosus defect using the covered Optimus XXL stent. Rev Esp Cardiol (Engl Ed). 2023 Mar;76(3):199-201.

https://pubmed.ncbi.nlm.nih.gov/33909945/

Rosenthal E, Qureshi SA, Jones M, Butera G, Sivakumar K, Boudjemline Y, Hijazi ZM, Almaskary S, Ponder RD, Salem MM, Walsh K, Kenny D, Hascoet S, Berman DP, Thomson J, Vettukattil JJ, Zahn EM. Correction of sinus venosus atrial septal defects with the 10

https://pubmed.ncbi.nlm.nih.gov/32428931/

Batteux C, Meliani A, Brenot P, Hascoet S. Multimodality fusion imaging to guide percutaneous sinus venosus atrial septal defect closure. Eur Heart J. 2020 Dec 7;41(46):4444-4445. doi: 10.1093/eurheartj/ehaa292. No abstract available.

https://pubmed.ncbi.nlm.nih.gov/35192742/

Haddad RN, Bonnet D, Gewillig M, Malekzadeh-Milani S. Modified safety techniques for transcatheter repair of superior sinus venosus defects with partial anomalous pulmonary venous drainage using a 100-mm Optimus-CVS(R) covered XXL stent.

Other Identifiers

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2022-A01507-36

Identifier Type: -

Identifier Source: org_study_id

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