Open Label Extension of TUDCA-ALS Study

NCT ID: NCT05753852

Last Updated: 2023-03-03

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Clinical Phase

PHASE3

Total Enrollment

184 participants

Study Classification

INTERVENTIONAL

Study Start Date

2021-10-25

Study Completion Date

2025-03-31

Brief Summary

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This study will provide extended access to patients and assess longer-term outcomes on patients who have completed the TUDCA-ALS study.

Detailed Description

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The TUDCA-ALS Open label extension study is designed to investigate long term safety, tolerability and efficacy of tauroursodeoxycholic acid in patients with ALS who completed the TUDCA-ALS study

Conditions

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Amyotrophic Lateral Sclerosis

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Active treatment

Group Type EXPERIMENTAL

Tauroursodeoxycholic Acid

Intervention Type DRUG

Tauroursodeoxycholic acid (TUDCA) 250 mg capsules Doses: 4 capsules (1 g) twice daily 10-15 minutes after a meal Mode of administration: orally Duration: 18 months

Interventions

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Tauroursodeoxycholic Acid

Tauroursodeoxycholic acid (TUDCA) 250 mg capsules Doses: 4 capsules (1 g) twice daily 10-15 minutes after a meal Mode of administration: orally Duration: 18 months

Intervention Type DRUG

Other Intervention Names

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TUDCA,Tudcabil, Taurolite

Eligibility Criteria

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Inclusion Criteria

* Completion of the visit M18 (Month 18) of the TUDCA-ALS clinical trial.
* Signed informed consent for participation in the TUDCA-ALS Extension sub-study

Exclusion Criteria

* Treatment with edaravone or other unaccepted concomitant therapy
* Consideration by the investigator, for any reason, that the subject is an unsuitable candidate to receive TUDCA or that the subject is unable or unlikely to comply with the dosing schedule or study evaluations
* The patient of reproductive potential is sexually active and is not willing to use highly effective contraception during the study and up to 90 days after the day of last dose
* The patient is pregnant or breast feeding
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University of Ulm

OTHER

Sponsor Role collaborator

University of Sheffield

OTHER

Sponsor Role collaborator

University Hospital, Tours

OTHER

Sponsor Role collaborator

KU Leuven

OTHER

Sponsor Role collaborator

UMC Utrecht

OTHER

Sponsor Role collaborator

University of Dublin, Trinity College

OTHER

Sponsor Role collaborator

Bruschettini S.r.l.

UNKNOWN

Sponsor Role collaborator

Istituto Superiore di Sanità

OTHER

Sponsor Role collaborator

Motor Neurone Disease Association

UNKNOWN

Sponsor Role collaborator

Humanitas Mirasole SpA

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Katholieke Universiteit Leuven

Leuven, , Belgium

Site Status ACTIVE_NOT_RECRUITING

Centre Hospitalier Universitaire de Bordeaux

Bordeaux, , France

Site Status RECRUITING

Centre Hospitalier Universitaire Limoges

Limoges, , France

Site Status RECRUITING

Centre Hospitalier Universitaire de Montpellier

Montpellier, , France

Site Status RECRUITING

Centre Hospitalier Regional Universitaire de Tours

Tours, , France

Site Status RECRUITING

Charité - Universitätsmedizin Berlin

Berlin, , Germany

Site Status RECRUITING

Universitätsklinikum Carl Gustav Carus Dresden

Dresden, , Germany

Site Status RECRUITING

Medizinische Hochschule Hannover

Hanover, , Germany

Site Status ACTIVE_NOT_RECRUITING

Universitätsklinikum Jena

Jena, , Germany

Site Status RECRUITING

Universität Ulm

Ulm, , Germany

Site Status ACTIVE_NOT_RECRUITING

Trinity College Dublin

Dublin, , Ireland

Site Status ACTIVE_NOT_RECRUITING

IRCCS Istituto Auxologico Italiano

Milan, , Italy

Site Status RECRUITING

NEuroMuscular Omnicentre. Fondazione Serena Onlus

Milan, , Italy

Site Status RECRUITING

AOU Università degli Studi della Campania "Luigi Vanvitelli"

Napoli, , Italy

Site Status RECRUITING

IRCCS Istituto Clinico Humanitas

Rozzano, , Italy

Site Status ACTIVE_NOT_RECRUITING

Azienda Ospedaliera Santa Maria di Terni

Terni, , Italy

Site Status RECRUITING

AOU Città della Salute e della Scienza di Torino

Torino, , Italy

Site Status ACTIVE_NOT_RECRUITING

Universitair Medisch Centrum Utrecht

Utrecht, , Netherlands

Site Status ACTIVE_NOT_RECRUITING

The Walton Centre NHS Foundation Trust

Liverpool, , United Kingdom

Site Status ACTIVE_NOT_RECRUITING

Plymouth Hospitals NHS Trust

Plymouth, , United Kingdom

Site Status WITHDRAWN

Salford Royal NHS Foundation Trust

Salford, , United Kingdom

Site Status WITHDRAWN

University of Sheffield

Sheffield, , United Kingdom

Site Status RECRUITING

Royal Stoke University Hospital

Stoke, , United Kingdom

Site Status RECRUITING

Countries

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Belgium France Germany Ireland Italy Netherlands United Kingdom

Central Contacts

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Alberto Albanese, MD

Role: CONTACT

+39-0282246418

Other Identifiers

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H2020/755094/2017/OLE

Identifier Type: -

Identifier Source: org_study_id

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