Non-interventional Study on Osilodrostat in Patients With Endogenous Cushing's Syndrome

NCT ID: NCT05382156

Last Updated: 2025-11-20

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Total Enrollment

206 participants

Study Classification

OBSERVATIONAL

Study Start Date

2022-06-13

Study Completion Date

2027-08-31

Brief Summary

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This is a non-interventional, multinational, multi-centre study with primary data collection, to further document the safety and efficacy of osilodrostat administered in routine clinical practice in patients treated with osilodrostat for endogenous Cushing's Syndrome

Detailed Description

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This is a non-interventional, multinational, multi-centre study with primary data collection, to further document the safety and efficacy of osilodrostat administered in routine clinical practice in patients treated with osilodrostat for endogenous Cushing's Syndrome. This study is observational in nature and does not impose a therapy protocol, diagnostic/therapeutic interventions or a visit schedule.

Patients with endogenous Cushing's Syndrome who are treated with osilodrostat alone or in combination with other therapies will be considered eligible for study enrolment. Each patient enrolled in the study will be followed up for 3 years from study entry. Patients who discontinue prior to the end of the 3-year period will be followed-up for 3 months after discontinuation of osilodrostat and will be included in the analysis.

The total number of patients enrolled in this study will be approximately 201. Assuming a recruitment period of 3 years, the total study duration from First Patient First Visit (FPFV) to Last Patient Last Visit (LPLV) will be 6 years. The maximum duration for the individual patient is 3 years.

Conditions

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Endogenous Cushing's Syndrome

Study Design

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Observational Model Type

OTHER

Study Time Perspective

PROSPECTIVE

Study Groups

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Osilodrostat

Osilodrostat - tablets of 1mg, 5mg, 10mg - based on patients needs - up to 3 years

Osilodrostat

Intervention Type DRUG

oral administration of Osilodrostat tablets at different doses according to patient's need

Interventions

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Osilodrostat

oral administration of Osilodrostat tablets at different doses according to patient's need

Intervention Type DRUG

Other Intervention Names

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Isturisa

Eligibility Criteria

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Inclusion Criteria

* Written informed consent obtained prior to registration of any patient data
* Male or female patients aged 18 years or older with endogenous CS treated with osilodrostat. Treatment with osilodrostat can either be initiated at the first visit of the study or can have been initiated before screening.

Exclusion Criteria

* Patients with exogenous CS
* Patients with Pseudo CS
* Patients participating in an interventional clinical trial with an investigational drug.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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RECORDATI GROUP

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Mario Maldonado, MD

Role: STUDY_CHAIR

Recordati AG - Head of Clinical Development

Locations

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Barrow Neurological Institute

Phoenix, Arizona, United States

Site Status

Emory University School

Atlanta, Georgia, United States

Site Status

Northwestern University

Chicago, Illinois, United States

Site Status

Indiana University Schl-med

Indianapolis, Indiana, United States

Site Status

St Elizabeth Physicians

Covington, Kentucky, United States

Site Status

Massachusetts General Hospital

Boston, Massachusetts, United States

Site Status

University of Michigan

Ann Arbor, Michigan, United States

Site Status

Mayo Clinic - Rochester

Rochester, Minnesota, United States

Site Status

Washington University School of Medicine

St Louis, Missouri, United States

Site Status

NYU Grossman School of Medicine

New York, New York, United States

Site Status

Memorial Sloan-Kettering Cancer Center (MSKCC) - New York

New York, New York, United States

Site Status

Endocrinology Research Associates, Inc.

Columbus, Ohio, United States

Site Status

Oregon Health And Science University

Portland, Oregon, United States

Site Status

University of Pennsylvania Medical Center

Philadelphia, Pennsylvania, United States

Site Status

Froedtert Hospital

Milwaukee, Wisconsin, United States

Site Status

Hôpital Haut-Lévêque

Bordeaux, , France

Site Status

Hospices Civiles de Lyon

Bron, , France

Site Status

CHU de Grenoble site Nord

Grenoble, , France

Site Status

Groupement Hospitalier Sud - Hôpital Bicêtre

Le Kremlin-Bicêtre, , France

Site Status

Hopital Claude Huriez - CHRU Lille

Lille, , France

Site Status

Hopital de la Conception - APHM

Marseille, , France

Site Status

Hôpital de Brabois

Nancy, , France

Site Status

CHU de Nantes-Hopital Laennec

Nantes, , France

Site Status

Hôpital Cochin

Paris, , France

Site Status

Hopital Larrey

Toulouse, , France

Site Status

Charité Universitaetsmedizin Berlin

Berlin, , Germany

Site Status

Medicover Berlin-Mitte MVZ

Berlin, , Germany

Site Status

Medicover Köln

Cologne, , Germany

Site Status

Universitaet Bielefeld - Klinikum Bielefeld - Mitte

Düsseldorf, , Germany

Site Status

Universitaetsklinikum Frankfurt Goethe-Universitaet

Frankfurt, , Germany

Site Status

Endokrinologikum Frankfurt

Frankfurt, , Germany

Site Status

Amedes Experts

Hamburg, , Germany

Site Status

Medicover Neuroendokrinologie

Munich, , Germany

Site Status

Ludwig-Maximilians University of Munich

Munich, , Germany

Site Status

Medicover MVZ Oldenburg

Oldenburg, , Germany

Site Status

Universitaetsklinikum Wuerzburg

Würzburg, , Germany

Site Status

Azienda Ospedaliero Universitaria Ospedali Riuniti

Ancona, , Italy

Site Status

Fondazione IRCCS CA' Granda Ospedale Maggiore Policlinico

Milan, , Italy

Site Status

Azienda Ospedaliera Universitaria "Federico II"

Napoli, , Italy

Site Status

Policlinico Umberto I

Roma, , Italy

Site Status

Azienda Ospedaliera Sant'Andrea-Università di Roma La Sapienza

Roma, , Italy

Site Status

Radboud University Nijmegen

Nijmegen, , Netherlands

Site Status

Erasmus MC

Rotterdam, , Netherlands

Site Status

Countries

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United States France Germany Italy Netherlands

Other Identifiers

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LCI699-RECAG-PASS-0572

Identifier Type: -

Identifier Source: org_study_id

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