Long Term Safety and Efficacy of Pasireotide s.c. in Patients With Cushing's Disease

NCT ID: NCT02310269

Last Updated: 2024-10-15

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

152 participants

Study Classification

OBSERVATIONAL

Study Start Date

2013-03-28

Study Completion Date

2023-07-10

Brief Summary

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This is a non-interventional, multinational, multi-center post-marketing study, to further document the safety and efficacy of pasireotide s.c. administered in routine clinical practice in patients with Cushing's disease. Patients with Cushing's disease and treated with pasireotide s.c. alone and in combination with other therapies will be monitored. For this study, each enrolled patient will be followed up for 3 years after enrollment. Patients who permanently discontinue pasireotide s.c. prior to completing the 3-year observation period will be followed up for 3 months after the last dose of pasireotide s.c.

Detailed Description

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Conditions

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Cushings Disease

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Cohort 1/new use cohort

Subjects who initiated pasireotide s.c. at time of study entry (on or after the signing of the informed consent or acknowledging an equivalent document -for example, written information- as per country regulation).

Pasireotide

Intervention Type DRUG

Cohort 2/prior use cohort

Subjects who initiated pasireotide s.c. prior to study entry.

Pasireotide

Intervention Type DRUG

Interventions

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Pasireotide

Intervention Type DRUG

Other Intervention Names

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Signifor

Eligibility Criteria

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Inclusion Criteria

* Written informed consent or equivalent document (e.g., written information) as per country regulation prior to registration of any patient data
* Male or female patients aged 18 years or older with a diagnosis of Cushing's disease for whom surgery has failed or for whom surgery is not an option
* Patients must be treated with pasireotide s.c. started either at the first visit for this study or prior to study entry

Exclusion Criteria

* Patients with ectopic ACTH-dependent Cushing's syndrome
* Patients with adrenal Cushing's syndrome
* Patients with Pseudo Cushing's syndrome
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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RECORDATI GROUP

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Mario MALDONADO, MD

Role: STUDY_DIRECTOR

Recordati AG

Locations

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Praxis Michael Droste

Oldenburg, , Germany

Site Status

Universitaetsklinikum Wuerzburg

Würzburg, , Germany

Site Status

Rabin Medical Centre Belinson

Petah Tikva, , Israel

Site Status

Universitaetsklinikum Freiburg

Freiburg im Breisgau, , Germany

Site Status

Praxis Dr.med.Frank Ackermann

Halle, , Germany

Site Status

Universitaetsklinikum Hamburg Eppendorf

Hamburg, , Germany

Site Status

Universitaetsklinikum Leipzig AoR

Leipzig, , Germany

Site Status

Universitaetsklinikum Magdeburg AoR

Magdeburg, , Germany

Site Status

Universitaetsklinikum Muenchen LMU

München, , Germany

Site Status

Medicover Muenchen Ost MVZ

München, , Germany

Site Status

St Josephs Hospital and Medical Center

Phoenix, Arizona, United States

Site Status

University of Southern California CSOM230B2410 - SC

Los Angeles, California, United States

Site Status

Massachusetts General Hospital SC - SOM230B2410

Boston, Massachusetts, United States

Site Status

Ohio State University SC - SOM230B2410

Columbus, Ohio, United States

Site Status

Endocrinology Services

Bend, Oregon, United States

Site Status

Allegheny Endocrinology Associates

Pittsburgh, Pennsylvania, United States

Site Status

Swedish Medical Center Dept.ofSeattle Neuroscience(2)

Seattle, Washington, United States

Site Status

Centre de recherche du CHUM CRCHUM

Montreal, Quebec, Canada

Site Status

CHUL Centre de recherche du CHU

Québec, Quebec, Canada

Site Status

CHUS - Hopital Fleurimont

Sherbrooke, Quebec, Canada

Site Status

Centro Medico Imbanaco de Cali

Cali, , Colombia

Site Status

CHU Amiens Picardie Site Nord

Amiens, , France

Site Status

HCL-Groupe Hospitalier Est

Bron, , France

Site Status

Recordati Investigative Site

Lille, , France

Site Status

AP-HM - Hopital de la Conception

Marseille, , France

Site Status

Hopital Lapeyronie

Montpellier, , France

Site Status

Hopital Cochin

Paris, , France

Site Status

Hopital Robert Debre

Reims, , France

Site Status

HIA Begin

Saint-Mandé, , France

Site Status

CHU de Saint Etienne

Saint-Priest-en-Jarez, , France

Site Status

Universitaetsklinikum Aachen

Aachen, , Germany

Site Status

Universitaetsmedizin Charite

Berlin, , Germany

Site Status

Univ.-Klinikum Düsseldorf

Düsseldorf, , Germany

Site Status

Universitaetsklinikum Erlangen Nuernberg

Erlangen, , Germany

Site Status

Universitaetsklinikum Essen

Essen, , Germany

Site Status

Tel Aviv Sourasky Medical Centre Ichilov

Tel Aviv, , Israel

Site Status

AOU Osp Riuniti Umberto I GM Lancisi G Salesi Univ Studi

Ancona, AN, Italy

Site Status

Az.Ospe.Universitaria Policlinico G. Martino Univ.di Messina

Messina, ME, Italy

Site Status

Fond IRCCS Ca Granda Ospedale Maggiore Policlinico

Milan, MI, Italy

Site Status

Stab.Osp.S.Luca P.O. S.Luca-S.Michele-Ist.Auxol. Italiano

Milan, MI, Italy

Site Status

Az Osp Univ Policlinico P Giaccone Universita Studi Palermo

Palermo, PA, Italy

Site Status

Azienda Ospedaliera di Padova Universita degli Studi

Padua, PD, Italy

Site Status

Az Ospedaliero Universitaria Pisana Pres Osped di Cisanello

Pisa, PI, Italy

Site Status

P O Molinette AO Citta della Salute e della Scienza Torino

Torino, TO, Italy

Site Status

O Universitaria Policlinico Federico II Univ Studi Fed II

Napoli, , Italy

Site Status

Hotel Dieu de France Hospital

El Achrafiyé, , Lebanon

Site Status

Maastricht Universitair Medisch Centrum

Maastricht, AZ, Netherlands

Site Status

Radboudumc

Nijmegen, , Netherlands

Site Status

Spitalul Clinic Judetean de Urgenta Brasov

Brasov, , Romania

Site Status

Institutul de Endocrinologie "I. C. Parhon", Bucuresti

Bucharest, , Romania

Site Status

Spitalul Clinic Jude Emergency Clinical County Hospital Cluj

Cluj-Napoca, , Romania

Site Status

County Hospital Tg. Mures

Târgu Mureş, , Romania

Site Status

Derriford Hospital

Plymouth, , United Kingdom

Site Status

Southampton General Hospital

Southampton, , United Kingdom

Site Status

Countries

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United States Canada Colombia France Germany Israel Italy Lebanon Netherlands Romania United Kingdom

References

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Manetti L, Deutschbein T, Schopohl J, Yuen KCJ, Roughton M, Kriemler-Krahn U, Tauchmanova L, Maamari R, Giordano C. Long-term safety and efficacy of subcutaneous pasireotide in patients with Cushing's disease: interim results from a long-term real-world evidence study. Pituitary. 2019 Oct;22(5):542-551. doi: 10.1007/s11102-019-00984-6.

Reference Type DERIVED
PMID: 31440946 (View on PubMed)

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Other Identifiers

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CSOM230B2410

Identifier Type: -

Identifier Source: org_study_id

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