Integrated Parkinson Care Networks: Assessment of Economics and Socials Barriers
NCT ID: NCT04485468
Last Updated: 2023-06-22
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
72 participants
OBSERVATIONAL
2021-02-12
2021-07-02
Brief Summary
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It is therefore essential to estimate the overall consumption of medical and non-medical resources by patients with PD in order to characterize the share of medical and non-medical care reimbursed by health insurance, the share of medical and non-medical care not reimbursed. by health insurance, as well as the share of formal and informal care in order to identify potential economic barriers to an optimal care path for patients with PD. It is also necessary to have information on the socio-economic characteristics and the place of residence of the resident in order to estimate the impact of these determinants on an optimal course of care.
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Detailed Description
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The coordination of the care pathway for patients with Parkinson disease has been improved since the implementation on the national territory of 7 interregional coordination centers and 25 regional expert centers in 2012.
Health insurance reimburses 100% of direct medical and non-medical care as soon as patients are registered in Long-Term Condition n°16. However, we currently have little information about care that is not recognized for financial coverage by health insurance.
It is therefore essential to estimate the overall consumption of medical and non-medical resources by patients with PD in order to characterize the share of medical and non-medical care reimbursed by health insurance, the share of medical and non-medical care not reimbursed. by health insurance, as well as the share of formal and informal care in order to identify potential economic barriers to an optimal care path for patients with PD. It is also necessary to have information on the socio-economic characteristics and the place of residence of the resident in order to estimate the impact of these determinants on an optimal course of care.
Conditions
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Study Design
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CASE_ONLY
PROSPECTIVE
Study Groups
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Parkinson's disease patients
Parkinson's disease patients and over 18 years old
Questionnaire
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Interventions
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Questionnaire
The patient answers the questionnaire directly following his consultation or teleconsultation or may arrange a telephone appointment with the clinical research associate a little later.
Eligibility Criteria
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Inclusion Criteria
* Patients over 18 years of age
* Patients living at home
* Patient consultant at the expert center Parkinson's at Toulouse University Hospital
Exclusion Criteria
* Patient under guardianship, curatorship or safeguard of justice
* Person who does not understand French to be able to answer the questionnaire
* Patient who participated or participated in the iCare PD project
18 Years
ALL
No
Sponsors
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University Hospital, Toulouse
OTHER
Responsible Party
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Principal Investigators
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Olivier Rascol
Role: PRINCIPAL_INVESTIGATOR
University Hospital, Toulouse
Locations
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CHU de Toulouse
Toulouse, , France
Countries
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Other Identifiers
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RC31/20/0184
Identifier Type: -
Identifier Source: org_study_id
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