LGI1-antibody Patients Follow-up

NCT ID: NCT04106765

Last Updated: 2019-10-15

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

192 participants

Study Classification

OBSERVATIONAL

Study Start Date

2019-10-30

Study Completion Date

2020-12-30

Brief Summary

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Autoimmune encephalitis involve autoantibodies targeting central nervous system, and particularly the synapse or its structure like for LGI1 protein. Anti-LGI1 encephalitis is revealed by an inflammation of the limbic system, with mainly temporal lobe, faciobrachial dystonic or generalized seizures, and cognitive disorders.

This disease is rare and its clinical, EEG and radiological characterisation is not sufficiently established. The investigators will evaluate these three aspects for the anti-LGI1 cohort of patients of the National Reference Center of autoimmune encephalitis.

Detailed Description

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Conditions

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Anti-LGI1 Encephalitis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

RETROSPECTIVE

Study Groups

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: epileptic LGI1-antibody patients

Patients affected by LGI1 antibody encephalitis presenting epileptic seizures as a first symptom

Evaluated items:

* Number of seizures
* Type of seizures
* Presence of EEG abnormalities
* Presence of IRM abnormalities
* Time before cognitive disorders

No interventions assigned to this group

cognitive LGI1-antibody patients

Patients affected by LGI1 antibody encephalitis presenting cognitive disorders as a first symptom

Evaluated items:

* Presence of EEG abnormalities
* Presence of IRM abnormalities
* Time before epileptic seizures

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Age \> 18 years
* Diagnosis of anti-LGI1 encephalitis based on sera or CSF samples in the National Reference Center of autoimmune encephalitis from 2011/06 to 2019 july 1st.
* Clinical follow-up in France

Exclusion Criteria

* Anti-LGI1 antibody associated with another encephalitis antibody
* Foreign follow-up
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Hospices Civils de Lyon

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Jerome HONNORAT, pHd

Role: PRINCIPAL_INVESTIGATOR

National Reference Center of autoimmune encephalitis

Locations

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Centre de référence des syndromes neurologiques paranéoplasiques et encéphalites auto-immunes

Lyon, , France

Site Status

Countries

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France

Central Contacts

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Jerome HONNORAT, PhD

Role: CONTACT

4 72 35 78 08 ext. 33

Géraldine PICARD

Role: CONTACT

4 72 35 58 42 ext. 33

Facility Contacts

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Jerome HONNORAT, PhD

Role: primary

4 72 35 78 08 ext. 33

Other Identifiers

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evoLGI1

Identifier Type: -

Identifier Source: org_study_id

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