Promoting Activity, Independence and Stability in Early Dementia and Mild Cognitive Impairment

NCT ID: NCT04065854

Last Updated: 2019-08-22

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Clinical Phase

NA

Total Enrollment

368 participants

Study Classification

INTERVENTIONAL

Study Start Date

2018-10-01

Study Completion Date

2022-03-13

Brief Summary

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A clinical trial to test the clinical and cost-effectiveness of a therapy intervention designed to promote activity and independence and reduce falls, amongst people with early dementia or mild cognitive impairment

Detailed Description

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Background and study aims People with memory problems can struggle with everyday activities and may stop doing things they want to do. They are more prone to accidents and have a higher risk of falling. Occupational therapists can advise how to do daily activities more easily and safely. Physiotherapists can teach exercises which increase activity and improve balance, and may help maintain memory. There is little research on how to make these interventions work for with people with memory problems. The aim of this study is to compare an activity and exercise programme developed for people with memory problems to standard falls prevention assessment and advice.

Who can participate? Patients aged 65 or over with early dementia or memory problems, recruited from memory clinics or the 'Join Dementia Research' register

What does the study involve? Participants are randomly allocated to either the control group or the intervention group. The control group receive standard brief falls assessment and advice, and up to two further visits if required. The intervention group receive an assessment, tailored strength and balance exercise programme, activity analysis and risk enablement advice, and assessment for environmental hazards. The intervention is delivered over 1 year in participants' own homes, and is tailored to individual interests, abilities and need for supervision. Participants are encouraged to exercise by themselves or with family members between visits, and once the programme ends. Researchers visit at the start of the study and after 12 months to measure ability in activities of daily living, activity, quality of life, memory and health service use. Participants complete monthly falls diaries over 15 months. The researchers conduct interviews and video record some therapy sessions to help understand how the programme works in practice.

What are the possible benefits and risks of participating? Some participants may benefit from taking part in the intervention, as exercise is generally known to be beneficial to health and well-being, including benefits to heart, blood pressure, diabetes, joints, mood and daily life. These participants may find that they are better able to do their daily activities. All participants and their relatives may enjoy having the researchers coming to visit them in their house. Some people appreciate having the opportunity to contribute to the well-being of others through research.

Conditions

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Dementia Mild Cognitive Impairment

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Multi-centre, pragmatic, parallel-group, randomised controlled trial, with internal pilot trial, and embedded process and economic evaluations.

Web-based randomisation, using a dynamic adaptive algorithm, stratified for centre and other variables to 1) active intervention or 2) standard brief falls assessment and advice. An internal pilot trial will recruit the first 50 participants.
Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Control

The control group will receive standard brief falls assessment and advice.

Group Type NO_INTERVENTION

No interventions assigned to this group

Intervention

Therapy intervention.

Group Type ACTIVE_COMPARATOR

Intervention

Intervention Type BEHAVIORAL

Assessment, tailored strength and balance exercise programme, activity analysis and risk enablement advice, and assessment for environmental hazards. Tailored adherence support and supervision.

Interventions

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Intervention

Assessment, tailored strength and balance exercise programme, activity analysis and risk enablement advice, and assessment for environmental hazards. Tailored adherence support and supervision.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

1. Age 65 or over (no maximum)
2. Diagnosis of MCI or dementia (of any subtype, except Dementia with Lewy Bodies i.e. Parkinson's Disease Dementia)
3. Have a carer or friend who knows the participant well (at least one hour a week contact over the phone, internet, or in person), and is willing and able to act as an informant
4. Able to walk without human help
5. Able to communicate in English
6. Able to see, hear and have dexterity sufficiently to perform neuropsychological tests
7. Have capacity to give consent to participate, and consenting to do so

Exclusion Criteria

1. Co-morbidity preventing participation (e.g. severe breathlessness, pain, psychosis, Parkinson's, Dementia with Lewy Bodies, or other severe neurological disease)
2. Unavailable over the next year (e.g. plans to relocate or go on a long holiday, or has a life expectancy of less than a year)
Minimum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Institute for Health Research, United Kingdom

OTHER_GOV

Sponsor Role collaborator

Nottingham University Hospitals NHS Trust

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Derbyshire Healthcare NHS Foundation Trust

Derby, Derbyshire, United Kingdom

Site Status RECRUITING

Lincolnshire Partnership NHS Foundation Trust

Lincoln, Lincolnshire, United Kingdom

Site Status RECRUITING

Nottinghamshire Healthcare NHS Foundation Trust

Nottingham, Notts, United Kingdom

Site Status RECRUITING

RICE - Research Institute for the Care of Older People

Bath, Somerset, United Kingdom

Site Status RECRUITING

Countries

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United Kingdom

Central Contacts

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Sarah Goldberg, PhD

Role: CONTACT

01158230543

Rowan Harward, PhD

Role: CONTACT

01158230873

Facility Contacts

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Simon Thacker

Role: primary

01332623683

Gemma Harrison

Role: backup

01332623700 ext. 33474

Carol Duff

Role: primary

01522500690

Tracy McCranor

Role: backup

07795426736

Helen Smith

Role: primary

01158837826

Kehinde Junaid

Role: backup

01159560884

Vanessa Bishop

Role: primary

01225 476420

Lola Dali-Kemmery

Role: backup

01225 476420

Related Links

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Other Identifiers

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17HC006

Identifier Type: -

Identifier Source: org_study_id

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