The Becoming of Children With Doose Syndrome

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

50 participants

Study Classification

OBSERVATIONAL

Study Start Date

2019-08-01

Study Completion Date

2023-12-31

Brief Summary

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Doose syndrome is a rare epileptic syndrome that can lead to learning difficulties and a poor quality of life. The goal of this study is to evaluate the evolution of epilepsy and its consequences on cognitive development and learning issues in children with Doose syndrome.

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Detailed Description

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Doose syndrome is a rare epileptic syndrome beginning between ages two and five, characterized by myoclonic-astatic seizures which can be associated with myoclonic seizures, astatic seizures, absences and generalized tonic-clonic seizures. These seizures can be difficult to treat effectively and may lead to learning difficulties. During this study, parents of children with Doose syndrome will receive a questionnaire regarding learning disabilities, quality of life and epilepsy of their children.

Conditions

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Doose Syndrome Epileptic Syndromes Learning Disabilities

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Interventions

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questionnaire

questionnaire send to the parents

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* children with doose syndrome diagnosed between ages 1 and 6
* normal development until onset of seizures

Exclusion Criteria

* unconfirmed diagnoses
* abnormal diagnoses
* abnormal psychomotor development before onset of seizures
* cerebral MRI abnormalities
* other child epileptic syndromes

Minimum Eligible Age

1 Year

Maximum Eligible Age

6 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No