Treatment and Prevention of Progression of Interstitial Lung Disease in Systemic Sclerosis

NCT ID: NCT01858259

Last Updated: 2014-08-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

1372 participants

Study Classification

OBSERVATIONAL

Study Start Date

2013-05-31

Study Completion Date

2016-06-30

Brief Summary

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Systemic sclerosis (SSc) is an orphan, multiorgan disease affecting the connective tissue of the skin and all internal organs. Interstitial lung disease is a frequent morbidity and mortality-driving manifestation in systemic sclerosis.

This observational trial (OT) is part of the collaborative project "DeSScipher", one out of five OTs to decipher the optimal management of systemic sclerosis. Aim of this observational try is to identify:

* The state of clinical practice in Europe for prevention and treatment of interstitial lung disease and its impact on lung function and disease progression
* The potential predictors and confounders for response to therapy

Detailed Description

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Patients are routinely evaluated every 3 months over a 12-months period by medical history, physical examination, pulmonary function tests, VAS lung score and SF-36, SHAQ. Also, their medication and possible medication changes will be recorded.

Conditions

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Systemic Sclerosis Interstitial Lung Diseases

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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cyclophosphamide

Patients receiving cyclophosphamide

No interventions assigned to this group

azathioprine

Patients receiving azathioprine

No interventions assigned to this group

mycophenolate mofetil

Patients receiving mycophenolate mofetil

No interventions assigned to this group

methotrexate

Patients receiving methotrexate

No interventions assigned to this group

no therapy

Patients receiving no immunosuppressive therapy

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Diagnosis fo SSc according to the ACR/EULAR criteria for adult or the PRES/ACR/EULAR criteria for juvenile SSc patients
* SSc patients with proven ILD (by X-ray or CT scan)
* Treatment with standard dosages according to current practice with (i) cyclophosphamide, (ii) azathioprine, (iii) mycophenolate mofetil, (iv) methotrexate, or (v) no therapy

Exclusion Criterion:

* Patients with previous exposure to silica or asbestos
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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European Union

OTHER

Sponsor Role collaborator

University of Giessen

OTHER

Sponsor Role collaborator

University of Zurich

OTHER

Sponsor Role collaborator

University of Paris 5 - Rene Descartes

OTHER

Sponsor Role collaborator

University of Florence

OTHER

Sponsor Role collaborator

University of Campania Luigi Vanvitelli

OTHER

Sponsor Role collaborator

University of Basel

OTHER

Sponsor Role collaborator

University College, London

OTHER

Sponsor Role collaborator

Charite University, Berlin, Germany

OTHER

Sponsor Role collaborator

University of Pecs

OTHER

Sponsor Role collaborator

University of Leeds

OTHER

Sponsor Role collaborator

Schoen Klinik Hamburg Eilbek

OTHER

Sponsor Role collaborator

Gabriela Riemekasten

OTHER

Sponsor Role lead

Responsible Party

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Gabriela Riemekasten

Prof. Dr. med. Gabriela Riemekasten

Responsibility Role SPONSOR_INVESTIGATOR

Principal Investigators

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Gabriela Riemekasten, Prof.

Role: PRINCIPAL_INVESTIGATOR

Charité Universitätsmedizin Berlin, Charité Centrum 12 für Innere Medizin und Dermatologie, Medizinische Klinik mit Schwerpunkt Rheumatologie und Klinische Immunologie

Christopher Denton, Prof.

Role: PRINCIPAL_INVESTIGATOR

Royal Free Hospital, University College London London

Ulf Müller-Ladner, Prof.

Role: STUDY_CHAIR

Justus-Liebig-University Gießen, Kerckhoff Clinic, Departement of Rheumatology and Clinical Immunology

Locations

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Université Paris Descartes, Hôpital Cochin, Service de Rhumatologie A & INSERM 1016

Paris, , France

Site Status RECRUITING

Justus-Liebig-University Gießen, Kerckhoff Clinic, Departement of Rheumatology and Clinical Immunology

Bad Nauheim, , Germany

Site Status RECRUITING

Charité Universitätsmedizin Berlin, Charité Centrum 12 für Innere Medizin und Dermatologie, Medizinische Klinik mit Schwerpunkt Rheumatologie und Klinische Immunologie

Berlin, , Germany

Site Status RECRUITING

Centre for Pediatric Rheumatology, Klinikum Eilbek

Hamburg, , Germany

Site Status RECRUITING

Pecsi Tudomanyegyetem - University of Pecs

Pécs, , Hungary

Site Status RECRUITING

University of Florence, Denothe Centre, Division of Rheumatology AOUC, Department of Biomedicine

Florence, , Italy

Site Status RECRUITING

Policlinico, Via Pansini

Napoli-Italia, , Italy

Site Status RECRUITING

Felix-Platter Spital, University of Basel

Basel, , Switzerland

Site Status RECRUITING

University of Zurich, Department of Rheumatology

Zurich, , Switzerland

Site Status RECRUITING

The Universitiy of Leeds, Division of Rheumatic and Musculoskeletal Disease, St James's University Hospital

Leeds, , United Kingdom

Site Status RECRUITING

Royal Free Hospital, University College London

London, , United Kingdom

Site Status RECRUITING

Countries

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France Germany Hungary Italy Switzerland United Kingdom

Central Contacts

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Gabriela Riemekasten, Prof.

Role: CONTACT

Christopher Denton, Prof.

Role: CONTACT

Other Identifiers

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HEALTH-F5-2012-305495-OT3

Identifier Type: -

Identifier Source: org_study_id

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