A European Post-Authorisation Observational Study Of Patients With Hereditary Angioedema

NCT ID: NCT01541423

Last Updated: 2021-03-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

83 participants

Study Classification

OBSERVATIONAL

Study Start Date

2012-05-11

Study Completion Date

2016-09-25

Brief Summary

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This observational (non-interventional) study is being conducted to characterize the safety and use of CINRYZE in routine clinical practice when administered for (1) routine prevention of angioedema attacks, (2) pre-procedure prevention of angioedema attacks, and/or (3) treatment of angioedema attacks.

Detailed Description

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Conditions

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Hereditary Angioedema (HAE)

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

All patients must:

* Have a diagnosis of HAE and be receiving CINRYZE for prevention or treatment of angioedema attacks
* Provide written informed consent/assent in compliance with applicable country-specific and local regulations

Exclusion Criteria

All patients must not:

* Be receiving CINRYZE in an investigational study
* Be receiving another HAE therapy as part of a clinical trial
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Shire

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Study Director

Role: STUDY_DIRECTOR

Takeda

Locations

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Universitair Ziekenhuis Antwerpen (UZA)

Antwerp, Edegem, Belgium

Site Status

Clinic St-Luc University Hospital

Brussels, , Belgium

Site Status

CHU d'Angers

Angers, , France

Site Status

Hôpital Claude-Huriez

Lille, , France

Site Status

Immunologie Clinique et Allergologie

Nancy, , France

Site Status

Hôpital Saint Antoine

Paris, , France

Site Status

Université Paris Descartes

Paris, , France

Site Status

Allergie-Centrum-Charite

Berlin, , Germany

Site Status

Universitätsklinik Essen

Essen, , Germany

Site Status

Johann Wolfgang Goethe Universität

Frankfurt, , Germany

Site Status

Universität-Hautklinik Mainz

Mainz, , Germany

Site Status

Hämophilie-Zentrum Rhein Main

Mörfelden-Walldorf, , Germany

Site Status

Klinikum rechts der Isar der technischen Universität München

München, , Germany

Site Status

Ospedale Luigi Sacco

Milan, , Italy

Site Status

Azienda Ospedaliera "V. Cervello"

Palermo, , Italy

Site Status

C.A.R San Pedro

Logroño, , Spain

Site Status

Hospital General Universitario

Madrid, , Spain

Site Status

Hospital Universitario La Paz

Madrid, , Spain

Site Status

Barts and the London NHS Trust

London, , United Kingdom

Site Status

Northern General Hospital

Sheffield, , United Kingdom

Site Status

Countries

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Belgium France Germany Italy Spain United Kingdom

Related Links

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https://clinicaltrials.takeda.com/study-detail/5f6b5fc34db2bf003ab45886

To obtain more information on the study, click here/on this link.

Other Identifiers

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SHP616-401

Identifier Type: -

Identifier Source: secondary_id

0624-401

Identifier Type: -

Identifier Source: org_study_id

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