Parkinson's Disease Registry of the Muhammad Ali Parkinson Center
NCT ID: NCT00217321
Last Updated: 2010-07-21
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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UNKNOWN
20000 participants
OBSERVATIONAL
2003-11-30
2015-12-31
Brief Summary
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Objectives include:
* Assess current treatment approaches and develop best-practice guidelines
* Track the functional abilities, access to healthcare and cost of illness of people with PD over time
* Drive the development of innovative research projects
* Accelerate the process of informing patients of research projects for which they may be eligible
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Detailed Description
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* Any individual diagnosed with PD is eligible to enroll.
* Participation in the registry is voluntary, confidential and free of charge.
* Eligible participants will be notified about opportunities to participate in clinical trials, though they are under no obligation to enter.
* Participants will need to complete an updated questionnaire every six months.
* Participants may also be asked to complete additional surveys for PD research projects.
* Any data provided will be used in scientific publications in summary form only.
* Participant names will not be released to anyone outside the Parkinson's disease Registry management team without written authorization, nor will names be sold for advertising or fund-raising purposes.
Conditions
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Study Design
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ECOLOGIC_OR_COMMUNITY
PROSPECTIVE
Eligibility Criteria
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Inclusion Criteria
Exclusion Criteria
ALL
No
Sponsors
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Barrow Neurological Foundation
OTHER
Muhammad Ali Parkinson Research Center
OTHER
Responsible Party
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Barrow Neurological Institute
Principal Investigators
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Abraham Lieberman, MD
Role: PRINCIPAL_INVESTIGATOR
MAPC
Locations
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Muhammad Ali Parkinson Research Center
Phoenix, Arizona, United States
Countries
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Other Identifiers
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03BN117
Identifier Type: -
Identifier Source: org_study_id
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