Huntington's Disease Biobank: Advancing Remote Monitoring and Deep Phenotyping
NCT ID: NCT06941662
Last Updated: 2025-04-24
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
200 participants
OBSERVATIONAL
2024-06-01
2035-12-31
Brief Summary
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Using machine learning to analyze videos of movement will capture the movements with an accuracy that will be as good as seeing an expert neurologist. These individualized markers can be followed over time to evaluate symptoms onset and change. The study will track disease progression and correlate these digital markers with changes in plasma and cerebrospinal fluid. The ultimate goal is to advance biomarker discovery and therapeutic development for Huntington's disease.
The study includes one in-person visit per year. A remote visit via Zoom or Facetime (15 min) every three months to record videos of movement. We can also share cutting-edge wristbands and a mobile phone app.
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Detailed Description
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Conditions
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Study Design
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COHORT
PROSPECTIVE
Study Groups
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Huntington's disease
Individuals who carry the Huntington's disease mutation. Individuals with pre-manifest or manifest disease at all disease stages are welcome
computer vision, remote monitoring, blood, urine, wrist bands, mobile-app
This is a low burden study that relies on a combination of cutting edge remote monitoring methods to deliver individualized evaluations to participants in their homes.
Interventions
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computer vision, remote monitoring, blood, urine, wrist bands, mobile-app
This is a low burden study that relies on a combination of cutting edge remote monitoring methods to deliver individualized evaluations to participants in their homes.
Eligibility Criteria
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Inclusion Criteria
Exclusion Criteria
ALL
Yes
Sponsors
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Schwab Charitable Fund
UNKNOWN
Stanford University
OTHER
Responsible Party
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Kyan Younes
Assistant Professor
Principal Investigators
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Kyan Younes, MD
Role: PRINCIPAL_INVESTIGATOR
Stanford University
Locations
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Stanford University
Palo Alto, California, United States
Countries
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Central Contacts
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Facility Contacts
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Other Identifiers
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74659
Identifier Type: -
Identifier Source: org_study_id
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