Health Data Warehouse on Aortic Insufficiency

NCT ID: NCT06420895

Last Updated: 2024-05-20

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Total Enrollment

1000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2011-01-01

Study Completion Date

2033-12-31

Brief Summary

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This project aims to create a data warehouse based on care data of patients with an aortic insufficiency admitted to the Groupement des Hôpitaux de l'Institut Catholique de Lille (GHICL) since 2011.

The aim is to enable the utilisation of this data for research purposes.

Detailed Description

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All eligible patients will be informed about the collection of their data during their care at the Valvulopathies Center of Groupement des Hopitaux de l'Institut Catholique de Lille (GHICL). Their consent will be needed for the inclusion.

Data will be collected exclusively by the person responsible for implementing the data processing and his/her authorised staff. For all patients, data will be collected retrospectively, based on medical records (electronic or paper), and information available on the various care software linked to the patient's file. There will not be changes in the the patient's care.

At the GHICL Valvulopathy Centre, in accordance with European recommendations, patients with aortic insufficiency are monitored as follows, depending on the severity of the pathology:

* Minimal aortic insufficiency: follow-up every 3-5 years (approximately) including clinical examination and transthoracic echocardiogram (TTE)
* Moderate/medium aortic insufficiency: follow-up every 1-2 years with clinical examination, laboratory tests and TTE.
* Significant aortic insufficiency: follow-up every 6-12 months including a clinical examination, a biological assessment and a c+/- TTE coupled with an exercise test.
* Cardiac Magnetic Resonance Imaging (MRI) indicated as a second-line procedure after TTE in cases of moderate/medium aortic insufficiency with arguments or doubts about an underestimation of the severity of the aortic insufficiency on TTE, aortic insufficiency of undetermined quantification on TTE, or significant aortic insufficiency on TTE to confirm the severity using a multiparametric approach.
* TEE (transesophageal echocardiogram) is indicated as 2nd line after TTE in cases of significant aortic insufficiency as part of the preoperative work-up or moderate/undetermined aortic insufficiency on TTE.

The choice between cardiac MRI or TEE, or both, as second-line treatment after TEE, is left to the clinician in current practice, in accordance with the recommendations.

Conditions

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Aortic Insufficiency Heart Valve Diseases

Study Design

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Observational Model Type

COHORT

Study Time Perspective

RETROSPECTIVE

Study Groups

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Group of patients with aortic insufficiency

Patients already assessed at GHICL's Valvulopathy Centre from 2011 to October 2023 will be identified retrospectively, by queries based on keywords and/or diagnostic codes in echocardiography interpretation software (Viewpoint/EchoPAC, ISCV). GHICL's Medical Information Department will also be involved.

Clinical follow-up

Intervention Type OTHER

Clinical follow-up of patients

Transthoracic Echocardiogram (TTE)

Intervention Type OTHER

Transthoracic Echocardiogram

Magnetic resonance imaging (MRI)

Intervention Type OTHER

Magnetic resonance imaging

Transesophageal echocardiogram (TEE)

Intervention Type OTHER

Transesophageal echocardiogram

Interventions

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Clinical follow-up

Clinical follow-up of patients

Intervention Type OTHER

Transthoracic Echocardiogram (TTE)

Transthoracic Echocardiogram

Intervention Type OTHER

Magnetic resonance imaging (MRI)

Magnetic resonance imaging

Intervention Type OTHER

Transesophageal echocardiogram (TEE)

Transesophageal echocardiogram

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Adult patients (age \>= 18 years)
* Cared for at GHICL Since 1st January 2011
* With chronic aortic insufficiency of any grade.

Exclusion Criteria

* Patients who have undergone prosthetic aortic valve surgery prior to diagnostic transthoracic echocardiography
* Patients with acute heart failure
* Patients with an intracardiac shunt or other complex congenital heart disease or obstructive hypertrophic cardiomyopathy
* Patients with aortic prosthesis
* Patients with active endocarditis or sequelae \< 6 months old
* Patients under legal protection
* Patient who refused to take part in the study
* Patients with other than minimal left heart valve disease (with the exception of secondary mitral insufficiency)
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Lille Catholic University

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Alexandre Altes, MD

Role: PRINCIPAL_INVESTIGATOR

[email protected]

Other Identifiers

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EDS-2023-02

Identifier Type: -

Identifier Source: org_study_id

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