Improving Participation of Autistic Children and Adolescents in the Habilitation Process

NCT ID: NCT06381856

Last Updated: 2025-08-11

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ENROLLING_BY_INVITATION

Total Enrollment

120 participants

Study Classification

OBSERVATIONAL

Study Start Date

2025-01-13

Study Completion Date

2026-12-31

Brief Summary

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This project aims to explore the impact of a survey-based and a meeting-based needs assessment models on 7 to 17 year old autistic children's participation in the needs assessment process at the initial reception when enrolled at a Child and Youth Habilitation Centre.

Detailed Description

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The increasing number of children diagnosed with autism spectrum disorder (ASD) presents significant challenges for healthcare providers. Research emphasizes the importance of involving children in their healthcare decisions. However, due to the complex nature of ASD, characterized by differences in communication and social interaction, healthcare professionals struggle to adapt their services for these children.

To address this issue, the present study compares two assessment methods for children with ASD: one based on surveys and another based on meetings with healthcare professionals. In addition, supplementary information from the children's parents or guardians and healthcare providers will be gathered .

Data collection methods will include questionnaires, interviews, and analysis of individual habilitation plans. The goal is to recruit 120 children aged 7-17 diagnosed with ASD but without intellectual disabilities, with half undergoing the survey-based assessment and the other half undergoing the meeting-based assessment.

Conditions

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Autism Spectrum Disorders

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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survey based needs assessment

cohort receiving survey based needs assessment

No interventions assigned to this group

Personal meeting based assessment

cohort receiving personal meeting based needs assessment

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* autism spectrum disorder

Exclusion Criteria

* intellectual disability
Minimum Eligible Age

7 Years

Maximum Eligible Age

17 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Region Örebro County

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Lars-Olov Lundqvist, Professor

Role: PRINCIPAL_INVESTIGATOR

Region Örebro County

Locations

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University Health Care Research Center

Örebro, Örebro County, Sweden

Site Status

Countries

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Sweden

References

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Lundqvist LO, Sjodin L, Karvonen E, Arnell S. Evaluating the impact of needs assessment models on autistic children's participation in the habilitation process: protocol for a prospective observational study. BMJ Open. 2024 Nov 1;14(10):e089135. doi: 10.1136/bmjopen-2024-089135.

Reference Type DERIVED
PMID: 39486811 (View on PubMed)

Other Identifiers

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EPM_2024-00227-01

Identifier Type: -

Identifier Source: org_study_id

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