Autism in Adult Patients and the Effects on Caregivers

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

240 participants

Study Classification

OBSERVATIONAL

Study Start Date

2008-08-31

Brief Summary

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Background: The number of adults with autism is expected to rise significantly in the near future, due to two main reasons: First, a dramatic increase in the estimates of the prevalence of autism starting in the mid 1980s; Second, the clinical diagnosis of autism was first introduced during the 1950s, and those diagnosed with autism back then are only now entering middle age. Few studies, however, have focused on the outcomes of adult autistic individuals, and very little is known about the course of autism in adulthood and on the familial burden resulting from caring for an autistic adult. We therefore propose to study adult outcomes in autism, and to examine the influence of raising an autistic individual on the parents.

Working hypothesis and aims: The primary objectives of the study are:

1. Determine clinical status and functioning of autistic adults.
2. Study the influence of raising and caring for an individual with autism on the well-being of the parents.

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Detailed Description

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Conditions

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Autism

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* Autism or autism spectrum disorder
* Understands the informed consent
* Hebrew Speaker

Exclusion Criteria

* Severe acute or chronic illness
* Substance abuse
* In control subjects: Autism or autism spectrum disorder in subject or siblings
* In control subjects: participating sibling

Minimum Eligible Age

30 Years

Maximum Eligible Age

45 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes