Autistic Eye Contact?

NCT ID: NCT06921876

Last Updated: 2025-04-10

Basic Information

• Recruitment Status: COMPLETED
• Total Enrollment: 30 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2024-06-03
• Study Completion Date: 2024-09-30

Brief Summary

This research explored both breadth and depth of the experiences with eye contact in adults with and without ASD. A hermeneutic phenomenological multicenter design was used in which 15 adults with ASD and 15 adults without ASD were interviewed, using semi-structured interviews. Analyses using Multisite Qualitative Analysis (MSQA) and PRICE-model for saturation.

Detailed Description

This study aimed to examine the subjective eye contact experiences of adults with ASD compared to adults without ASD. Factors such as beliefs about the phenomenon, problems because of eye contact, development in eye contact, interpretations of others and more were explored.

To get insight in the subjective eye contact experiences of adults with ASD compared to adults without ASD, a hermeneutic phenomenological design using Multisite Qualitative Analysis (MSQA) and the PRICE-model for saturation during data analysis were used. MSQA enables the highest qualitative accuracy, the gathering of rich context-specific insights and maximizing the applicability. Semi-structured interviews was chosen for data collection and analysis because adults with ASD attach importance to on the one hand having the space to share their experiences in their own way, but on the other hand need frameworks to know what is asked of them. Hermeneutic phenomenological approach, grounded in philosophical concepts developed by Heidegger and Gadamer, made it possible to create meaning on how people experience a situation or phenomenon, such as eye contact, in a flexible and practical way.

Multisite design was chosen in response to criticism that single-site findings would limit the relevance and transferability and reliability to other settings. The Consolidated criteria for reporting qualitative studies (COREQ) checklist was used for reporting the research data. For the checklist. In addition, the Standards for Reporting Qualitative Research (SRQR) checklist was used. The research design was developed in collaboration with three adults with ASD and three adults without ASD, in order to include relevant information from the perspective of the target groups.

The semi-structured interviews were conducted using a topic list. This topic list consisted of the following sub questions:

Meaning:

• What do you think is the meaning of the term eye contact?
• In your opinion, are there different ways of making eye contact? If so, which?
• What do you think about the opinion that eye contact is abnormal in autism?

Development:

• Was the subject of eye contact brought up in your youth? If so, how?
• Did you learn how to make eye contact?
• Does your experiences with eye contact influenced how you lived your life? How?

Initiative to eye contact:

• Does it matter to you how others make eye contact with you? Why?
• Does the way you make eye contact with others depend on the situation or the person? Why?
• Do you adjust your eye contact to situations and/or people?

Interpretation of eye contact:

• Are there for you different ways of having eye contact? Which one?
• Are there for you different meanings of eye contact? Which one?

Dealing with eye contact:

• How do you make eye contact when interacting with others? Does that happen automatically?
• Do you consciously think about having eye contact? How come?
• How do you experience having eye contact with others? How come?

Wishes:

Would you like your eye contact with others to be different?/Do you need to improve the eye contact you have with others? If not, why? If so, why?

Conditions

Autism Spectrum Disorder (ASD); Neurotypical

Study Design

• Observational Model Type: OTHER
• Study Time Perspective: CROSS_SECTIONAL

Study Groups

Autism

The group of adults with ASD consisted of participants who were receiving outpatient treatment at one of three specialized centers for ASD, located in Deventer, Rotterdam or Amsterdam in the Netherlands.

No interventions assigned to this group

Neurotypicals

The group of adults without ASD consisted of participants who were never diagnosed with autism and lived in the Netherlands.

No interventions assigned to this group

Eligibility Criteria

Inclusion Criteria

• Diagnosed with autism according to an internationally recognized classification system
• Receiving outpatient treatment at a specialized autism center in the Netherlands
• Being able to understand the themes to be discussed
• Motivation to participate in the research

• Being able to understand the themes to be discussed
• Motivation to participate in the research

Exclusion Criteria

• Insufficient command of the Dutch language
• Use of alcohol and/or recreational drugs during the study
• Too much mental instability to participate in the study
• Familiarity with treatment in intellectual disability care

Adults without autism

• Insufficient command of the Dutch language
• Use of alcohol and/or recreational drugs during the study
• Too much mental instability to participate in the study
• Familiarity with treatment in intellectual disability care

• Minimum Eligible Age: 18 Years
• Maximum Eligible Age: 65 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: Yes

Sponsors

Dimence Groep

UNKNOWN

Sponsor Role: collaborator

UMC Utrecht

OTHER

Sponsor Role: lead

Responsible Party

Jos Boer

MSc

Responsibility Role: PRINCIPAL_INVESTIGATOR

Principal Investigators

Nynke Boonstra, Professor

Role: STUDY_CHAIR

UMC Utrecht

Locations

Dimence Groep

Deventer, Overijssel, Netherlands

Countries

Netherlands

Other Identifiers

Dimence Groep

Identifier Type: OTHER

Identifier Source: secondary_id

55990

Identifier Type: -

Identifier Source: org_study_id