Patient-Centered Care Survey

NCT ID: NCT06068634

Last Updated: 2024-08-22

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

1500 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-10-23

Study Completion Date

2024-04-24

Brief Summary

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The key to patient-centered care is to identify what the patient perceives as meaningful. The primary objective of this research is to evaluate which aspects of patient-centered care are priorities to infertility patients, and if those priorities vary by geographical region.

Detailed Description

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An electronic survey will be distributed to current patients within The Prelude Network, a network of fertility practices, for a total of six months. Survey responses will be collected anonymously using Survey Monkey. The survey is designed to collect information on patient preferences for patient-centered care. Participants will rank the importance of the different options within each Factor category (Clinic, Physician, Finance, and Staff). In addition, demographic questions are included and will be utilized to determine if these factors could have a significant impact on patient-centered care preferences. It is anticipated that at least 1,000 completed surveys will be collected. A similar survey was distributed to Prelude Network physicians. Patient and physician responses may be compared as part of additional data analysis.

Conditions

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Infertility

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Current Patients

Current patient is defined as any patient who has had any type of visit at a participating clinic within the last 6 months of the date of study initiation.

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Current patient within The Prelude Network (a network of fertility clinics).
* Has had any type of visit at a participating clinic within the last 6 months of the date of study initiation.

Exclusion Criteria

* Not a current patient at a participating clinic.
* Has not had an appointment within 6 months of the date of study initiation.
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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EMD Serono

INDUSTRY

Sponsor Role collaborator

Inception Fertility Research Institute, LLC

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Alice Domar, PhD

Role: PRINCIPAL_INVESTIGATOR

Inception Fertility

Locations

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Inception Fertility, LLC

Houston, Texas, United States

Site Status

Countries

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United States

References

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Chen TH, Chang SP, Tsai CF, Juang KD. Prevalence of depressive and anxiety disorders in an assisted reproductive technique clinic. Hum Reprod. 2004 Oct;19(10):2313-8. doi: 10.1093/humrep/deh414. Epub 2004 Jul 8.

Reference Type BACKGROUND
PMID: 15242992 (View on PubMed)

den Breejen EM, Nelen WL, Schol SF, Kremer JA, Hermens RP. Development of guideline-based indicators for patient-centredness in fertility care: what patients add. Hum Reprod. 2013 Apr;28(4):987-96. doi: 10.1093/humrep/det010. Epub 2013 Feb 14.

Reference Type BACKGROUND
PMID: 23411619 (View on PubMed)

Domar AD, Gross J, Rooney K, Boivin J. Exploratory randomized trial on the effect of a brief psychological intervention on emotions, quality of life, discontinuation, and pregnancy rates in in vitro fertilization patients. Fertil Steril. 2015 Aug;104(2):440-51.e7. doi: 10.1016/j.fertnstert.2015.05.009. Epub 2015 Jun 13.

Reference Type BACKGROUND
PMID: 26072382 (View on PubMed)

Domar AD, Rooney K, Hacker MR, Sakkas D, Dodge LE. Burden of care is the primary reason why insured women terminate in vitro fertilization treatment. Fertil Steril. 2018 Jun;109(6):1121-1126. doi: 10.1016/j.fertnstert.2018.02.130.

Reference Type BACKGROUND
PMID: 29935647 (View on PubMed)

Garcia D, Bautista O, Venereo L, Coll O, Vassena R, Vernaeve V. Training in empathic skills improves the patient-physician relationship during the first consultation in a fertility clinic. Fertil Steril. 2013 Apr;99(5):1413-1418.e1. doi: 10.1016/j.fertnstert.2012.12.012. Epub 2013 Jan 5.

Reference Type BACKGROUND
PMID: 23294674 (View on PubMed)

Huppelschoten AG, Aarts JW, van Empel IW, Cohlen BJ, Kremer JA, Nelen WL. Feedback to professionals on patient-centered fertility care is insufficient for improvement: a mixed-method study. Fertil Steril. 2013 Apr;99(5):1419-27. doi: 10.1016/j.fertnstert.2012.12.024. Epub 2013 Jan 26.

Reference Type BACKGROUND
PMID: 23357454 (View on PubMed)

Pasch LA, Holley SR, Bleil ME, Shehab D, Katz PP, Adler NE. Addressing the needs of fertility treatment patients and their partners: are they informed of and do they receive mental health services? Fertil Steril. 2016 Jul;106(1):209-215.e2. doi: 10.1016/j.fertnstert.2016.03.006. Epub 2016 Mar 24.

Reference Type BACKGROUND
PMID: 27018159 (View on PubMed)

Troude P, Ancelet S, Guibert J, Pouly JL, Bouyer J, de La Rochebrochard E. Joint modeling of success and treatment discontinuation in in vitro fertilization programs: a retrospective cohort study. BMC Pregnancy Childbirth. 2012 Aug 3;12:77. doi: 10.1186/1471-2393-12-77.

Reference Type BACKGROUND
PMID: 22862824 (View on PubMed)

Troude P, Guibert J, Bouyer J, de La Rochebrochard E; DAIFI Group. Medical factors associated with early IVF discontinuation. Reprod Biomed Online. 2014 Mar;28(3):321-9. doi: 10.1016/j.rbmo.2013.10.018. Epub 2013 Oct 31.

Reference Type BACKGROUND
PMID: 24461478 (View on PubMed)

van Empel IW, Dancet EA, Koolman XH, Nelen WL, Stolk EA, Sermeus W, D'Hooghe TM, Kremer JA. Physicians underestimate the importance of patient-centredness to patients: a discrete choice experiment in fertility care. Hum Reprod. 2011 Mar;26(3):584-93. doi: 10.1093/humrep/deq389. Epub 2011 Jan 12.

Reference Type BACKGROUND
PMID: 21227936 (View on PubMed)

Other Identifiers

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FER-CSS-2023-0248

Identifier Type: -

Identifier Source: org_study_id

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