Study on the Construction and Application of Breastfeeding Behavior Intervention Program for Mothers of Infants With Congenital Heart Disease

NCT ID: NCT05961540

Last Updated: 2024-07-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

68 participants

Study Classification

INTERVENTIONAL

Study Start Date

2023-04-25

Study Completion Date

2024-05-30

Brief Summary

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This study is a randomized block trial designed to evaluate the effectiveness of a breastfeeding behavioural intervention program for mothers of infants with congenital heart disease (CHD). The purpose of this study is to compare exclusive breastfeeding rates, changes in weight-for-age z-scores (ΔWAZ) and height-for-age z-scores (ΔHAZ), and maternal breastfeeding behaviour between the intervention group and the control group at 1, 3, and 6 months of age.

Detailed Description

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Congenital heart disease (CHD) refers to an abnormality in the development of the heart and major blood vessels during fetal development. The prevalence of CHD in China is 8.94 per 1,000 live births and poses a significant public health concern for children's well-being. Infants with CHD often suffer from fluid restriction, nausea, belching, choking and stuttering due to structural changes in the heart and abnormal haemodynamics, which pose a challenge to their nutritional intake. The World Health Organization (WHO) advises that breastfeeding is the best way to nourish infants. Breastfeeding should begin within one hour of birth, and exclusive breastfeeding means that no other food or liquid, including water, should be continued for the first six months of life. The Expert Consensus on Nutritional Support for Children with Congenital Heart Disease recommends breast milk as the optimal nutrition for newborns and encourages infants with CHD to breastfeed. While breastfeeding offers benefits such as immune system enhancement, improved nervous system development, and increased intelligence for infants with CHD, breastfeeding rates are low in this population and interruptions are frequent. A behaviour change program based on the behaviour change wheel will be implemented at the Children's Hospital of Fudan University to enhance breastfeeding behaviour in mothers of infants with CHD, with the aim of increasing the rate of exclusive breastfeeding in this population.

Conditions

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Heart Defects, Congenital Breast Feeding

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

OTHER

Blinding Strategy

SINGLE

Outcome Assessors

Study Groups

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Conventional care group

The management of infants with CHD and their mothers is based on the current breastfeeding process and care protocols at the Cardiovascular Centre of the Children's Hospital of Fudan University.

Group Type OTHER

Conventional care

Intervention Type OTHER

1. Instruct parents to follow up with the baby at the doctor's appointment.
2. Provide telephone follow-up visits at 1 month, 3 months, and 6 months of age to assess the baby's feeding and physical development (height and weight).

Breastfeeding intervention program

Implement intervention programs to improve breastfeeding behaviour among mothers of infants with CHD and observe ongoing changes.

Group Type EXPERIMENTAL

Breastfeeding behavioural intervention for mothers of infants with CHD

Intervention Type BEHAVIORAL

Based on the Behavioural Change Wheel theory,the intervention program is developed and implemented to promote the change in breastfeeding behavior of mothers with CHD infants,so as to improve the exclusive breastfeeding rate of this population.Specific programs include:

1. Evaluate signs of hunger and satiety in infants.
2. Family visits, face-to-face guidance on breastfeeding skills, breast milk storage and management.
3. Training methods for promoting breast milk secretion.
4. To explain common feeding difficulties manifestations and treatment methods in infants with CHD.
5. Establish a breastfeeding promotion alliance.
6. Teach mothers to weigh their babies before and after breastfeeding to determine breast milk intake.
7. Assess and guide the growth and development of infants with CHD.

Interventions

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Conventional care

1. Instruct parents to follow up with the baby at the doctor's appointment.
2. Provide telephone follow-up visits at 1 month, 3 months, and 6 months of age to assess the baby's feeding and physical development (height and weight).

Intervention Type OTHER

Breastfeeding behavioural intervention for mothers of infants with CHD

Based on the Behavioural Change Wheel theory,the intervention program is developed and implemented to promote the change in breastfeeding behavior of mothers with CHD infants,so as to improve the exclusive breastfeeding rate of this population.Specific programs include:

1. Evaluate signs of hunger and satiety in infants.
2. Family visits, face-to-face guidance on breastfeeding skills, breast milk storage and management.
3. Training methods for promoting breast milk secretion.
4. To explain common feeding difficulties manifestations and treatment methods in infants with CHD.
5. Establish a breastfeeding promotion alliance.
6. Teach mothers to weigh their babies before and after breastfeeding to determine breast milk intake.
7. Assess and guide the growth and development of infants with CHD.

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* For infants

CHD was diagnosed within 14 days of birth.

From birth to 14 days old.

Exclusive breastfeeding or mixed feeding during enrollment.

* For mothers

The mother is the primary caretaker for the infant with CHD.

The mother has a smartphone and has the skills to use it.

She has good reading and communication skills and can work fully with others.

In good physical health with no clear disability, such as severe cardiovascular disease, etc.

In good mental health, without any clearly diagnosed anxiety disorders, depression, etc.

Mothers must be at least 18 years old.

Exclusion Criteria

* For infants

Congenital anomalies such as gastrointestinal anomalies, facial anomalies, cleft lip and palate, and various syndromes due to chromosomal abnormalities are combined.

Cardiac surgery was performed within 14 days of birth.

The infant is not breastfed according to medical standards (for example, with galactosemia, phenylketonuria, or maple glycosuria).

* For mothers

Mothers with mental illness, cognitive impairment, etc. who struggle to communicate effectively.

Those who have contraindications to breastfeeding, such as long-term use of specific types of drugs such as chemotherapy drugs, opioids, anti-epileptic drugs, anti-depressants, psychotropic drugs, etc.

Systemic infectious diseases during feeding include HIV positive, active or untreated tuberculosis, recent syphilis infection, etc.
Minimum Eligible Age

1 Day

Maximum Eligible Age

6 Months

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Children's Hospital of Fudan University

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Ying Gu, Doctor

Role: STUDY_DIRECTOR

Children's Hospital of Fudan University

Locations

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Children's Hospital of Fudan University

Shanghai, Shanghai Municipality, China

Site Status

Countries

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China

Other Identifiers

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CHFudan

Identifier Type: -

Identifier Source: org_study_id

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