Access to Pediatric Rheumatology Centers for JIA Patients: Factors Associated With Time to Access Pediatric Rheumatology Centers

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

45 participants

Study Classification

OBSERVATIONAL

Study Start Date

2022-10-18

Study Completion Date

2023-09-30

Brief Summary

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JIA patients, their parents, and the health care professionals experience the complexity of the initial care pathway. The aim of the study is to explore the referral pathway to access pediatric rheumatology centers for JIA patients. The exploration will aim to identify the barriers and facilitators of referral, based on the conceptual framework of the health literacy. The investigators will conduct a qualitative study using semi-structured interviews. The perspectives of parents/children/health care professionals will be crossed to enrich the data.

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Detailed Description

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Conditions

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Juvenile Idiopathic Arthritis

Study Design

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Observational Model Type

OTHER

Study Time Perspective

OTHER

Study Groups

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JIA patients

Children diagnosed with JIA between 4 and 24 months before the start of the study, treated and followed in a pediatric rheumatology center (old enough to answer the questions)

semi-structured interview

Intervention Type OTHER

Subjects will be recruited in a purposive, non-randomized manner. Data will be collected to obtain a sufficient diversity of perspectives on the topic, while maintaining sufficient homogeneity for analysis.

The number of participants cannot be determined in advance; it will be determined after data saturation.

Parents of JIA patients

Parents of a child diagnosed with JIA between 4 and 24 months prior to the start of the study (treated and followed in a pediatric rheumatology center)

semi-structured interview

Intervention Type OTHER

Subjects will be recruited in a purposive, non-randomized manner. Data will be collected to obtain a sufficient diversity of perspectives on the topic, while maintaining sufficient homogeneity for analysis.

The number of participants cannot be determined in advance; it will be determined after data saturation.

Health care professionals

Physician with experience in the initial management of JIA patients (between symptom onset and first visit with a pediatric rheumatologist)

semi-structured interview

Intervention Type OTHER

Subjects will be recruited in a purposive, non-randomized manner. Data will be collected to obtain a sufficient diversity of perspectives on the topic, while maintaining sufficient homogeneity for analysis.

The number of participants cannot be determined in advance; it will be determined after data saturation.

Interventions

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semi-structured interview

Subjects will be recruited in a purposive, non-randomized manner. Data will be collected to obtain a sufficient diversity of perspectives on the topic, while maintaining sufficient homogeneity for analysis.

The number of participants cannot be determined in advance; it will be determined after data saturation.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Children:

* age \> 11 years
* JIA diagnosed between 4 and 24 months prior to the start of the study

Parents:

\- parent of a child with JIA diagnosed between 4 and 24 months prior to the start of the study

Health care professional:

* Physician with experience in the initial management of children with JIA (between symptom onset and first visit with a pediatric rheumatologist).

Exclusion Criteria

For all participants:

* Refusal to participate in interviews
* Presenting a health condition incompatible with an interview
* Participants with inadequate French to take part in semi-structured interviews

Minimum Eligible Age

11 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes