Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
NA
31 participants
INTERVENTIONAL
2022-06-21
2023-02-09
Brief Summary
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Detailed Description
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To evaluate the feasibility of an online training course for carers of people with PCA, PPA, and bvFTD. Feasibility measures will focus on the recruitment process and measurement tools.
To determine the acceptability of an online training course for carers of people with PCA, PPA and bvFTD.
The study will involve 6 online modules over the course of 7 weeks. All sessions will take place over the internet, using an online platform. A research team member (facilitator) will be available to assist participants over the course completion.
Conditions
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Study Design
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RANDOMIZED
PARALLEL
TREATMENT
SINGLE
Study Groups
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Intervention
Subjects in the intervention group receive access to an online training and educational phenotype-specific programme on how to support their relative with non-memory-led dementia. The online course consists on 6 modules to complete in 7 weeks. A course facilitator is available throughout the duration of the intervention to support participants.
Better living with non-memory led dementia course
Caregivers online training and educational phenotype-specific programme on how to support people with non-memory-led dementia.
Treatment as usual (TAU)
The "treatment as usual" group does not receive access to the educational programme.
No interventions assigned to this group
Interventions
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Better living with non-memory led dementia course
Caregivers online training and educational phenotype-specific programme on how to support people with non-memory-led dementia.
Eligibility Criteria
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Inclusion Criteria
2. . The care recipient has to have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention).
Exclusion Criteria
2. . Those with no access to the internet
18 Years
ALL
Yes
Sponsors
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University College, London
OTHER
Responsible Party
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Locations
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University College London
London, , United Kingdom
Countries
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References
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Suarez-Gonzalez A, John A, Brotherhood E, Camic PM, McKee-Jackson R, Melville M, Sullivan MP, Tudor-Edwards R, Windle G, Crutch S, Hoare Z, Stott J; Rare Dementia Support Impact team. "Better Living with Non-memory-led Dementia": protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme. Pilot Feasibility Stud. 2023 Oct 11;9(1):172. doi: 10.1186/s40814-023-01403-1.
Other Identifiers
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RDSImpact_ws4feasibility
Identifier Type: -
Identifier Source: org_study_id
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