Characterizing Sleep Among Long-term Survivors of Childhood Cancer

NCT ID: NCT05480904

Last Updated: 2025-10-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

120 participants

Study Classification

OBSERVATIONAL

Study Start Date

2023-04-17

Study Completion Date

2027-01-31

Brief Summary

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The patients are being asked to take part in this clinical trial because they received cancer treatment as a child at St. Jude. The study comprehensively examines sleep among three distinct diagnostic groups of survivors in the SJLIFE cohort: ALL, CNS tumors, and non-CNS solid tumors.

Primary Objective

The primary aim of this protocol is to estimate the prevalence of various sleep disorders among long-term survivors of childhood ALL, CNS tumors, and non- CNS solid tumors.

Exploratory Objective

The exploratory objective of the study is to explore associations between the prevalence of sleep disorders and clinical outcomes collected in SJLIFE.

Detailed Description

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A cross-sectional pilot study that will enroll participants for on-campus or remote study activities. The investigators anticipate a targeted evaluable accrual of 120, 40 within each of the three groups identified above. The plan is to employ remote polysomnography and surveys to assess patterns of sleep disorders. These assessments could be done in the homes of survivors or during campus visits.

Conditions

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ALL, Adult CNS Tumor Solid Tumor

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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On campus

SJLIFE Study Campus Visit

Neurocognitive (Thinking) Testing

Intervention Type OTHER

Intelligence: WASI-II 20 min; Sustained Attention:

Conners Continuous Performance Test 3rd ED. 15 min; Memory: California Verbal Learning Test 2nd Ed. 20 min; Visual Selective Reminding 7 min; Processing Speed:Coding/Digit Symbol 3 min; Grooved Pegboard 5 min; Executive Function: Trail Making Test 5 min; Verbal Fluency Test 3 min; Digit Span 5 min; Visuospatial: Rey Complex Figure 10 min; Functional Behavior: CCSS Neurocognitive Questionnaire 5 min.

Health Questionnaires, Sleep Surveys & Sleep Diary

Intervention Type OTHER

The participant will be asked to complete the sleep surveys and sleep diary, FACIT fatigue, and CSALTS Pain Survey These questionnaires will take about 29 minutes to complete. The sleep diary is completed at the time the participant wears the sleep device.

Echocardiography/EKG

Intervention Type DIAGNOSTIC_TEST

All echocardiograms will be performed using a General Electric VIVID-7. The LV volume, mass and EF will be calculated using the recommendations of the American Society of Echocardiography

Pulmonary Function

Intervention Type DIAGNOSTIC_TEST

PFTs will include spirometry, lung volume measurements by body plethysmography and single breath carbon monoxide-diffusion capacity (DLCO).

Remote Polysomnography

Intervention Type DEVICE

The Sleep Profiler PSG2/WatchPat device will be used to assess nighttime sleep disorders.

Physical Function

Intervention Type DIAGNOSTIC_TEST

This is a test of how your heart and lungs respond to exercise.

Remote

SJLIFE cohort: ALL, CNS tumors, and non-CNS solid tumors

CNS Vital Signs (Thinking) Testing

Intervention Type DIAGNOSTIC_TEST

Attention: Continuous Performance Task 5 mins Processing Speed: Symbol Digit Test 4 mins Executive Function: Shifting Attention 3 min and Stroop Test 5 mins

Health Questionnaires, Sleep Surveys & Sleep Diary

Intervention Type OTHER

The participant will be asked to complete the sleep surveys and sleep diary, FACIT fatigue, and CSALTS Pain Survey These questionnaires will take about 29 minutes to complete. The sleep diary is completed at the time the participant wears the sleep device.

Remote Polysomnography

Intervention Type DEVICE

The Sleep Profiler PSG2/WatchPat device will be used to assess nighttime sleep disorders.

Interventions

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Neurocognitive (Thinking) Testing

Intelligence: WASI-II 20 min; Sustained Attention:

Conners Continuous Performance Test 3rd ED. 15 min; Memory: California Verbal Learning Test 2nd Ed. 20 min; Visual Selective Reminding 7 min; Processing Speed:Coding/Digit Symbol 3 min; Grooved Pegboard 5 min; Executive Function: Trail Making Test 5 min; Verbal Fluency Test 3 min; Digit Span 5 min; Visuospatial: Rey Complex Figure 10 min; Functional Behavior: CCSS Neurocognitive Questionnaire 5 min.

Intervention Type OTHER

CNS Vital Signs (Thinking) Testing

Attention: Continuous Performance Task 5 mins Processing Speed: Symbol Digit Test 4 mins Executive Function: Shifting Attention 3 min and Stroop Test 5 mins

Intervention Type DIAGNOSTIC_TEST

Health Questionnaires, Sleep Surveys & Sleep Diary

The participant will be asked to complete the sleep surveys and sleep diary, FACIT fatigue, and CSALTS Pain Survey These questionnaires will take about 29 minutes to complete. The sleep diary is completed at the time the participant wears the sleep device.

Intervention Type OTHER

Echocardiography/EKG

All echocardiograms will be performed using a General Electric VIVID-7. The LV volume, mass and EF will be calculated using the recommendations of the American Society of Echocardiography

Intervention Type DIAGNOSTIC_TEST

Pulmonary Function

PFTs will include spirometry, lung volume measurements by body plethysmography and single breath carbon monoxide-diffusion capacity (DLCO).

Intervention Type DIAGNOSTIC_TEST

Remote Polysomnography

The Sleep Profiler PSG2/WatchPat device will be used to assess nighttime sleep disorders.

Intervention Type DEVICE

Physical Function

This is a test of how your heart and lungs respond to exercise.

Intervention Type DIAGNOSTIC_TEST

Other Intervention Names

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Sleep Profiler PSG2-Overnight Sleep Study

Eligibility Criteria

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Inclusion Criteria

* Participant in SJLIFE and \> 5 years from diagnosis.
* \>18 years of age at time of enrollment.
* Diagnosed with ALL (treated with CRT or chemotherapy only) or CNS tumors (posterior fossa tumors or supratentorial tumors) or non-CNS solid tumors (with abdominal or chest radiation or bilateral retinoblastoma survivors).
* Participant was less than 21 years of age at time of diagnosis.
* Speaks and understands English (polysomnography device speaks to patients only in English).
* Remote participant must have Wi-Fi access

Exclusion Criteria

* Estimated intelligence score \<80.
* Currently prescribed an intervention for a sleep disorder.
* Survivor of craniopharyngioma.
* Survivor of Hodgkin Lymphoma.
* Relapsed or treated with hematopoietic stem cell therapy.
* Brain injury unrelated to cancer diagnosis or therapy.
* Pulmonary injury unrelated to cancer diagnosis or therapy.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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St. Jude Children's Research Hospital

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Kevin Krull, PhD

Role: PRINCIPAL_INVESTIGATOR

St. Jude Children's Research Hospital

Locations

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St. Jude Children's Research Hospital

Memphis, Tennessee, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Kevin Krull, PhD

Role: CONTACT

866-278-5833

Facility Contacts

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Kevin Krull, PhD

Role: primary

866-278-5833

Related Links

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http://www.stjude.org

St. Jude Children's Research Hospital

http://www.stjude.org/protocols

Clinical Trials Open at St. Jude

Other Identifiers

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NCI-2022-08555

Identifier Type: REGISTRY

Identifier Source: secondary_id

CSALTS

Identifier Type: -

Identifier Source: org_study_id

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