Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
698 participants
OBSERVATIONAL
2022-03-23
2023-10-11
Brief Summary
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Detailed Description
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Conditions
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Study Design
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COHORT
CROSS_SECTIONAL
Eligibility Criteria
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Inclusion Criteria
* Willing and able to provide informed consent electronically.
* Individuals answering as a participant must self-report they have been diagnosed with HD by a doctor.
* Ability to answer online questions or direct someone else to enter answers for them.
* Ability to ambulate independently and take care of some of his or her personal needs.
* Ability to read and understand English.
* Willing to create a unique identifier based on personal demographic information.
* Residing in the United States or its territories
* Owning or having access to an electronic device and secure internet connectivity
18 Years
ALL
No
Sponsors
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Huntington Study Group
NETWORK
Responsible Party
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Principal Investigators
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Karen E Anderson, MD
Role: PRINCIPAL_INVESTIGATOR
Georgetown University
Locations
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Huntington Study Group
Rochester, New York, United States
Countries
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Other Identifiers
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Making HD Voices Heard
Identifier Type: -
Identifier Source: org_study_id
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