Family Health After Predictive Huntington Disease (HD) Testing
NCT ID: NCT00075140
Last Updated: 2009-01-16
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
422 participants
OBSERVATIONAL
2001-09-30
2008-10-31
Brief Summary
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Detailed Description
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In Phase 3, the survey will be distributed to family members of asymptomatic and symptomatic persons with mutation in the gene for HD and frequencies and comparisons of survey responses according to respondent characteristics will be reported.
Conditions
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Study Groups
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1
All Participants hav a family member with Huntington Disease
Mutation in the gene
Interventions
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Mutation in the gene
Eligibility Criteria
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Inclusion Criteria
ALL
No
Sponsors
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National Institute of Nursing Research (NINR)
NIH
Responsible Party
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University of Iowa
Principal Investigators
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Janet K Williams, PhD, RN, FAAN
Role: PRINCIPAL_INVESTIGATOR
University of Iowa
Locations
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The University of Iowa College of Nursing
Iowa City, Iowa, United States
Countries
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Other Identifiers
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