A Study of Pegcetacoplan for Patients With Transplant-associated Thrombotic Microangiopathy After Hematopoietic Stem Cell Transplantation

NCT ID: NCT05148299

Last Updated: 2025-11-28

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE2

Total Enrollment

12 participants

Study Classification

INTERVENTIONAL

Study Start Date

2022-02-01

Study Completion Date

2024-12-08

Brief Summary

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The purpose of the study was to assess pharmacokinetics (PK), pharmacodynamics (PD), efficacy, and safety of pegcetacoplan in patients with TA-TMA after HSCT.

Detailed Description

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This was a pilot study, and the sample size was based on practical rather than statistical aspects.

A total of 12 patients were to be included and treated in the study. With 12 patients included, it was estimated that 9 patients would complete at least 4 weeks of treatment, which is deemed sufficient to characterize the PK of pegcetacoplan in patients with TA-TMA to an appropriate precision. In addition, 12 patients would provide a 72 % probability to observe a response rate of at least 8 responders of the 12 patients recruited (assuming the true response rate is 70 %).

Conditions

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Transplant-Associated Thrombotic Microangiopathy

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

open label, single arm, multicenter
Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Pegcetacoplan

sterile solution in stoppered glass vial given as infusion, for a total treatment duration of 12 to 16 weeks.

Group Type EXPERIMENTAL

Pegcetacoplan

Intervention Type DRUG

20-cc glass vials-1080 mg

Interventions

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Pegcetacoplan

20-cc glass vials-1080 mg

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

1. Male and female patients aged ≥ 18 years at the time of informed consent form (ICF) signature.
2. Received allogeneic HSCT.
3. Diagnosis of TA-TMA established, as per laboratory markers indicating TMA.
4. Have a diagnosis of TA-TMA that persists despite initial management of any triggering condition.
5. Have random urine protein/creatinine ratio (rUPCR) ≥ 1 mg/mg.
6. Women of childbearing potential, defined as any women who have experienced menarche and who are NOT permanently sterile or postmenopausal, must have a negative serum pregnancy test at screening and agree to use protocol-defined methods of contraception for the duration of the study and 8 weeks after their last investigational medicinal product (IMP) dose.

Note: Postmenopausal is defined as having had 12 consecutive months with no menses without an alternative medical cause.
7. Men must agree to the following for the duration of the study and 8 weeks after their last dose of IMP:

1. Avoid fathering a child.
2. Use protocol-defined methods of contraception.
3. Refrain from donating sperm.
8. Patient and/or legally authorized representative must be capable of giving signed informed consent, which includes compliance with the requirements and restrictions listed in the ICF.

Exclusion Criteria

1. Positive direct Coombs test.
2. Known familial or acquired ADAMTS13 deficiency.
3. Known Shiga toxin-related hemolytic uremic syndrome.
4. Known bone marrow or graft failure.
5. Diagnosis of disseminated intravascular coagulation.
6. Diagnosis of veno-occlusive disease (VOD).
7. Active GI bleeding (hematemesis or hematochezia) at baseline.
8. Body weight \< 30 kg and \> 100 kg.
9. Uncontrolled systemic bacterial or fungal infection, presence or suspicion of sepsis.
10. Previously or currently treated with a complement inhibitor (approved or investigational).
11. Pregnancy or breastfeeding.
12. Positive human immunodeficiency virus antibody at screening or documented in pre-HSCT medical record.
13. Hepatitis C virus detectable by polymerase chain reaction at screening or documented in pre-HSCT medical record.
14. Chronic inactive hepatitis B virus with viral loads \> 1000 IU/mL (\> 5000 copies/mL) at screening or documented in pre-HSCT medical record. Eligible patients who are chronic active carriers (≤ 1000 IU/mL) must receive prophylactic antiviral treatment (e.g., entecavir, tenofovir, lamivudine) according to local country guidelines.
15. Known or suspected hereditary fructose intolerance.
16. Hypersensitivity to pegcetacoplan or any of its excipients.
17. Inability to cooperate with study procedures or any condition that, in the opinion of the investigator, could increase the patient's risk by participating in the study or confound the outcome of the study.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Apellis Pharmaceuticals, Inc.

INDUSTRY

Sponsor Role collaborator

Swedish Orphan Biovitrum

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Study physician

Role: STUDY_DIRECTOR

Swedish Orphan Biovitrum AB

Locations

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City of Hope

Duarte, California, United States

Site Status

Mayo Clinic - Rochester

Rochester, Minnesota, United States

Site Status

Saint-Louis Hospital

Paris, Paris, France

Site Status

Archet 1 hospital, Department of Clinical Hematology

Nice, , France

Site Status

CHU de Saint-Etienne

Saint-Priest-en-Jarez, , France

Site Status

University General Hospital "Attikon"

Athens, Chaidari, Greece

Site Status

General Hospital of Athens "Evangelismos"

Athens, , Greece

Site Status

General Hospital of Thessaloniki "G. Papanikolaou", Hematology Department - BMT Unit

Thessaloniki, , Greece

Site Status

Hospital San Giuseppe Moscati

Avellino, , Italy

Site Status

Big Metropolitan Hospital Niguarda Regional Health Authority

Milan, , Italy

Site Status

ASST Monza - S. Gerardo Hospital

Monza, , Italy

Site Status

United Hospitals Villa Sofia Cervello

Palermo, , Italy

Site Status

University Polyclinic Foundation "Agostino Gemelli" - IRCCS

Roma, , Italy

Site Status

University Hospital Puerta de Hierro Majadahonda

Madrid, , Spain

Site Status

Countries

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United States France Greece Italy Spain

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Other Identifiers

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2023-510443-37-00

Identifier Type: CTIS

Identifier Source: secondary_id

2021-003157-27

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

Sobi.PEGCET-201

Identifier Type: -

Identifier Source: org_study_id

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