A Study to Evaluate the Efficacy and Safety of Pegcetacoplan in Patients With Cold Agglutinin Disease (CAD)

NCT ID: NCT05096403

Last Updated: 2025-10-30

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

24 participants

Study Classification

INTERVENTIONAL

Study Start Date

2022-10-20

Study Completion Date

2024-09-11

Brief Summary

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The purpose of the study is to determine the efficacy of pegcetacoplan administration compared to placebo in increasing hemoglobin (Hgb) level from baseline and avoiding transfusion in participants with primary cold agglutinin disease (CAD).

Detailed Description

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This is a blind (actual treatment not disclosed to Investigator or participant) study to study pegcetacoplan in people with cold agglutinin disease. The study will consist of a 4-week screening period where selected tests will be conducted to ensure that the patient is eligible to participate in the study, followed by Part A, a 24-week blinded treatment period where the participants will receive either pegcetacoplan or a placebo treatment, looking like pegcetacoplan but with no effect. After this period, the participants will move into Part B, a 24-week period where they will all receive pegcetacoplan. Part C is a 48-week maintenance period with pegcetacoplan for all participants. After the end of treatment participants will undergo a safety follow visit about 8 weeks after last dose.

All eligible study participants will receive pegcetacoplan or placebo treatment, administered via subcutaneous infusion twice a week at home. The subcutaneous infusion requires two small needles to be inserted into the fatty layer of tissue under the skin and the investigational medication will flow into the body. Study participants and/or caregivers will be trained on home administration of pegcetacoplan.

Conditions

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Cold Agglutinin Disease

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors

Study Groups

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Pegcetacoplan Double Blind During Part A

1080 mg, subcutaneous injection, twice weekly

Group Type ACTIVE_COMPARATOR

Pegcetacoplan

Intervention Type DRUG

Pegcetacoplan taken twice weekly as subcutaneous injection

Placebo Matching Pegcetacoplan-Double-blind During Part A

Sodium acetate, subcutaneous injection, twice weekly

Group Type PLACEBO_COMPARATOR

Placebo matching Pegcetacoplan

Intervention Type DRUG

Placebo matching pegcetacoplan taken twice weekly as subcutaneous injection

Open-label Pegcetacoplan During Parts B and C

1080 mg, subcutaneous injection, twice weekly

Group Type ACTIVE_COMPARATOR

Pegcetacoplan

Intervention Type DRUG

Pegcetacoplan taken twice weekly as subcutaneous injection

Open-label Pegcetacoplan (Placebo Matching Pegcetacoplan During Part A) During Parts B&C

Sodium acetate, subcutaneous injection, twice weekly

Group Type PLACEBO_COMPARATOR

Placebo matching Pegcetacoplan

Intervention Type DRUG

Placebo matching pegcetacoplan taken twice weekly as subcutaneous injection

Interventions

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Pegcetacoplan

Pegcetacoplan taken twice weekly as subcutaneous injection

Intervention Type DRUG

Placebo matching Pegcetacoplan

Placebo matching pegcetacoplan taken twice weekly as subcutaneous injection

Intervention Type DRUG

Other Intervention Names

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Aspaveli Empaveli

Eligibility Criteria

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Inclusion Criteria

1. Age 18 years or older.
2. Diagnosis of primary CAD.
3. Hb level ≤ 9 g/dL.
4. Documented results from bone marrow biopsy within 1 year of screening
5. Either have vaccination against Streptococcus pneumoniae, Neisseria meningitidis (Types A, C, W, Y, and B), and Haemophilus influenzae (Type B) within 2 years prior to screening or agree to receive vaccination during screening.
6. Women of childbearing potential (WOCBP), defined as any women who have experienced menarche and who are NOT permanently sterile or postmenopausal, must have a negative pregnancy test at screening and agree to use protocol-defined methods of contraception for the duration of the study and 8 weeks after their last investigational medicinal product (IMP) dose.
7. Men must agree to the following for the duration of the study and 8 weeks after their last IMP dose:

1. Avoid fathering a child.
2. Use protocol-defined methods of contraception.
3. Refrain from donating sperm.
8. Willing and able to give written informed consent.

Exclusion Criteria

1. Have received other anti-complement therapies (approved or investigational) within 5 half-lives of the agent prior to randomization.
2. Treatment with rituximab monotherapy within 12 weeks prior to randomization, or rituximab combination therapies (e.g., with bendamustine, fludarabine, other cytotoxic drugs or ibrutinib) within 16 weeks prior to randomization.
3. Diagnosis of systemic lupus erythematosus or other autoimmune diseases with antinuclear antibodies.
4. History of an aggressive lymphoma or presence of a lymphoma requiring therapy.
5. Have received an organ transplant.
6. Cold agglutinin syndrome secondary to Mycoplasma pneumoniae, Epstein-Barr virus or other specific causative infection.
7. Presence or suspicion of liver dysfunction as indicated by elevated alanine aminotransferase (ALT) \> 2.5 x upper limit of normal (ULN), or direct bilirubin levels \> 2 x ULN.
8. Inability to cooperate with study procedures.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Swedish Orphan Biovitrum

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Study physician

Role: STUDY_DIRECTOR

Swedish Orphan Biovitrum AB

Locations

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The Oncology Institute of Hope and Innovation

Whittier, California, United States

Site Status

Lakes Research

Miami Lakes, Florida, United States

Site Status

University of Iowa Hospitals & Clinics - The Hemophilia Treatment Center (HTC)

Iowa City, Iowa, United States

Site Status

Weill Cornell Medicine / NewYork Presbyterian Hospital

New York, New York, United States

Site Status

East Carolina University Division of Hematology/ Oncology

Greenville, North Carolina, United States

Site Status

Medical University

Vienna, , Austria

Site Status

Algemeen Ziekenhuis Klina

Brasschaat, , Belgium

Site Status

UZ Gasthuisberg

Leuven, , Belgium

Site Status

CHU de Liège

Liège, , Belgium

Site Status

St. Michael's Hospital

Toronto, , Canada

Site Status

Helsinki University Hospital - Comprehensive Cancer Center

Helsinki, , Finland

Site Status

"LTD Medinvest Institute of Hematology and Transfusiology "

Tbilisi, , Georgia

Site Status

Ltd M. Zodelava Hematology Centre

Tbilisi, , Georgia

Site Status

Universitätsklinikum Essen Klinik f. Hämatologie - Westdeutsches Tumorzentrum

Essen, , Germany

Site Status

Institut f. Transfusionsmedizin - Universität Ulm

Ulm, , Germany

Site Status

Semmelweis Egyetem

Budapest, , Hungary

Site Status

A.O.R.N. S.G. Moscati di Avellino

Avellino, , Italy

Site Status

ASST degli Spedali Civili di Brescia_Presidio Ospedaliero di Brescia_U.O. Ematologia

Brescia, , Italy

Site Status

"FOND IRCCS Cà Granda Ospedale Maggiore Policlinico

Milan, , Italy

Site Status

AOU Maggiore della Carità SCDU Ematologia

Novara, , Italy

Site Status

Azienda Ospedaliera Ospedali Riuniti ""Villa Sofia-Cervello

Palermo, , Italy

Site Status

Grande Ospedale Metropolitano ""Bianchi - Melacrino - Morellii

Reggio Calabria, , Italy

Site Status

Fukushima Medical University Hospital

Fukushima, , Japan

Site Status

University of Tsukuba Hospital

Ibaraki, , Japan

Site Status

Ishikawa Prefectural Central Hospital

Kanazawa, , Japan

Site Status

Aichi Medical University Hospital

Nagakute, , Japan

Site Status

Shinshu University Hospital

Nagano, , Japan

Site Status

Osaka University Hospital

Osaka, , Japan

Site Status

Amsterdam UMC

Amsterdam, , Netherlands

Site Status

Haukeland University Hospital

Bergen, , Norway

Site Status

Sykehuset Østfold Kalnes

Grålum, , Norway

Site Status

St Olavs Hospital, Avdeling for blodsykdommer

Trondheim, , Norway

Site Status

Hospital Clinic de Barcelona

Barcelona, , Spain

Site Status

Hospital Universitario de Gran Canaria Dr. Negrin

Las Palmas de Gran Canaria, , Spain

Site Status

Hospital Clínico Universitario de Salamanca

Madrid, , Spain

Site Status

Hospital Universitario Infanta Leonor

Madrid, , Spain

Site Status

Hospital Universitario La Paz

Madrid, , Spain

Site Status

Hospital Universitario Virgen del Rocio

Seville, , Spain

Site Status

Hospital Universitario y Politecnico La Fe

Valencia, , Spain

Site Status

St James' University Hospital

Leeds, , United Kingdom

Site Status

Royal London Hospital

London, , United Kingdom

Site Status

Cancer Clinical Trials Unit, Haematology -University College London -

London, , United Kingdom

Site Status

Russell Centre for Clinical Haematology

Nottingham, , United Kingdom

Site Status

Churchill Hospital

Oxford, , United Kingdom

Site Status

Countries

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United States Austria Belgium Canada Finland Georgia Germany Hungary Italy Japan Netherlands Norway Spain United Kingdom

Provided Documents

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Document Type: Study Protocol: Clinical Study Protocol v2.0

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Document Type: Study Protocol: Clinical Study Protocol v4.0

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Document Type: Study Protocol: Clinical Study Protocol v3.0

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Document Type: Study Protocol: Clinical Study Protocol v5.0

View Document

Document Type: Study Protocol: Clinical Study Protocol v1.0

View Document

Document Type: Statistical Analysis Plan: Statistical Analysis Plan v2.0

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Document Type: Statistical Analysis Plan: Statistical Analysis Plan v1.0

View Document

Other Identifiers

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Sobi.PEGCET-101

Identifier Type: -

Identifier Source: org_study_id

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