Race, Ethnicity, Socioeconomic Status and Prolapse-rElated Decisional ConflicT

NCT ID: NCT04977141

Last Updated: 2025-05-06

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

210 participants

Study Classification

OBSERVATIONAL

Study Start Date

2021-07-07

Study Completion Date

2024-05-01

Brief Summary

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This study is trying to see if people from different backgrounds have different feelings when making treatment decisions about prolapse.

Detailed Description

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This multi-center study will include patients ages \>18 years with prolapse symptoms who have new patient consultations to Female Pelvic Medicine and Reconstructive Surgery providers.

After the new-patient consultation, patients will be contacted to see if they are interested in the study. If so, informed consent will be obtained before they complete a 1 page questionnaire that assesses their eligibility for participation.

The questionnaires are: Decisional Conflict Scale; Pelvic Floor Disorders Autonomy Preference Index; Control Preferences Scale; Pelvic Floor Distress Inventory (PFDI 20); Satisfaction with Decision Scale for Pelvic Floor Disorders; Impression questionnaire.

Patients will self-identify their zip-code on the patient impression questionnaire. This will enable a geographic analysis that will assess the relationships of neighborhood and commute on decision making.

For the purposes of this study, patients will self-identify their demographic information.

URM patients will be those who self-identify as having a non-Caucasian race and/or a Hispanic ethnicity. Providers seeing patients that are included in this study will also be consented prior to completing a 1 time demographics questionnaire. Additional clinical data will also be obtained.

Patients will be able to utilize interpreters to participate. Information regarding the use of interpreters will be collected. Questionnaires that are available in, and validated in, non-English languages will be used as appropriate.

The lead study site is Women \& Infants Hospital/ Brown University, with additional study sites planning to participate in the study.

Conditions

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Pelvic Organ Prolapse Prolapse, Urogenital

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Under-represented minority

Non-English speaking and/or non-White

Decisional Conflict Scale

Intervention Type OTHER

Decisional Conflict Scale

Non-under-represented minority

English-speaking and/or White

Decisional Conflict Scale

Intervention Type OTHER

Decisional Conflict Scale

Interventions

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Decisional Conflict Scale

Decisional Conflict Scale

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Inclusion Criteria:

* Provider inclusion criteria consists of FPMRS providers at study sites seeing new patients with symptoms of pelvic organ prolapse. Patient inclusion criteria consists of new patients 18 years or older with symptoms of pelvic organ prolapse.

Exclusion Criteria:

* Provider exclusion criteria consists of providers who decline participation. Patient exclusion criteria consists of patients who decline participation, and those who cannot complete the study interventions with the assistance of an interpreter.
Minimum Eligible Age

18 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

Yes

Sponsors

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Fellows Pelvic Research Network (sponsor)

UNKNOWN

Sponsor Role collaborator

Northwestern University

OTHER

Sponsor Role collaborator

University of New Mexico

OTHER

Sponsor Role collaborator

University of California, Irvine

OTHER

Sponsor Role collaborator

University of South Florida

OTHER

Sponsor Role collaborator

Emory University

OTHER

Sponsor Role collaborator

University of Alabama at Birmingham

OTHER

Sponsor Role collaborator

Johns Hopkins University

OTHER

Sponsor Role collaborator

Women and Infants Hospital of Rhode Island

OTHER

Sponsor Role lead

Responsible Party

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Julia Shinnick

MD

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Julia K Shinnick, MD

Role: PRINCIPAL_INVESTIGATOR

Women & Infants Hospital

Locations

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Women & Infants Hospital

Providence, Rhode Island, United States

Site Status

Countries

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United States

Other Identifiers

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1674479

Identifier Type: -

Identifier Source: org_study_id

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