A Multi Center Study to Validate a Condition-specific Measure of Sexual Health in Women With Pelvic Floor Disorders

NCT ID: NCT00952406

Last Updated: 2015-12-14

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

877 participants

Study Classification

OBSERVATIONAL

Study Start Date

2009-08-31

Study Completion Date

2012-08-31

Brief Summary

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Study Aims:

1. To validate a new measure of sexual function and activity in women with PFDs;
2. To establish the responsiveness to change of the new measure.

The investigators hypothesis is that the investigators can create a new questionnaire that accurately measures sexual health in women with pelvic floor disorders that improves on the already published questionnaires.

Detailed Description

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600 women presenting for care to urogynecology clinics in the United States and England will be recruited to participate. They will give data regarding their physical exam, including measurements by the Pelvic Organ Prolapse Quantification exam and medical and surgical history. In addition, they will complete validated questionnaires including the Incontinence Severity Index, the Pelvic Floor Distress Inventory (short form) and question # 35 from the Epidemiology of Prolapse and Incontinence Questionnaire. All women will also complete two sexual health questionnaires; the Female Sexual Function Index and the Pelvic Organ Prolapse Urinary Incontinence Sexual Questionnaire (Revised). Women will receive standard care for their pelvic floor disorders. They will then be recontacted to repeat the same set of questionnaires to determine the responsiveness of the new measure. Reliability of the questionnaire will be measured by having a subset of women complete the questionnaire twice; a factor analysis will be performed to determine the underlying factor structure. Responses to the other QOL measures will be compared to those to the new instrument to establish validity.

Conditions

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Pelvic Floor Disorders Sexual Dysfunction Incontinence Pelvic Organ Prolapse

Keywords

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Pelvic Floor Disorders Sexual Function Incontinence Pelvic Organ Prolapse

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Survey of Women PFDs

Women with PFDs

Survey

Intervention Type OTHER

This is a study to develop a survey for sexual health in women with pelvic floor dysfunction

Interventions

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Survey

This is a study to develop a survey for sexual health in women with pelvic floor dysfunction

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Not pregnant.
* Able to read/write and understand English.
* And, because this is a project to validate a measure of female sexual function, all subjects will be women.
* All women will be seeking care for PFD including urinary and anal incontinence and POP. Since data collection will primarily be by mail
* Women must have a stable and current address.

Exclusion Criteria

* Women under the age of 18.
* Are pregnant or who are unable to read/write or understand English will not be eligible for participation.
* In addition, women with a diagnosis of vulvodynia, painful bladder syndrome, or chronic pelvic pain (defined as pelvic pain for greater than 6 months) as determined by the consenting physician will be excluded.
* Since this is a study to evaluate both sexual activity status as well as sexual function, women need not be sexually active to participate.
Minimum Eligible Age

18 Years

Maximum Eligible Age

100 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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International Urogynecological Society

OTHER

Sponsor Role lead

Responsible Party

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Rebecca G Rogers

Principal Investigator

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Rebecca G Rogers, MD

Role: PRINCIPAL_INVESTIGATOR

University of New Mexico Health Sciences Center

Locations

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UCSD women's Pelvic Medicine Center

San Diego, California, United States

Site Status

Northwestern University Feinburg School of Medicine

Evanston, Illinois, United States

Site Status

MetroUrology

Minneapolis, Minnesota, United States

Site Status

University of New Mexico

Albuquerque, New Mexico, United States

Site Status

Women's Pelvic Speciality Care PC

Albuquerque, New Mexico, United States

Site Status

Center for Female Sexual Health

Cincinnati, Ohio, United States

Site Status

Cleveland Clinic Lerner College of Medicine

Cleveland, Ohio, United States

Site Status

Genesis Health System

Zanesville, Ohio, United States

Site Status

Geisinger Health Systems

Danville, Pennsylvania, United States

Site Status

Chelsea and Westminster Hospital

London, , United Kingdom

Site Status

The Warrell Unit, Whitworth Park

Manchester, , United Kingdom

Site Status

Northwick Park and St Marks Hospital

Middlesex, , United Kingdom

Site Status

Royal Hallamshire Hospital

Sheffield, , United Kingdom

Site Status

Mayday University Hospital

Surrey, , United Kingdom

Site Status

Countries

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United States United Kingdom

References

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Rogers RG, Espuna Pons ME. The Pelvic Organ Prolapse Incontinence Sexual Questionnaire, IUGA-revised (PISQ-IR). Int Urogynecol J. 2013 Jul;24(7):1063-4. doi: 10.1007/s00192-012-1952-3. Epub 2013 Apr 30. No abstract available.

Reference Type BACKGROUND
PMID: 23632797 (View on PubMed)

Kanter G, Jeppson PC, McGuire BL, Rogers RG. Perineorrhaphy: commonly performed yet poorly understood. A survey of surgeons. Int Urogynecol J. 2015 Dec;26(12):1797-801. doi: 10.1007/s00192-015-2762-1. Epub 2015 Jul 4.

Reference Type RESULT
PMID: 26142348 (View on PubMed)

Rockwood TH, Constantine ML, Adegoke O, Rogers RG, McDermott E, Davila GW, Domoney C, Jha S, Kammerer-Doak D, Lukacz ES, Parekh M, Pauls R, Pitkin J, Reid F, Ridgeway B, Thakar R, Sand PK, Sutherland SE, Espuna-Pons M. The PISQ-IR: considerations in scale scoring and development. Int Urogynecol J. 2013 Jul;24(7):1105-22. doi: 10.1007/s00192-012-2037-z. Epub 2013 Apr 30.

Reference Type RESULT
PMID: 23632799 (View on PubMed)

Rogers RG, Rockwood TH, Constantine ML, Thakar R, Kammerer-Doak DN, Pauls RN, Parekh M, Ridgeway B, Jha S, Pitkin J, Reid F, Sutherland SE, Lukacz ES, Domoney C, Sand P, Davila GW, Espuna Pons ME. A new measure of sexual function in women with pelvic floor disorders (PFD): the Pelvic Organ Prolapse/Incontinence Sexual Questionnaire, IUGA-Revised (PISQ-IR). Int Urogynecol J. 2013 Jul;24(7):1091-103. doi: 10.1007/s00192-012-2020-8. Epub 2013 Apr 30.

Reference Type RESULT
PMID: 23632798 (View on PubMed)

Pauls RN, Rogers RG, Parekh M, Pitkin J, Kammerer-Doak D, Sand P. Sexual function in women with anal incontinence using a new instrument: the PISQ-IR. Int Urogynecol J. 2015 May;26(5):657-63. doi: 10.1007/s00192-014-2563-y. Epub 2014 Nov 13.

Reference Type RESULT
PMID: 25392184 (View on PubMed)

Other Identifiers

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IUGA -1 - 09

Identifier Type: -

Identifier Source: org_study_id