Assessment of the State of Health, Quality of Life and Expectations of Patients With Hereditary Angioedema
NCT ID: NCT04888650
Last Updated: 2023-05-10
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
314 participants
OBSERVATIONAL
2021-05-03
2022-01-02
Brief Summary
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Main objective is to know the needs and the current satisfaction of the needs, with regard to the disease and the treatment of the targeted patients of hereditary angioedema (HAE)
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Detailed Description
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Conditions
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Study Design
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CASE_ONLY
PROSPECTIVE
Study Groups
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angiodema hereditary patients
Patient with HAE with or without C1 inhibitor deficiency will respond to an electronic questionnaire
questionnaire
electronic questionnaire
Interventions
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questionnaire
electronic questionnaire
Eligibility Criteria
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Inclusion Criteria
* Patient over 15 or parents of a child under 15 with HAE
Exclusion Criteria
* Adult patients protected by law
ALL
No
Sponsors
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University Hospital, Grenoble
OTHER
Responsible Party
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Locations
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CHUGA
Grenoble, , France
Countries
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Other Identifiers
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38RC21.054
Identifier Type: -
Identifier Source: org_study_id
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