Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts
NCT ID: NCT04158284
Last Updated: 2024-03-07
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
90 participants
OBSERVATIONAL
2019-10-01
2024-06-30
Brief Summary
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Detailed Description
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Conditions
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Study Design
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COHORT
PROSPECTIVE
Eligibility Criteria
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Inclusion Criteria
2. Age at diagnosis 18 years or less of age
3. Agreement from patient's parents or legal guardian as well as the patient
Exclusion Criteria
2. Diagnosis different from craniopharyngioma
1 Day
18 Years
ALL
No
Sponsors
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German Society for Pediatric Oncology and Hematology GPOH gGmbH
OTHER
Deutsche Gesellschaft für Kinderendokrinologie und Diabetologie (DGKED)
UNKNOWN
Deutsche Gesellschaft für Endokrinologie (DGE)
UNKNOWN
Arbeitsgemeinschaft Pädiatrische Radioonkologie (APRO)
UNKNOWN
Deutschen Gesellschaft für Radioonkologie (DEGRO)
UNKNOWN
Klinikum Oldenburg gGmbH
OTHER
Responsible Party
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Prof. Dr. med. Hermann Mueller
Professor MD
Locations
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Klinikum Oldenburg
Oldenburg, Lower Saxony, Germany
Countries
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Central Contacts
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Facility Contacts
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References
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Sowithayasakul P, Beckhaus J, Ozyurt J, Bison B, Friedrich C, Muller HL. Prolactin serum concentrations in childhood-onset craniopharyngioma patients. J Endocrinol Invest. 2025 Sep;48(9):2041-2051. doi: 10.1007/s40618-025-02622-4. Epub 2025 Jun 7.
Mann-Markutzyk LV, Beckhaus J, Ozyurt J, Mehren A, Friedrich C, Muller HL. Daytime sleepiness and health-related quality of life in patients with childhood-onset craniopharyngioma. Sci Rep. 2025 Mar 19;15(1):9407. doi: 10.1038/s41598-025-94384-5.
Wagener K, Beckhaus J, Boekhoff S, Friedrich C, Muller HL. Sporadic and neurofibromatosis type 2-associated meningioma in children and adolescents. J Neurooncol. 2023 Jul;163(3):555-563. doi: 10.1007/s11060-023-04344-0. Epub 2023 Jul 4.
Beckhaus J, Friedrich C, Boekhoff S, Calaminus G, Bison B, Eveslage M, Timmermann B, Flitsch J, Muller HL. Outcome after pediatric craniopharyngioma: the role of age at diagnosis and hypothalamic damage. Eur J Endocrinol. 2023 Mar 2;188(3):lvad027. doi: 10.1093/ejendo/lvad027.
Other Identifiers
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KRANIOPHARYNGEOM Registry 2019
Identifier Type: -
Identifier Source: org_study_id
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