North Health in Intellectual Disability

NCT ID: NCT03889002

Last Updated: 2020-04-06

Basic Information

• Recruitment Status: COMPLETED
• Total Enrollment: 214 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2017-10-01
• Study Completion Date: 2019-12-09

Brief Summary

Intellectual disability (ID) is a diagnosis characterized by significant limitations both in intellectual functioning and in adaptive behavior as expressed in conceptual, social and practical adaptive skills. The disability originates before age 18 years. People with IDs will often require health- and social services throughout their lifetimes. Studies report worse health among people with IDs compared to the general population, in addition to more unmet healthcare needs and more difficulty accessing healthcare. There are also concerns about low levels of physical activity in this population.

In general health surveys in Norway do not include people with intellectual disabilities, and studies of health indicators in this group are largely lacking. Further, the unique organization of services for this group in Norway calls for specific research efforts. This project will use multinational health indicators for youths and adults with IDs in a biopsychosocial context in attempt to identify unmet health care needs to improve services. In addition to a description of the health indicators, the objective of this project is delimited to assess the health determinant physical activity level in association with body mass index (BMI) and functioning.

Detailed Description

People with IDs are experiencing more illnesses and approximately 80% of adults 50 years or older have multimorbidities. To improve services, information about health care provision should be complemented with knowledge about the health situation and functioning in a community-based setting.

The main objectives of this study are to describe health indicators in a Norwegian population of youths and adults with IDs in relation to age, and to assess the associations between the health determinant physical activity and body mass index, physical function, activities and social participation in youths and adults with IDs.

Assessments of physical and mental health indicators, and aspects of activities and social participation according to International Classification of Functioning, Disability and Health (ICF), in relation to health determinants and unmet healthcare needs in a cross-sectional health screening survey.

The prevalence of suitable health indicators will be compared to studies in this area and from the following Norwegians population based studies: the "Tromsø-study", the "HUNT" study and the "NORSE study".

The following articles will be published as part of this project:

1. A feasibility study of the use of tests like the Short Physical Performance Battery.

2. An overview of the health indicators among youths and adults with intellectual disabilities in Norway, in relation to age groups.

3. Presentation of levels and predictors for physical activity, as well as body mass index, in youths and adults with IDs.

4. Presentation of functioning (daily activities and work) in association to levels of physical activity.

Conditions

Intellectual Disabilities (F70-F79)

Study Design

• Observational Model Type: ECOLOGIC_OR_COMMUNITY
• Study Time Perspective: CROSS_SECTIONAL

Eligibility Criteria

Inclusion Criteria

• Clinical diagnosis of intellectual disability
• Age 16 or older and providing consent to participate.

Exclusion Criteria

-

• Minimum Eligible Age: 16 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: Yes

Sponsors

Norwegian Extra Foundation for Health and Rehabilitation

OTHER

Sponsor Role: collaborator

The Norwegian Association for Persons with Developmental Disabilities

UNKNOWN

Sponsor Role: collaborator

University of Tromso

OTHER

Sponsor Role: collaborator

Norwegian University of Science and Technology

OTHER

Sponsor Role: collaborator

Research Centre for Habilitation and Rehabilitation Models and Services

UNKNOWN

Sponsor Role: collaborator

Norwegian Centre for Ageing and Health

OTHER

Sponsor Role: collaborator

University Hospital of North Norway

OTHER

Sponsor Role: lead

Responsible Party

Responsibility Role: SPONSOR

Principal Investigators

Audny Anke, MD, professor

Role: PRINCIPAL_INVESTIGATOR

University Hospital of North Norway, Sykehusveien 38, 9038 Tromsø

Locations

University Hospital of North Norway

Tromsø, , Norway

Countries

Norway

References

Olsen MI, Sondenaa E, Langballe EM, Halvorsen MB, Wilhelmsen P, Bautz-Holter E, Anke A. Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels. J Intellect Dev Disabil. 2023 Jun;48(2):172-183. doi: 10.3109/13668250.2022.2109823. Epub 2022 Oct 18.

Reference Type: DERIVED

PMID: 39815906 (View on PubMed)

Other Identifiers

2017/811

Identifier Type: -

Identifier Source: org_study_id