The Dementia Study in Northern Norway

NCT ID: NCT00443014

Last Updated: 2011-11-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE4

Total Enrollment

187 participants

Study Classification

INTERVENTIONAL

Study Start Date

2003-06-30

Study Completion Date

2009-06-30

Brief Summary

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The Dementia Study in Northern Norway is an open controled intervention trial carried out in nine rural municipalities, five of which allocated to intervention and four to control. A RCT with donepezil and placebo is superimposed on all patients included in the study. In this way the study has a 2x2 factorial design. The outcome measures are changes in cognitive performance and ADL function measured by standardized cognitive and neuropsychological tests every four months during a one-year follow-up.

The main goal of this study is to examine the effect of systematically and individually adjusted stimulation therapy on cognitive function in patients having recent diagnoses of Alzheimer´s disease (AD).

A secondary goal is to examine whether or not ChEI has an additional effect on cognitive function superimposed on stimulation therapy.

From January 2006 to 31th March 2008 187 patients with a recent diagnosis of dementia were included. Patients were recruited by GPs in routine practice (n=87) and by a population based screening (n=100).Screening recruited younger patients with a higher MMSE-score, and relatively more men. All over, women were older and at a more serious disease stage. After age adjusting significantly more women were living single and required more supports from the community nursery.

Detailed Description

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Nine municipalities with 11807 inhabitants 65 years and older were allocated to intervention or control, five and four municipalities in each group, respectively. A panel of psychiatric nurses, university lecturers and members of the competence centre of dementia in Northern Norway have worked out a program of stimulation therapy adjusted to each participant taking the stage of functional impairment, education level and work experience into consideration. The individual stimulation program is selected and implemented, based on the life history for each patient, and carried out for a minimum of 30 minutes 5 days a week in the intervention group, as compared to the control group receiving routine care. The individual stimulation program was monitored and adjusted during the period of intervention. All patients included in the nine municipalities were randomized to donepezil or placebo in a double blind manner.

Consequently, the present study has a double design; - an open prospective non-pharmaceutical intervention with control group, to which a double blind and randomized placebo-controlled trial is superimposed (2x2 factorial design). Each patient have been followed-up for one year. The clinical period was three years, two of them allocated recruitment and the third to secure a one-year intervention for all participants.

The Progress of the Study The recruitment of patients through routine general practice has not been successful. The participating general practitioners (GP) rarely examined patients suffering from cognitive impairment. Sometimes patients with a presumptive diagnosis of dementia were prescribed cholinesterase inhibitors (ChEI) without a preceding clinical examination. As a result of this lack of corporation only 27 patients were recruited to the study during the first year. During the subsequent six months some of the nine participating municipalities reorganized their caring routines for patients suffering from dementia. More patients were examined and diagnosed and another 60 patients were recruited to the study.

As a consequence of the unsatisfactory progress in recruiting patients to the study by GPs in routine clinical practice, the study protocol was changed and the recruiting procedures were supplemented by a population-based screening. The study population (65 years+) was invited to attend the survey by responding to and return a postal questionnaire containing five simple questions regarding memory and cognitive deficits. The screening program was accomplished in June 2007 with a response rate of approximately 32 % for self-reported memory deficits. An algorithm categorizes the responders. Those belonging to the category with the highest risk of having a diagnosis of dementia were invited to a clinical examination carried out by physicians from the study administration. Those fulfilling the inclusion criteria were then asked to be included in this Dementia Study in Northern-Norway.

More than 700 responders answered NO to the five questions about cognitive impairment but YES to a question about participating in the study. From this group of presumptively cognitive healthy people we randomly draw a sample of 500 persons who was invited to participate in a control group for the AD participants. Of these 200 individuals were confirmed cognitively healthy and included in the control group. The two groups have been compared according to clinical data, co-morbidity and drug consumption. A biobank containing whole blood, plasma and serum from AD participants and the cognitively healthy control group is established.

The stimulation program was executed as presupposed, and the randomisation procedures and administration of the medical treatment (placebo/donepezil) has been accomplished without any problems.

The following papers have been published in BMC Methodology and in BMC Geriatrics:

http://www.biomedcentral.com/1471-2318/11/58

http://www.biomedcentral.com/1471-2288/10/35

Conditions

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Alzheimer Disease

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

FACTORIAL

Primary Study Purpose

TREATMENT

Blinding Strategy

DOUBLE

Investigators Outcome Assessors

Study Groups

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A Cognitive stimulation therapy

Patients with recently diagnosed dementia in five of the study municipality.

Group Type EXPERIMENTAL

Cognitive, physical and social stimulation

Intervention Type DEVICE

Sessions of 30 minutes daily five days a week for one year

B Care as usual

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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Cognitive, physical and social stimulation

Sessions of 30 minutes daily five days a week for one year

Intervention Type DEVICE

Eligibility Criteria

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Inclusion Criteria

* Subject aged 65-94 years with a recent diagnosed AD and without any contraindications for the use of donepezil.
* A MMSE sum score has to be at least10 points

Exclusion Criteria

* Behavioural disturbance which make cooperation and cognitive testing impossible.
* Individuals with reduced approval competence expressing any reluctance to participate are excluded, as well as those not understanding the purpose of the study and who have relatives or care givers disapproving participation.
* Individuals having a diagnosis of dementia treated with CheI at entry are also excluded.
Minimum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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County Officer of Nordland, Moloveien 2, 8006 Bodø, Norway

UNKNOWN

Sponsor Role collaborator

Norwegian Foundation for Health and Rehabilitation

OTHER

Sponsor Role collaborator

Norwegian Department of Health and Social Affairs

OTHER_GOV

Sponsor Role collaborator

University Hospital of North Norway

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Fred Andersen, MD GP

Role: PRINCIPAL_INVESTIGATOR

University of Northern Norway

Torgeir Engstad, MD, PhD

Role: STUDY_DIRECTOR

University of Northern Norway

Locations

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Arran Lulesami Centre

Drag, Nordland, Norway

Site Status

Countries

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Norway

References

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Graff MJ, Vernooij-Dassen MJ, Thijssen M, Dekker J, Hoefnagels WH, Rikkert MG. Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial. BMJ. 2006 Dec 9;333(7580):1196. doi: 10.1136/bmj.39001.688843.BE. Epub 2006 Nov 17.

Reference Type BACKGROUND
PMID: 17114212 (View on PubMed)

Andersen F, Viitanen M, Halvorsen DS, Straume B, Wilsgaard T, Engstad TA. The effect of stimulation therapy and donepezil on cognitive function in Alzheimer's disease. A community based RCT with a two-by-two factorial design. BMC Neurol. 2012 Jul 19;12:59. doi: 10.1186/1471-2377-12-59.

Reference Type DERIVED
PMID: 22813231 (View on PubMed)

Andersen F, Engstad TA, Straume B, Viitanen M, Halvorsen DS, Hykkerud S, Sjobrend K. Recruitment methods in Alzheimer's disease research: general practice versus population based screening by mail. BMC Med Res Methodol. 2010 Apr 29;10:35. doi: 10.1186/1471-2288-10-35.

Reference Type DERIVED
PMID: 20429946 (View on PubMed)

Related Links

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http://dsnn.no

Related Info

Other Identifiers

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200201054-12/12BMA2/400

Identifier Type: -

Identifier Source: org_study_id