Study to Assess the Effect of Long-term Treatment With Voxelotor in Participants Who Have Completed Treatment in Study GBT440-031

NCT ID: NCT03573882

Last Updated: 2025-11-18

Study Results

Results available

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Basic Information

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Recruitment Status

TERMINATED

Clinical Phase

PHASE3

Total Enrollment

179 participants

Study Classification

INTERVENTIONAL

Study Start Date

2018-06-06

Study Completion Date

2024-11-12

Brief Summary

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Open Label Extension Study of Voxelotor Clinical Trial Participants with Sickle Cell Disease Who Participated in Voxelotor Clinical Trials

Detailed Description

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This open label extension (OLE), multi-center study will be conducted at approximately 100 clinical sites globally and will be available to eligible participants from study GBT440-031.

The study will enroll participants from GBT440-031 (approximately 435) under any of the following conditions:

* Participant has completed 72 weeks of treatment regardless of dose selection for GBT440-031
* Dose selection has occurred for GBT440-031 and participant is on non-selected dose on GBT440-031
* GBT440-031 study interim data analysis and/or study modifications have occurred
* GBT440-031 study has completed

The objective of this open-label extension (OLE) study is to assess the long-term safety and treatment effect of voxelotor in participants who have completed treatment in study GBT440-031, using the following parameters:

1. Safety based upon AEs, clinical laboratory tests, physical examinations (PE) and other clinical measures.
2. Frequency of sickle cell disease (SCD)-related complications.
3. Hemolytic anemia as measured by hematological laboratory parameters (e.g. hemoglobin, reticulocytes and unconjugated bilirubin).

All participants will receive daily voxelotor treatment.

Participants may receive study drug as long they continue to receive clinical benefit which outweighs risk as determined by the Investigator and/or until the participant has access to voxelotor from an alternative source (i.e., commercialization or through a managed access program).

Conditions

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Sickle Cell Disease

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Voxelotor

Participants will receive voxelotor (GBT440) at the highest dose (either 900 mg or 1500 mg) deemed safe by the Data Safety Monitoring Board (DSMB).

Group Type OTHER

Voxelotor

Intervention Type DRUG

300mg or 500mg Tablet, Oral, With or Without Food

Interventions

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Voxelotor

300mg or 500mg Tablet, Oral, With or Without Food

Intervention Type DRUG

Other Intervention Names

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GBT440

Eligibility Criteria

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Inclusion Criteria

* Male or female study participants with SCD who participated and received study treatment in Study GBT440-031.

Note: Participants in GBT440-031 who discontinued study drug due to an AE, but who remained on study may be eligible for treatment in this study provided the AE does not pose a risk for treatment with voxelotor.

* Females of child-bearing potential are required to have a negative urine pregnancy test prior to dosing on Day 1.
* Female participants of child-bearing potential must use highly effective methods of contraception to 30 days after the last dose of study drug. Male participants must use barrier methods of contraception to 30 days after the last dose of study drug.
* Participant has provided written informed consent or assent (the ICF must be reviewed and signed by each participant; in the case of pediatric participants, both the consent of the participant's legal representative or legal guardian, and the participant's assent must be obtained).

Exclusion Criteria

* Female who is breast-feeding or pregnant.
* Participant withdrew consent from Study GBT440-031.
* Participant was lost to follow-up from Study GBT440-031.
* Participant requiring chronic dialysis.
* Any medical, psychological, safety, or behavioral conditions, which, in the opinion of the Investigator, may confound safety interpretation, interfere with compliance, or preclude informed consent.
Minimum Eligible Age

12 Years

Maximum Eligible Age

65 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Pfizer

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Pfizer CT.gov Call Center

Role: STUDY_DIRECTOR

Pfizer

Locations

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Arkansas Primary Care Clinic, PA

Little Rock, Arkansas, United States

Site Status

UCSF Benioff Children's Hospital Oakland

Oakland, California, United States

Site Status

Jackson Memorial Hospital (Investigational Drug Services)

Miami, Florida, United States

Site Status

Jackson Memorial Hospital

Miami, Florida, United States

Site Status

University of Miami Hospital & Clinics/SCCC, Research Pharmacy (Investigational Drug Services)

Miami, Florida, United States

Site Status

University of Miami

Miami, Florida, United States

Site Status

Children's Healthcare of Atlanta - Scottish Rite

Atlanta, Georgia, United States

Site Status

University of Illinois at Chicago Clinical Research Center

Chicago, Illinois, United States

Site Status

University of Illinois Hospital and Health Science System

Chicago, Illinois, United States

Site Status

Indiana Hemophilia and Thrombosis Center

Indianapolis, Indiana, United States

Site Status

St. Jude Affiliate Clinic Baton Rouge

Baton Rouge, Louisiana, United States

Site Status

Our Lady of the Lake Physician Group-Medical Oncology

Baton Rouge, Louisiana, United States

Site Status

University Medical Center New Orleans

New Orleans, Louisiana, United States

Site Status

Johns Hopkins University/Sickle Cell Infusion Center

Baltimore, Maryland, United States

Site Status

Brigham and Women's Hospital

Boston, Massachusetts, United States

Site Status

Brigham and Women's Hospital Research Pharmacy

Boston, Massachusetts, United States

Site Status

Dana Farber Cancer Institute

Boston, Massachusetts, United States

Site Status

Children's Hospital of Michigan

Detroit, Michigan, United States

Site Status

Newark Beth Israel Medical Center

Newark, New Jersey, United States

Site Status

Columbia University Medical Center - Herbert Irving Pavilion

New York, New York, United States

Site Status

Montefiore - Einstein Center for Cancer Care

The Bronx, New York, United States

Site Status

UNC Hospitals

Chapel Hill, North Carolina, United States

Site Status

Clinical and Translational Research Center (CTRC)

Chapel Hill, North Carolina, United States

Site Status

Duke University Medical Center

Durham, North Carolina, United States

Site Status

Investigational Drug Service, Duke University Hospital

Durham, North Carolina, United States

Site Status

Lynn Health Science Institute

Oklahoma City, Oklahoma, United States

Site Status

Thomas Jefferson University

Philadelphia, Pennsylvania, United States

Site Status

University of Pittsburgh Medical Center (UPMC)

Pittsburgh, Pennsylvania, United States

Site Status

Medical University of South Carolina - Comprehensive Sickle Cell Clinic

Charleston, South Carolina, United States

Site Status

Medical University of South Carolina: Investigational Drug Services Pharmacy

Charleston, South Carolina, United States

Site Status

Methodist Comprehensive Sickle Cell Clinic

Memphis, Tennessee, United States

Site Status

Texas Children's Hospital - Investigational Pharmacy

Houston, Texas, United States

Site Status

Texas Children's Hospital

Houston, Texas, United States

Site Status

Clinical Research Services Unit- Virginia Commonwealth University

Richmond, Virginia, United States

Site Status

Toronto General Hospital-University Health Network

Toronto, Ontario, Canada

Site Status

Alexandria Clinical Research Center, Faculty of Medicine, Alexandria University

Alexandria, , Egypt

Site Status

Alexandria Clinical Research Center, Faculty of Medicine

Alexandria, , Egypt

Site Status

Zagazig University Hospital

Alsharkia, , Egypt

Site Status

Abu El Rich Hospital,Cairo University Hospital

Cairo, , Egypt

Site Status

Ain Shams University Hospital

Cairo, , Egypt

Site Status

The Egyptian Thalassemia Association ( E.T.A)

Cairo, , Egypt

Site Status

Hôpital Européen Georges Pompidou - Medecine Interne

Paris, , France

Site Status

Azienda Ospedaliera di Padova

Padua, Padova Veneto, Italy

Site Status

Centres for Disease Control and Prevention

Siaya, Kisumu County, Kenya

Site Status

KEMRI/CRDR - Kenya Medical Research Insititute - Center for respiratory Disease Research

Nairobi, , Kenya

Site Status

Gertrude's Children's Hospital

Nairobi, , Kenya

Site Status

American University of Beirut

Beirut, , Lebanon

Site Status

Nini Hospital

Tripoli, , Lebanon

Site Status

Academic Medical Center(AMC)

Amsterdam, , Netherlands

Site Status

ErasmusMC

Rotterdam, , Netherlands

Site Status

Sultan Qaboos University Hospital

Muscat, , Oman

Site Status

Adana Acibadem Hospital

Adana, , Turkey (Türkiye)

Site Status

Erciyes Universitesi Tip Fakultesi

Kayseri, , Turkey (Türkiye)

Site Status

Mersin Universitesi Tip Fakultesi Saglik Arastirma ve Uygulama Hastanesi

Mersin, , Turkey (Türkiye)

Site Status

Barts Health NHS Trust

London, Greater London, United Kingdom

Site Status

Homerton University Hospital NHS Foundation Trust

London, Greater London, United Kingdom

Site Status

Guys and St. Thomas Hospital NHS Foundation Trust

Great Maze Pond, London, United Kingdom

Site Status

King's College Hospital

London, , United Kingdom

Site Status

Imperial College Healthcare NHS Trust, Hammersmith Hospital

London, , United Kingdom

Site Status

McMillan Cancer Centre

London, , United Kingdom

Site Status

Countries

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United States Canada Egypt France Italy Kenya Lebanon Netherlands Oman Turkey (Türkiye) United Kingdom

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Related Links

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https://pmiform.com/clinical-trial-info-request?StudyID=GBT440-034

To obtain contact information for a study center near you, click here.

Other Identifiers

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GBT440-034

Identifier Type: -

Identifier Source: org_study_id

C5341022

Identifier Type: OTHER

Identifier Source: secondary_id

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