SHARE (Sharing Goals and Preferences) Study

NCT ID: NCT03392090

Last Updated: 2022-03-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

53 participants

Study Classification

INTERVENTIONAL

Study Start Date

2018-07-23

Study Completion Date

2022-03-15

Brief Summary

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This research study is evaluating the usefulness of a video and questionnaire to help cancer patients think about the goals of their care.

Detailed Description

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The investigators are conducting a study with patients from Dana Farber Cancer Institute (DFCI) and DFCI-affiliate at St. Elizabeth's Hospital who are being treated for their cancer. The purpose of the study is to test the implementation of a short video, a brief questionnaire, and a wallet card designed to help patients understand and articulate their goals and preferences when making decisions about their cancer treatment and communicate these preferences to their clinicians.

The short video and brief questionnaire were developed to help patients with cancer think about their goals of care and their treatment and information preferences and to prompt discussions with their health care team about these preferences. The wallet card is designed to help patients remember some key questions that may be useful as they make decisions about future treatments

A pilot test will be completed to assess the feasibility and usability of the revised "More Good Days" video, brief questionnaire and wallet card in helping seriously-ill cancer patients think about what a good day means to them and test whether these tools can help patients to identify and communicate their medical treatment preferences and goals with their care team.

Conditions

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Other Cancer

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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More Good Days video&brief questionnaire

* Participants will watch the More Good Days video and will be given a brief questionnaire and wallet card to help identify their goals and preferences about information and care
* The More Good Days video is developed to help patients with advanced cancer think about what a good day means to them and to help them think about questions they may have for their physicians when discussing treatments.
* The 3-page brief questionnaire is designed to help patients identify their preferences about information and care and to help encourage a conversation between patients and their doctors and health care team about their goals and preferences
* The wallet card will help patients think about questions they may want to ask their providers when considering treatments.

Group Type EXPERIMENTAL

More Good Days video&brief questionnaire

Intervention Type OTHER

Help patients with advanced cancer think about what a good day means to them and to help them think about questions they may have for their physicians when discussing treatments

Interventions

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More Good Days video&brief questionnaire

Help patients with advanced cancer think about what a good day means to them and to help them think about questions they may have for their physicians when discussing treatments

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Patient who are receiving treatment at:

* DFCI in the thoracic oncology group
* DFCI-affiliated St. Elizabeth's Hospital and have progressed on 2nd line or later-line systemic therapies (chemotherapy, immunotherapy, biological, or targeted therapies)
* Clinicians' schedules to identify patients with metastatic cancers who are considering or pursuing additional palliative therapy

Exclusion Criteria

* Patients who are not interested in the study
* Patients of physicians who opt out of participating
* Patients whose physicians did not opt out, but whose physician does not think they are well suited for the study
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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American Cancer Society, Inc.

OTHER

Sponsor Role collaborator

Harvard Medical School (HMS and HSDM)

OTHER

Sponsor Role collaborator

Dana-Farber Cancer Institute

OTHER

Sponsor Role lead

Responsible Party

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Nancy L. Keating

Principal Investigator

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Nancy L Keating, MD

Role: PRINCIPAL_INVESTIGATOR

Harvard Medical School (HMS and HSDM)

Locations

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Dana Farber Cancer Institute at St Elizabeth

Boston, Massachusetts, United States

Site Status

Nancy Keating

Boston, Massachusetts, United States

Site Status

Dana Farber Cancer Institute

Boston, Massachusetts, United States

Site Status

Countries

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United States

References

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Wright AA, Thompson E, Nguyen MV, Wescott P, Barry MJ, Lathan CS, Keating NL. The SHARE Study: Pilot Study of a Communication Intervention Designed to Elicit Advanced-Stage Cancer Patients' Preferences and Goals. J Palliat Med. 2022 Nov;25(11):1646-1654. doi: 10.1089/jpm.2021.0655. Epub 2022 Jun 23.

Reference Type DERIVED
PMID: 35736783 (View on PubMed)

Other Identifiers

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17-520

Identifier Type: -

Identifier Source: org_study_id

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