Study of Barriers to Beginning and Finishing Treatment for Patients With Breast Cancer

NCT ID: NCT00937989

Last Updated: 2015-06-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

52 participants

Study Classification

INTERVENTIONAL

Study Start Date

2008-11-30

Study Completion Date

2011-05-31

Brief Summary

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RATIONALE: Gathering information about barriers to receiving breast cancer treatment may help doctors learn more about improving the treatment process and improve patients' quality of life.

PURPOSE: This clinical trial is studying barriers to beginning and finishing treatment for patients with breast cancer.

Detailed Description

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OBJECTIVES:

* Identify barriers of receiving primary breast cancer treatment for older patients with either Medi-Cal insurance or who are 65 years of age and older.
* Describe steps and processes involved in resolution of barriers to receiving primary breast cancer treatment for these patients.
* Identify barriers of receiving primary breast cancer treatment for patients who are Hispanic with either Medi-Cal insurance or aged 65 years and older.
* Describe steps and processes involved in resolution of barriers to receiving primary breast cancer treatment for these Hispanic patients.
* Describe breast cancer participants' perceptions of Patient Navigation.
* Demonstrate the significant role of a Patient Navigator in identifying and resolving barriers to treatment.
* Increase opportunities for participation of breast cancer patients with either Medi-Cal insurance or who are 65 years of age and older, or who are Hispanic, to breast cancer clinical trials.
* Integrate a patient navigation program within City of Hope designed to support underserved patients during primary treatment for breast cancer.

OUTLINE: For the first 3 months of the study, medical charts are reviewed.

Beginning in month 4, patients are introduced to the Patient Navigator who provides them with telephone and e-mail contact on an Appointment Reminder Card, and develops a plan for eliminating identified barriers and/or addressing immediate concerns. Patients' plans may include contacting others on behalf of the patient, coaching the patient on how to solve a problem, referring to resources within City of Hope (COH) or in the community, and investigating possible solutions. Patients are also oriented to COH's services, open clinical trials, and resources. Navigation of care includes assistance during initial and ongoing evaluations by all cancer specialists, during initiation and completion of all primary treatment, and through the first post-treatment follow up. Patients are contacted weekly for 8 weeks of the study and at least once a month for 9 months.

The Patient Navigator will track identified barriers, processes to resolution, and time required to resolve barriers.

Patients complete questionnaires at baseline, and periodically during study, on socio-demographic, quality of life, resource-use satisfaction, and satisfaction with care and Patient Navigator.

After completion of study intervention, patients continue to receive Patient Navigator support for up to 30 days.

Conditions

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Breast Cancer

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

HEALTH_SERVICES_RESEARCH

Blinding Strategy

NONE

Interventions

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educational intervention

Occurs weekly during the first 8 weeks of the study and thereafter a minimum of monthly through the 9th month of the study.

Intervention Type OTHER

informational intervention

Occurs weekly during the first 8 weeks of the study and thereafter a minimum of monthly through the 9th month of the study.

Intervention Type OTHER

medical chart review

Baseline, 3, 6 and 9 months after starting the study

Intervention Type OTHER

questionnaire administration

Baseline, 3, 6 and 9 months after starting the study

Intervention Type OTHER

study of socioeconomic and demographic variables

Baseline, 3, 6 and 9 months after starting the study

Intervention Type OTHER

quality-of-life assessment

Baseline, 3, 6 and 9 months after starting the study

Intervention Type PROCEDURE

Eligibility Criteria

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Inclusion Criteria

DISEASE CHARACTERISTICS:

* Histologically confirmed newly diagnosed breast cancer

* Stage 0-III disease
* No metastasis or recurrent disease
* Insured with Medi-Cal OR ≥ 65 years old
* Hormone receptor status not specified

PATIENT CHARACTERISTICS:

* Menopausal status not specified
* English or Spanish-speaking
* Intending to receive all primary breast cancer treatment at City of Hope

PRIOR CONCURRENT THERAPY:

* No prior therapy for breast cancer
Minimum Eligible Age

50 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

City of Hope Medical Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Rebecca Crane-Okada, PhD

Role: PRINCIPAL_INVESTIGATOR

City of Hope Comprehensive Cancer Center

Locations

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City of Hope Comprehensive Cancer Center

Duarte, California, United States

Site Status

Countries

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United States

Other Identifiers

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P30CA033572

Identifier Type: NIH

Identifier Source: secondary_id

View Link

CHNMC-08092

Identifier Type: -

Identifier Source: secondary_id

CDR0000629952

Identifier Type: REGISTRY

Identifier Source: secondary_id

08092

Identifier Type: -

Identifier Source: org_study_id

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