Culturally-Informed Counseling in Latinas at High Risk for Hereditary Breast or Ovarian Cancer

NCT ID: NCT01230346

Last Updated: 2025-11-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Clinical Phase

NA

Total Enrollment

493 participants

Study Classification

INTERVENTIONAL

Study Start Date

2010-09-03

Study Completion Date

2026-09-25

Brief Summary

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This pilot clinical trial studies a culturally-informed counseling intervention in Latinas at high risk for hereditary breast or ovarian cancer. A culturally-informed counseling intervention may be an effective method to help people learn more about their cancer risk.

Detailed Description

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PRIMARY OBJECTIVES:

I. To conduct a randomized trial of a culturally-informed pre-genetic cancer risk assessment (GCRA) telephone intervention.

II. To evaluate the effect of the pre-GCRA intervention versus a time and attention control versus standard scheduling procedure alone (usual care) on levels of anxiety, perceived personal control and cancer genetics knowledge.

III. To explore patients' experiences with the pre-GCRA intervention through post-intervention telephone interviews.

SECONDARY OBJECTIVES:

I. To explore patients' perceived barriers to GCRA through no-show telephone interviews.

OUTLINE:

Patients are randomized to 1 of 3 treatment arms.

ARM I: Patients receive a culturally-informed adapted motivational interviewing telephone call.

ARM II: Patients participate in a controlled condition comprising a health habits intervention group.

ARM III: Patients receive usual care comprising a standard scheduling phone call and proceed with normal GCRA process. All patients are mailed standard new patient packets containing questionnaires on demographics and personal health history, and a family history form. All patients then undergo genetic cancer risk assessment.

Conditions

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No Evidence of Disease BRCA1 Syndrome BRCA2 Syndrome Hereditary Female Breast Carcinoma Hereditary Ovarian Carcinoma

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Arm I

Patients receive a culturally-informed adapted motivational interviewing telephone call.

Group Type EXPERIMENTAL

questionnaire administration

Intervention Type OTHER

Ancillary studies

survey administration

Intervention Type OTHER

Ancillary studies

counseling intervention

Intervention Type OTHER

Telephone intervention

educational intervention

Intervention Type OTHER

Telephone intervention

Arm II

Patients participate in a controlled condition comprising a health habits intervention group.

Group Type EXPERIMENTAL

questionnaire administration

Intervention Type OTHER

Ancillary studies

survey administration

Intervention Type OTHER

Ancillary studies

counseling intervention

Intervention Type OTHER

Telephone intervention

Arm III

Patients receive usual care comprising a standard scheduling phone call and proceed with normal GCRA process.

Group Type ACTIVE_COMPARATOR

questionnaire administration

Intervention Type OTHER

Ancillary studies

survey administration

Intervention Type OTHER

Ancillary studies

Interventions

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questionnaire administration

Ancillary studies

Intervention Type OTHER

survey administration

Ancillary studies

Intervention Type OTHER

counseling intervention

Telephone intervention

Intervention Type OTHER

educational intervention

Telephone intervention

Intervention Type OTHER

Other Intervention Names

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counseling and communications studies intervention, educational

Eligibility Criteria

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Inclusion Criteria

* Individuals who have a personal history of hereditary breast or ovarian cancer; a subset of 60 women without a personal history of hereditary or ovarian cancer will be included in an exploratory subset analysis
* Meet NCCN criteria for consideration of genetic testing for hereditary breast cancer
* Willing to sign consent
* Pregnant women and women of child-bearing potential are eligible for participation in this study
* Women who report themselves to be of Latino or Hispanic ethnic background (defined as Spanish, Mexican, Central or South American, Cuban, Puerto Rican, Dominican, or other Hispanic origin)
* Women who are under- or uninsured and come from low-income communities
* Ability to understand English or Spanish

Exclusion Criteria

* Previous participation in GCRA
Minimum Eligible Age

18 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

Yes

Sponsors

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National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

City of Hope Medical Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Bita Nehoray

Role: PRINCIPAL_INVESTIGATOR

City of Hope Medical Center

Locations

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City of Hope Medical Center

Duarte, California, United States

Site Status

University of Southern California-Keck School of Medicine

Los Angeles, California, United States

Site Status

Olive View-UCLA Medical Center

Sylmar, California, United States

Site Status

Countries

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United States

Other Identifiers

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NCI-2010-01998

Identifier Type: -

Identifier Source: secondary_id

08237

Identifier Type: -

Identifier Source: org_study_id