A Study to Investigate the Efficacy and Safety of ZX008 (Fenfluramine Hydrochloride) as an Adjunctive Therapy in Children and Adults With Lennox-Gastaut Syndrome

NCT ID: NCT03355209

Last Updated: 2025-07-03

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

View full results

Basic Information

Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.

Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

296 participants

Study Classification

INTERVENTIONAL

Study Start Date

2017-11-27

Study Completion Date

2024-05-23

Brief Summary

Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.

This is a two-part, multicenter, double-blind, parallel-group, placebo controlled study to evaluate the effect of ZX008 when used as adjunctive therapy for the treatment of uncontrolled seizures in children and adults with Lennox-Gastaut syndrome (LGS).

Detailed Description

Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.

Conditions

See the medical conditions and disease areas that this research is targeting or investigating.

Lennox Gastaut Syndrome

Study Design

Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.

Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Part 1: Double-Blind ZX008 - (0.2 mg/kg/day or 0.8mg/kg/day) or Placebo and Part 2: Open-Label
Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors
Part 1: Double-Blind Part 2: Open-Label

Study Groups

Review each arm or cohort in the study, along with the interventions and objectives associated with them.

ZX008 0.2 or 0.8 mg/kg/day

Part 1: ZX008 is supplied as an oral solution. Subjects will be randomized to receive 1 of 2 doses of ZX008 0.2 mg/kg/day or 0.8 mg/kg/day.

Group Type EXPERIMENTAL

ZX008 0.2 or 0.8 mg/kg/day

Intervention Type DRUG

ZX008 drug product is an oral aqueous solution of fenfluramine hydrochloride. The product is sugar free and is intended to be compatible with a Ketogenic Diet.

Matching Placebo

Part 1: Matching ZX008 placebo is supplied as an oral solution.

Group Type PLACEBO_COMPARATOR

Matching Placebo

Intervention Type DRUG

Placebo will be administered twice a day (BID) in equally divided doses.

Open-Label

Part 2: ZX008 is supplied as an oral solution. Study medication will be administered twice a day (BID) in equally divided doses.

Group Type EXPERIMENTAL

ZX008 0.2 or 0.8 mg/kg/day

Intervention Type DRUG

ZX008 drug product is an oral aqueous solution of fenfluramine hydrochloride. The product is sugar free and is intended to be compatible with a Ketogenic Diet.

Interventions

Learn about the drugs, procedures, or behavioral strategies being tested and how they are applied within this trial.

ZX008 0.2 or 0.8 mg/kg/day

ZX008 drug product is an oral aqueous solution of fenfluramine hydrochloride. The product is sugar free and is intended to be compatible with a Ketogenic Diet.

Intervention Type DRUG

Matching Placebo

Placebo will be administered twice a day (BID) in equally divided doses.

Intervention Type DRUG

Other Intervention Names

Discover alternative or legacy names that may be used to describe the listed interventions across different sources.

Placebo Comparator

Eligibility Criteria

Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.

Inclusion Criteria

* Male or non-pregnant, non-lactating female, age 2 to 35 years, inclusive as of the day of the Screening Visit.
* Clinical diagnosis of Lennox-Gastaut syndrome, where seizures that result in drops are not completely controlled by current antiepileptic treatments.
* Onset of seizures at 11 years of age or younger.
* Abnormal cognitive development.
* Must be receiving at least 1 concomitant AED and up to 4 concomitant anti-epileptic treatments.

Exclusion Criteria

* Etiology of seizures is a degenerative neurological disease.
* History of hemiclonic seizures in the first year of life.
* Subject only has drop seizures in clusters, where individual seizures cannot be counted reliably.
* Pulmonary arterial hypertension.
* Current or past history of cardiovascular or cerebrovascular disease, such as cardiac valvulopathy, myocardial infarction or stroke.
* Receiving concomitant therapy with: centrally-acting anorectic agents; monoamineoxidase inhibitors; any centrally-acting compound with clinically appreciable amount of serotonin agonist or antagonist properties, including serotonin reuptake inhibition; atomoxetine, or other centrally-acting noradrenergic agonist; cyproheptadine.
* Taking felbamate for less than 1 year prior to screening and/or does not have stable liver function and hematology laboratory tests, and/or the dose has not been stable for at least 60 days prior to the Screening Visit.
* Currently receiving an investigational product.
* Institutionalized in a general nursing home (ie, in a facility that does not specialize in epilepsy care).
* A clinically significant condition, or has had clinically relevant symptoms or a clinically significant illness in the 4 weeks prior to the Screening Visit, other than epilepsy, that would negatively impact study participation, collection of study data, or pose a risk to the subject.
Minimum Eligible Age

2 Years

Maximum Eligible Age

35 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

Meet the organizations funding or collaborating on the study and learn about their roles.

Zogenix International Limited, Inc., a subsidiary of Zogenix, Inc.

INDUSTRY

Sponsor Role lead

Responsible Party

Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.

Responsibility Role SPONSOR

Principal Investigators

Learn about the lead researchers overseeing the trial and their institutional affiliations.

UCB Cares

Role: STUDY_DIRECTOR

001 844 599 2273

Locations

Explore where the study is taking place and check the recruitment status at each participating site.

Ep0214 107

Tucson, Arizona, United States

Site Status

Ep0214 144

Los Angeles, California, United States

Site Status

Ep0214 101

San Francisco, California, United States

Site Status

Ep0214 103

Aurora, Colorado, United States

Site Status

Ep0214 149

Washington D.C., District of Columbia, United States

Site Status

Ep0214 115

Gulf Breeze, Florida, United States

Site Status

Ep0214 104

Miami, Florida, United States

Site Status

Ep0214 141

Orlando, Florida, United States

Site Status

Ep0214 121

Orlando, Florida, United States

Site Status

Ep0214 117

Atlanta, Georgia, United States

Site Status

Ep0214 110

Chicago, Illinois, United States

Site Status

Ep0214 140

Bethesda, Maryland, United States

Site Status

Ep0214 112

Boston, Massachusetts, United States

Site Status

Ep0214 136

Grand Rapids, Michigan, United States

Site Status

Ep0214 147

Royal Oak, Michigan, United States

Site Status

Ep0214 109

Rochester, Minnesota, United States

Site Status

Ep0214 132

Saint Paul, Minnesota, United States

Site Status

Ep0214 105

Hackensack, New Jersey, United States

Site Status

Ep0214 118

Livingston, New Jersey, United States

Site Status

Ep0214 150

Hartsdale, New York, United States

Site Status

Ep0214 142

New York, New York, United States

Site Status

Ep0214 131

Cleveland, Ohio, United States

Site Status

Ep0214 143

Portland, Oregon, United States

Site Status

Ep0214 120

Philadelphia, Pennsylvania, United States

Site Status

Ep0214 139

York, Pennsylvania, United States

Site Status

Ep0214 146

Dallas, Texas, United States

Site Status

Ep0214 126

Fort Worth, Texas, United States

Site Status

Ep0214 145

San Antonio, Texas, United States

Site Status

Ep0214 106

Salt Lake City, Utah, United States

Site Status

Ep0214 125

Tacoma, Washington, United States

Site Status

Ep0214 301

Heidelberg, , Australia

Site Status

Ep0214 302

South Brisbane, , Australia

Site Status

Ep0214 802

Brussels, , Belgium

Site Status

Ep0214 803

Brussels, , Belgium

Site Status

Ep0214 801

Edegem, , Belgium

Site Status

Ep0214 204

Toronto, , Canada

Site Status

Ep0214 201

Vancouver, , Canada

Site Status

Ep0214 701

Dianalund, , Denmark

Site Status

Ep0214 1004

Bordeaux, , France

Site Status

Ep0214 1006

Bron, , France

Site Status

Ep0214 1005

Lille, , France

Site Status

Ep0214 1007

Marseille, , France

Site Status

Ep0214 1001

Paris, , France

Site Status

Ep0214 1002

Paris, , France

Site Status

Ep0214 902

Bielefeld, , Germany

Site Status

Ep0214 906

Freiburg im Breisgau, , Germany

Site Status

Ep0214 905

Jena, , Germany

Site Status

Ep0214 908

Kiel, , Germany

Site Status

Ep0214 903

Radeberg, , Germany

Site Status

Ep0214 901

Vogtareuth, , Germany

Site Status

Ep0214 1211

Bologna, , Italy

Site Status

Ep0214 1201

Florence, , Italy

Site Status

Ep0214 1204

Genova, , Italy

Site Status

Ep0214 1206

Roma, , Italy

Site Status

Ep0214 1208

Roma, , Italy

Site Status

Ep0214 1510

Fukuoka, , Japan

Site Status

Ep0214 1505

Niigata, , Japan

Site Status

Ep0214 1501

Okayama, , Japan

Site Status

Ep0214 1507

Osaka, , Japan

Site Status

Ep0214 1504

Ōmura, , Japan

Site Status

Ep0214 1508

Sapporo, , Japan

Site Status

Ep0214 1506

Shinjuku-ku, , Japan

Site Status

Ep0214 1502

Shizuoka, , Japan

Site Status

Ep0214 1604

Guadalajara, , Mexico

Site Status

Ep0214 1401

Zwolle, , Netherlands

Site Status

Ep0214 1702

Bydgoszcz, , Poland

Site Status

Ep0214 1701

Krakow, , Poland

Site Status

Ep0214 1105

Barcelona, , Spain

Site Status

Ep0214 1107

Barcelona, , Spain

Site Status

Ep0214 1101

Mirasierra, , Spain

Site Status

Ep0214 1102

Pamplona, , Spain

Site Status

Ep0214 502

Gothenburg, , Sweden

Site Status

Countries

Review the countries where the study has at least one active or historical site.

United States Australia Belgium Canada Denmark France Germany Italy Japan Mexico Netherlands Poland Spain Sweden

References

Explore related publications, articles, or registry entries linked to this study.

Knupp KG, Scheffer IE, Ceulemans B, Sullivan JE, Nickels KC, Lagae L, Guerrini R, Zuberi SM, Nabbout R, Riney K, Shore S, Agarwal A, Lock M, Farfel GM, Galer BS, Gammaitoni AR, Davis R, Gil-Nagel A. Efficacy and Safety of Fenfluramine for the Treatment of Seizures Associated With Lennox-Gastaut Syndrome: A Randomized Clinical Trial. JAMA Neurol. 2022 Jun 1;79(6):554-564. doi: 10.1001/jamaneurol.2022.0829.

Reference Type DERIVED
PMID: 35499850 (View on PubMed)

Provided Documents

Download supplemental materials such as informed consent forms, study protocols, or participant manuals.

Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan: Part 2 Cohort B-SAP

View Document

Document Type: Statistical Analysis Plan: Part 2 Cohort A-SAP

View Document

Document Type: Statistical Analysis Plan: Part 1 Cohort B-SAP

View Document

Document Type: Statistical Analysis Plan: Part 1 Cohort A-SAP

View Document

Other Identifiers

Review additional registry numbers or institutional identifiers associated with this trial.

2017-002628-26

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

ZX008-1601

Identifier Type: -

Identifier Source: org_study_id

More Related Trials

Additional clinical trials that may be relevant based on similarity analysis.

An Open-label Study of XEN1101 in Epilepsy
NCT05718817 ENROLLING_BY_INVITATION PHASE3
Randomized Therapy In Status Epilepticus
NCT04391569 COMPLETED PHASE3
Study in Pediatric Subjects With Epilepsy
NCT01494584 TERMINATED PHASE2