Canadian CP Registry - Registre Canadien de la Paralysie Cérébrale
NCT ID: NCT03353194
Last Updated: 2021-02-25
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
2771 participants
OBSERVATIONAL
2004-04-14
2020-04-30
Brief Summary
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Detailed Description
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Cerebral palsy is the most common cause of physical disability in children in Canada and it is important that we gain a better understanding of its prevalence, risk factors and current clinical profile. The Canadian CP Registry provides valuable data from different Canadian regions which can be shared and analyzed so as to provide answers to these important questions. Specifically, the Registry serves to:
* Characterize the profile of children living with CP across the country
* Identify risk factors associated with CP
* Monitor the prevalence of CP across the country
* Provide a platform for subject recruitment for population-based research on CP
Conditions
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Study Design
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OTHER
PROSPECTIVE
Eligibility Criteria
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Inclusion Criteria
* Diagnosed with Cerebral Palsy
* Living in Canada
Exclusion Criteria
18 Months
18 Years
ALL
No
Sponsors
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Kids Brain Health Network
UNKNOWN
Children's Treatment Network
NETWORK
Montreal Children's Hospital of the MUHC
OTHER
Alberta Children's Hospital
OTHER
Women and Children's Health Research Institute, Canada
OTHER
Provincial Health Services Authority
OTHER
IWK Health Centre
OTHER
The Hospital for Sick Children
OTHER
Holland Bloorview Kids Rehabilitation Hospital
OTHER
McGill University Health Centre/Research Institute of the McGill University Health Centre
OTHER
Responsible Party
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Maryam Oskoui, MD, MSc, FRCPC, FAAN
Associate Professor, Departments of Pediatrics and Neurology & Neurosurgery
Principal Investigators
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Michael I Shevell, MDCM
Role: PRINCIPAL_INVESTIGATOR
McGill University Health Centre/Research Institute of the McGill University Health Centre
Maryam Oskoui, MD, MSc
Role: PRINCIPAL_INVESTIGATOR
McGill University Health Centre/Research Institute of the McGill University Health Centre
Locations
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Alberta Children's Hospital
Calgary, Alberta, Canada
Glenrose Rehabilitation Hospital
Edmonton, Alberta, Canada
Sunny Hill Health Centre for Children
Vancouver, British Columbia, Canada
Janeway Health Center
St. John's, Newfoundland and Labrador, Canada
IWK Health Centre
Halifax, Nova Scotia, Canada
Children's Treatment Network
Barrie, Ontario, Canada
Holland-Bloorview Kids Rehabilitation Hospital
Toronto, Ontario, Canada
Centre régional de réadaptation La RessourSe
Gatineau, Quebec, Canada
Centre de réadaptation Le Bouclier
Joliette, Quebec, Canada
Centre de Réadaptation Marie-Enfant
Montreal, Quebec, Canada
MAB-Mackay Rehabilitation Centre
Montreal, Quebec, Canada
Montreal Children's Hospital
Montreal, Quebec, Canada
Shriners Hospital Montreal
Montreal, Quebec, Canada
Institut de réadaptation physique du Québec
Québec, Quebec, Canada
Centre de réadaptation Estrie
Sherbrooke, Quebec, Canada
Countries
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References
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Oskoui M, Gazzellone MJ, Thiruvahindrapuram B, Zarrei M, Andersen J, Wei J, Wang Z, Wintle RF, Marshall CR, Cohn RD, Weksberg R, Stavropoulos DJ, Fehlings D, Shevell MI, Scherer SW. Clinically relevant copy number variations detected in cerebral palsy. Nat Commun. 2015 Aug 3;6:7949. doi: 10.1038/ncomms8949.
Oskoui M, Messerlian C, Blair A, Gamache P, Shevell M. Variation in cerebral palsy profile by socio-economic status. Dev Med Child Neurol. 2016 Feb;58(2):160-6. doi: 10.1111/dmcn.12808. Epub 2015 May 22.
Shevell M, Dagenais L, Oskoui M. The epidemiology of cerebral palsy: new perspectives from a Canadian registry. Semin Pediatr Neurol. 2013 Jun;20(2):60-4. doi: 10.1016/j.spen.2013.06.008. No abstract available.
Oskoui M, Majnemer A, Dagenais L, Shevell MI. The relationship between gross motor function and manual ability in cerebral palsy. J Child Neurol. 2013 Dec;28(12):1646-52. doi: 10.1177/0883073812463608. Epub 2012 Oct 30.
Garfinkle J, Wintermark P, Shevell MI, Oskoui M. Children born at 32 to 35 weeks with birth asphyxia and later cerebral palsy are different from those born after 35 weeks. J Perinatol. 2017 Aug;37(8):963-968. doi: 10.1038/jp.2017.23. Epub 2017 Mar 16.
Oskoui M, Joseph L, Dagenais L, Shevell M. Prevalence of cerebral palsy in Quebec: alternative approaches. Neuroepidemiology. 2013;40(4):264-8. doi: 10.1159/000345120. Epub 2013 Jan 24.
Other Identifiers
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09-234-PED
Identifier Type: -
Identifier Source: org_study_id
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