Quality of Life in Colorectal (ex-)Cancer Patients, Based on the Belgian Cancer Registry.

NCT ID: NCT02545725

Last Updated: 2015-09-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

1220 participants

Study Classification

OBSERVATIONAL

Study Start Date

2015-04-30

Study Completion Date

2015-08-31

Brief Summary

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This study is collecting data on quality of life, (care)needs and socio-economic factors in colorectal (ex-)cancer patients via a written questionnaire completed by the patient him/herself. The collected data will be linked with the patient- and tumour characteristics available in the database of the Belgian Cancer Registry and with the facturation data supplying information about diagnostic techniques and performed treatments (available via the insurance companies).

Based on the selection criteria, 1220 patients were finally selected from the database of the Belgian Cancer Registry. These patients received an invitation letter by regular mail, a detailed questionnaire and an informed consent.

The questionnaire contains topics as sociodemographic, life style, comorbidity, satisfaction with the provided information, care needs, quality of life, anxiety and depression, financial situation etc.

The patients were asked to complete the questionnaire and send it back, together with the signed informed consent, to the study-collaborators.

After 2-4 weeks, a reminder was sent. At that time, a reply card was added. If a patient doesn't want to participate in this study, a reason can be mentioned on the reply card.

The collected data are linked with the clinical data. The dataset will be coded before analyses will start.

Detailed Description

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Conditions

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Colorectal Cancer Quality of Life

Study Design

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Observational Model Type

COHORT

Study Time Perspective

RETROSPECTIVE

Interventions

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Questionnaire on Quality of Life

The patients were asked to complete a questionnaire on Quality of Life

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Invasive colorectal cancer (ICD-10: C18-C19-C20)
* Patient knows his/her diagnosis of cancer
* Incidence in 2008, 2009 or 2010
* The patient is at least 18 years at diagnosis
* The patient is maximal 90 years when completing the questionnaire
* The patient lives in Flanders and speaks Dutch
* The patient is treated/followed by 1 of the 7 participating hospitals
* The patient is able to complete the questionnaire him/herself (no cognitive problems)

Exclusion Criteria

* More than 1 invasive tumour diagnosed
Minimum Eligible Age

18 Years

Maximum Eligible Age

90 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Flemish League Against Cancer

OTHER

Sponsor Role collaborator

Elizabeth Van Eycken

OTHER

Sponsor Role lead

Responsible Party

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Elizabeth Van Eycken

Director Belgian Cancer Registry

Responsibility Role SPONSOR_INVESTIGATOR

Principal Investigators

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Elizabeth Van Eycken

Role: STUDY_DIRECTOR

Director Belgian Cancer Registry

Locations

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Belgian Cancer Registry

Brussels, Koningsstraat 215 B7, Belgium

Site Status

Countries

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Belgium

Related Links

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http://www.kankerregister.org

Belgian Cancer Registry

Other Identifiers

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S57073

Identifier Type: -

Identifier Source: org_study_id

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