Colorectal Cancer Survivors' Needs and Preferences for Survivorship Information

NCT ID: NCT01003600

Last Updated: 2014-12-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

177 participants

Study Classification

OBSERVATIONAL

Study Start Date

2009-10-31

Study Completion Date

2014-11-30

Brief Summary

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We are doing this study to learn more about colon and rectal cancer survivors. We want to know if survivors want more information about life after cancer. Do cancer survivors want to know more about their own cancer? Do cancer survivors want to know about their treatment? Do cancer survivors want to know what health care they should get in the future? We want to know what information to give to cancer survivors when they finish treatment.

Detailed Description

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Conditions

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Colon Cancer Rectal Cancer

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Questionnaire

This study is a cross-sectional survey study to be administered to adults who completed treatment for nonmetastatic colorectal cancer at MSKCC or at Queens Cancer Center (QCC) at Queens Hospital between 6 months and 2 years ago and have no evidence of disease at the time of study enrollment.

Questionnaire

Intervention Type BEHAVIORAL

The questionnaire will be administered by telephone and will take approximately 20-30 minutes. The questionnaire will elicit survivor responses along five domains: knowledge about diagnosis and treatment, knowledge about ongoing risks and recommended testing, history of health care utilization since the end of treatment, preferences for relevant information about these topics, and employment after the end of cancer treatment.

Interventions

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Questionnaire

The questionnaire will be administered by telephone and will take approximately 20-30 minutes. The questionnaire will elicit survivor responses along five domains: knowledge about diagnosis and treatment, knowledge about ongoing risks and recommended testing, history of health care utilization since the end of treatment, preferences for relevant information about these topics, and employment after the end of cancer treatment.

Intervention Type BEHAVIORAL

Other Intervention Names

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The questionnaire will be administered using a Computer Assisted Telephone Interview (CATI) system. The CATI form of the questionnaire enables the interviewer to read aloud from a script and enter responses into the computer in real-time, regardless of whether the interview is conducted on the phone or in person. The CATI form of the questionnaire enables the interviewer to read aloud from a script and enter responses into the computer in real-time, regardless of whether the interview is conducted on the phone or in person.

Eligibility Criteria

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Inclusion Criteria

* 18 years of age or older at diagnosis
* Diagnosed with first primary colorectal cancer (stage I-III)
* Completed last treatment for colorectal cancer (surgery, chemotherapy, or radiation) at least 6 months and no more than 2 years before the date of study enrollment
* Able to speak English, because questionnaire is only available in English
* Able to provide informed consent
* Received all treatment for colorectal cancer at MSKCC or QCC or, surgical treatment at an outside facility, and all other treatment (chemotherapy or radiation) at MSKCC or QCC

Exclusion Criteria

* Undergoing active treatment for colorectal cancer
* Diagnosed with metastatic colorectal cancer
* Prior history of colorectal or any other cancer (except non-melanoma skin cancer)
* Diagnosed with new or recurrent colorectal or other cancer after the primary colorectal cancer diagnosis
* Received a survivorship care plan from the treating institution
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Queens Cancer Center of Queens Hospital

OTHER

Sponsor Role collaborator

Memorial Sloan Kettering Cancer Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Talya Salz, PhD

Role: PRINCIPAL_INVESTIGATOR

Memorial Sloan Kettering Cancer Center

Locations

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Queens Cancer Center of Queens Hospital

Jamaica, New York, United States

Site Status

Memorial Sloan-Kettering Cancer Center

New York, New York, United States

Site Status

Countries

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United States

Related Links

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http://www.mskcc.org/mskcc/html/44.cfm

Memorial Sloan-Kettering Cancer Center

Other Identifiers

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09-133

Identifier Type: -

Identifier Source: org_study_id